TheNurseMum #8

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I was genuinely devastated when J passed. I have a child the same age and I just kept looking at her thinking how awful Katie must be feeling. BUT watching her on social media since I don't doubt that there is a part of Katie also grieving for the life J afforded her to have, the money, the car, the fame.
 
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I remember one video in fact if you look on her Facebook it’s still on it . J was vomiting in The back seat she was videoing him instead of helping him he was literally chocking only his own sick . I honestly don’t understand why she would post that .

The thing Is the medication she stopped was the medication that stops the sickness . He was already extremely underweight because she decided to go against what doctors advised and was literally starving him so when she then stopped that medication it would have made him sick more and become dehydrated . nothing On this thread is a lie it’s all on other threads to see from her insta account so she cannot ever deny it . If she genuinely was guilty for how j life ended and the decisions she made and discharging him and going out for her birthday then she would lay low for a bit instead she has set uo a merch shop selling items such as T-shirt’s with her child on who is dead to thoasands of strangers .,.. that’s not guilt in my eyes that’s carrying on financially gaining from him
 
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It’s been a few hours and I still can’t comprehend the feeding school. My FIL had a PEG following cancer treatment, and despite making a great recovery, he still uses his PEG as he was scared of eating orally. I can’t even begin to imagine refusing to use the PEG to keep him going. It’s just cruel? Did anyone question this?
 
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It’s been a few hours and I still can’t comprehend the feeding school. My FIL had a PEG following cancer treatment, and despite making a great recovery, he still uses his PEG as he was scared of eating orally. I can’t even begin to imagine refusing to use the PEG to keep him going. It’s just cruel? Did anyone question this?
She was told by his cardiologist at GOSH to under no certain terms do it. The feeding school also advised that he wasn't stable enough to actually attend the physical school which was her first plan but they'd do an online plan but they also didn't recommend it but naturally they pushed for it cause they wanted the ££££. Kaytee didn't listen to any of the advice she was told she just went ahead and did it and documented it for us all to see, you could see J deteriorating by the second.

Also, she wasn't actually really trying him with anything that had substantial nutritional value. As previous posters have said it was chocolate cakes and frazzles. For a time he was on a blended diet thru his PEG which you could actually see him tolerate and he was gaining some weight & making process but all K could do was complain how it was so time consuming prepping the blended meals, cooking the blended meals & flushing with pepper mint tea. Again, this treatment plan that was somewhat working for J was too much of an inconvenience for her, that's when she began looking into the feeding school.
 
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Didn't she say she did the feeding school because she didn't have time to peg feed? Everything was/Is always about what was best for her. She constantly bad mouthed the Nottingham specialists because they didn't tel her what she wanted to hear. I'm actually surprised she's not suing the hospital as she was always building up to a claim against them. I suppose she knows if she tries that they might come back with some evidence of her very poor decisions and their impact on j's health. It's so so upsetting to know j went straight from intensive care to school/carers the next day. I kept my child off today because they had a headache yesterday and I didn't feel they were well enough for school. I can't comprehend sending a v poorly child in.
 
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I’m new to this thread, and have to say I am gobsmacked and so very sad to hear about the feeding school. It has actually quite upset me to think of him being so hungry and thin 😢 I just can’t even comprehend a mother treating their child like that. And I can’t believe his Drs didn’t step in. Did they know what she was doing? Did she mention what they’d said about it? What about her family or friends? Why did nobody step in and help this poor little boy? It upsets me more, the more I think about it. In my opinion if what’s been said about the feeding school, stopping his medication etc is true, she should face criminal charges (before I get jumped on, that is my personal opinion with the information I’ve read on here and with no professional experience in medicine or law!) Were social services involved? I just feel this poor gorgeous boy has been massively let down by everyone around him.
 
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I can't find the other threads to read.. does anyone have a link?

I've followed TNM since one of her posts came on my feed once and it was of jaxon violently vomiting. I remember thinking poor boy and his mother having to deal with this daily.
But after reading this thread, it seems all is what was shown is not all what it seems.
Very sad to hear.

Here is the link to the other threads and for anyone else new to have a read

 
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She was told by his cardiologist at GOSH to under no certain terms do it. The feeding school also advised that he wasn't stable enough to actually attend the physical school which was her first plan but they'd do an online plan but they also didn't recommend it but naturally they pushed for it cause they wanted the ££££. Kaytee didn't listen to any of the advice she was told she just went ahead and did it and documented it for us all to see, you could see J deteriorating by the second.

Also, she wasn't actually really trying him with anything that had substantial nutritional value. As previous posters have said it was chocolate cakes and frazzles. For a time he was on a blended diet thru his PEG which you could actually see him tolerate and he was gaining some weight & making process but all K could do was complain how it was so time consuming prepping the blended meals, cooking the blended meals & flushing with pepper mint tea. Again, this treatment plan that was somewhat working for J was too much of an inconvenience for her, that's when she began looking into the feeding school.
She got a very expensive blender from a charity so that she would blend him some good food up BUT then she couldn’t be arsed so put him back on nhs milk and used the blender to make smoothie recipes and share them with her insta fam 😒
 
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She constantly bad mouthed the Nottingham specialists because they didn't tel her what she wanted to hear.
Can that be used against her in the review? Not against her but you know what I mean, used as evidence. (A whole day of speaking my other two languages at work and I can no longer think in English ffs 😂🤦‍♀️)
 
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Can you imagine wearing one of those 398 t shirts and someone going ‘Hey, what’s your t shirt all about?’, and you saying ‘Oh it’s the exact age a boy I never met was when he died’.
They would look at you, rightly, like you were insane.
 
