This is what I think he may have as well or Crouzon Syndrome - from what we have seen he does display some of the physical characteristics, doesn't affect heart or respiratory systems.Anyone heard of Apert Syndrome?
No but I looked it up . Where is the video showing the fingers . I never noticed that. All this sounds awful if it's correctAnyone heard of Apert Syndrome?
I think its definitely crouzon/apert/pfeiffer syndrome. Her most recent video with his hair you can see his little head looks a bit cone shaped which is a characteristic of the syndrome.Anyone heard of Apert Syndrome?
It's the one where she says looks at his hair, you can only see a small part of him but his fingers are 100% webbed you may need to watch it a few timesNo but I looked it up . Where is the video showing the fingers . I never noticed that. All this sounds awful if it's correct
Talia’s Instagram stories.No but I looked it up . Where is the video showing the fingers . I never noticed that. All this sounds awful if it's correct
Totally agree with this postTalia’s Instagram stories.
I agree with others, Aaron is clearly disappointed. I think Talia is too and I can appreciate that; wholeheartedly I can say I would be devastated too.
I know this, because this week I had a cry thinking about my healthy three year old’s first day of school next September… then I sobbed louder thinking about her last day of school and her graduation from university (that bloody ABBA slipping through my fingers song) I do think it’s natural to have dreams and ambition for your children.
What is horrific though is that with Aaron he’s not grieving the future he’d imagined for his son, he’s ashamed of him and is coming across as angry but in a targeted way.
I think Talia is giving away too much for his liking and when the cat is out of the bag because Talia has slipped up, there is going to be further strain on their already struggling relationship.
Thank you I've just watched it a couple of times and I must admit it does look like it . Poor soulIt's the one where she says looks at his hair, you can only see a small part of him but his fingers are 100% webbed you may need to watch it a few times
Oh is that why I can't find her in the search bar? What does shadow banned mean and why does it happenPs she is STILL shadow banned as I tried to search her and she didn’t come up
Poor little bub. You have see the cone shape here and also how low set his ears are. You can also see the start of the protruding eyes another feature of the syndromes.View attachment 1551917
Bless him
I agree I’ve just done a bit of reading into it never heard of it before definitely sounds like Apert syndrome … he looks beautiful just sad they feel they have to hide himI think its definitely crouzon/apert/pfeiffer syndrome. Her most recent video with his hair you can see his little head looks a bit cone shaped which is a characteristic of the syndrome.
It's a shame isn't it for the baby if trolls were horrible enough to mock a disabled child says more about them as people, he deserves to be shown off but all the bits she's shown now apart from his eyes nose and limbs i guess she didn't realise she caught his fingers in the videoPoor little bub. You have see the cone shape here and also how low set his ears are. You can also see the start of the protruding eyes another feature of the syndromes.
I scrolled back and saw she had a 4d scan done at fetal medicine. Did she ever say why? Looks like some abnormalities were picked up during the pregnancy then.
If it is when we suspect then he will need lots of very big surgeries in his first few years and can't see how they will cope.
I just had a look at the 4d scan images of both my babies & you can definitely see the little eyes are bulging on the one she shared so I imagine they knew in advance that there was something but maybe needed to wait until birth for a full diagnosis.Poor little bub. You have see the cone shape here and also how low set his ears are. You can also see the start of the protruding eyes another feature of the syndromes.
I scrolled back and saw she had a 4d scan done at fetal medicine. Did she ever say why? Looks like some abnormalities were picked up during the pregnancy then.
If it is when we suspect then he will need lots of very big surgeries in his first few years and can't see how they will cope.