Some of the comm ents on here regarding views on respite need addressing. I am a parent of a child who has complex medical needs.
Kathy has and is still continuing to paint parents of medically complex children in a bad light.
J didn't need the carers he got because he wasn't as medically complex as his mother liked to portray.
However there are children who do fit that criteria and reading some of the comments about leaving well kids and not being able to .... I just have to point out .... Kathy is the extreme. She's already painted us all in a bad light because of the go fund me's we all supposedly have for our disabled children..... now she's making people think that respite is like abandoning your child.
Respite is there for parents with medically complex children because it is needed. Parenting a child who has oxygen, seizures, medication hourly, needing turning in the night etc..... well its very very different to parenting a child who doesn't have those health problems. It's tiring.
We arnt all like Kathy. We don't milk the system for all its worth. We are greatful for the things we do get. The mobility car.... that I can assure you every single parent I know alongside me use the mobility scheme for our child. Not to look good posed with designer goods in. We always give back to others, we share others fundraisers, we put in others, we support each other, we love our children to the ends of the earth.
I do not want that twat painting a picture of SEN mums going off what that cunt is like. We arnt all exploiting out children, 'dumping' our kids in respite, living off fundraisers, driving around in Mercedes and living the High life.
This is exactly why a lot of the SEN community haven't supported her. She has damaged the reputation of a whole community and has successfully got people not wanting wanting give to fundraisers or giving people negative views on respite and the mobility scheme.
Shes the most ableist person I know and the whole point of her page was to advocate when she did the total opposite. She used her sons disability to financially gain, used his disability for sympathy and 'fame' and took advantage of the things other SEN parents fully appreciate and cherish such as the charities out there, the mobility scheme, respite, etc.
Respite is for those who need that help because trust me we need that little bit of help. She used it as a babysitting service and a stand in parent because she couldn't parent. Not because she wasn't able to. Not because her son was so so hard to look after but she just didn't want to and continually put other things before his needs.
Even now in death she is painting a bad light on grieving parents.
Please do not let that absolute disgrace of a SEN parent let alone parent of a child without disabilities distort your views on the things that come with the life myself and a lot of others lead.
Kathy has and is still continuing to paint parents of medically complex children in a bad light.
J didn't need the carers he got because he wasn't as medically complex as his mother liked to portray.
However there are children who do fit that criteria and reading some of the comments about leaving well kids and not being able to .... I just have to point out .... Kathy is the extreme. She's already painted us all in a bad light because of the go fund me's we all supposedly have for our disabled children..... now she's making people think that respite is like abandoning your child.
Respite is there for parents with medically complex children because it is needed. Parenting a child who has oxygen, seizures, medication hourly, needing turning in the night etc..... well its very very different to parenting a child who doesn't have those health problems. It's tiring.
We arnt all like Kathy. We don't milk the system for all its worth. We are greatful for the things we do get. The mobility car.... that I can assure you every single parent I know alongside me use the mobility scheme for our child. Not to look good posed with designer goods in. We always give back to others, we share others fundraisers, we put in others, we support each other, we love our children to the ends of the earth.
I do not want that twat painting a picture of SEN mums going off what that cunt is like. We arnt all exploiting out children, 'dumping' our kids in respite, living off fundraisers, driving around in Mercedes and living the High life.
This is exactly why a lot of the SEN community haven't supported her. She has damaged the reputation of a whole community and has successfully got people not wanting wanting give to fundraisers or giving people negative views on respite and the mobility scheme.
Shes the most ableist person I know and the whole point of her page was to advocate when she did the total opposite. She used her sons disability to financially gain, used his disability for sympathy and 'fame' and took advantage of the things other SEN parents fully appreciate and cherish such as the charities out there, the mobility scheme, respite, etc.
Respite is for those who need that help because trust me we need that little bit of help. She used it as a babysitting service and a stand in parent because she couldn't parent. Not because she wasn't able to. Not because her son was so so hard to look after but she just didn't want to and continually put other things before his needs.
Even now in death she is painting a bad light on grieving parents.
Please do not let that absolute disgrace of a SEN parent let alone parent of a child without disabilities distort your views on the things that come with the life myself and a lot of others lead.