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Can you imagine wearing one of those 398 t shirts and someone going ‘Hey, what’s your t shirt all about?’, and you saying ‘Oh it’s the exact age a boy I never met was when he died’.
They would look at you, rightly, like you were insane.
I shouldn't laugh but at this point I think I'd be sobbing for that poor but if I didn't.

I was trying to explain all of this to my partner who doesn't really do social media at all. Explaining it from the start and to an outsider of sorts just makes it all seem and feel 100 times worse 😔
 
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She was told by his cardiologist at GOSH to under no certain terms do it. The feeding school also advised that he wasn't stable enough to actually attend the physical school which was her first plan but they'd do an online plan but they also didn't recommend it but naturally they pushed for it cause they wanted the ££££. Kaytee didn't listen to any of the advice she was told she just went ahead and did it and documented it for us all to see, you could see J deteriorating by the second.

Also, she wasn't actually really trying him with anything that had substantial nutritional value. As previous posters have said it was chocolate cakes and frazzles. For a time he was on a blended diet thru his PEG which you could actually see him tolerate and he was gaining some weight & making process but all K could do was complain how it was so time consuming prepping the blended meals, cooking the blended meals & flushing with pepper mint tea. Again, this treatment plan that was somewhat working for J was too much of an inconvenience for her, that's when she began looking into the feeding school.
I want to cry. I really do.
 
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She got a very expensive blender from a charity so that she would blend him some good food up BUT then she couldn’t be arsed so put him back on nhs milk and used the blender to make smoothie recipes and share them with her insta fam 😒
The blender and cooking equipment that costs a bomb that she went to a charity for just a couple of weeks AFTER having 2 GoFundMe's and 1 Justgiving set up for her. Couldn't use it for J but could make smoothies for herself in it. This is the same blender you see other SEN families fundraising for.
 
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I shouldn't laugh but at this point I think I'd be sobbing for that poor but if I didn't.

I was trying to explain all of this to my partner who doesn't really do social media at all. Explaining it from the start and to an outsider of sorts just makes it all seem and feel 100 times worse 😔
I wasn’t even trying to be funny, it’s just grim isn’t it.

Black humour I guess. That poor, poor boy.
 
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She gives nursing a bad name, despite the fact she capitalised with this 'handle' to give her IG page cachet, she thought she knew better than all the specialists
The poor boy had a multitude of illnesses/syndromes ...you don't go mucking about with drug dosages in a child with severe heart and kidney issues and she should have known that as a health care specialist
The online shop is a travesty to the memory of J
 
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I’ve been quietly reading and not commented for a while. The more I read the more lost for words I become. I started following TNM before Jaxon passed away but hadn’t been following her for very long. I also dip in and out of Insta and have to admit I did often skip her stories because I couldn’t really take to her. I didn’t see any of the vomiting stories or any updates on the feeding school so this is all new to me. Anyone that’s been in hospital knows how you feel when you get out you just want home and your own bed. The poor boy being dumped at school and on carers after being in intensive care. Also the blending…if something was going to be beneficial to my very sick child’s life I wouldn’t care if it took 20 hours out of my day. I would bleeping do it! I cannot comprehend this girl. I’m sorry I know it’s an awful word but she’s a massive bleep!
 
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If anyone is new here and has the time to... get yourself a bottle of wine and a packet of biscuits and have a read through the previous threads on her.
There has been so much negligence from his mother throughout his life. Before he passed, things were getting increasingly worrying and sadly I think a lot of us saw it heading this way.
We've all seen the consistent missing medication, taking him off vital medication to make him poorly, going against many professionals and starving that poor boy. Buying hot tubs for a child with kidney problems. Leaving his tube hanging out, open to infection and letting it be pulled up his tops to show he's disabled.... all the while making his gastrostomy site bigger so she could score higher on the skin section of Continuing Health care. Every section in that carer criteria was looked at by her and used to make her boy worse so she wouldn't need to look after him.

He's been passed around to anyone who would have him, left carers in hospital with her poorly son so she could be at home getting pissed up with random men and boasting about her handbags in the hot tub she said she could never use for her because of her skin. The hot tub that was left to go mouldy and could have seriously damaged the mechanics but she couldnt give a tit about people's hard earned cash as long as its there to spend on her.

Letting her son play with knifes, putting coins in his mouth, never strapping him in car correctly, letting him open windows and doors with his feet in the car. Putting him in the death trap of a high chair she had previously insisted she needed a specialist chair. Lying about the feeding school taster not going ahead. Leaving her son in a children's hospice to go abroad to Paris, Venice.... with her ex bf.

All these designer goods she'd show off slyly but her son in the earlier days wore only a dirty pad which she'd allow him to take off and smear all over the carpet. The kittens she'd let tit and piss everywhere and never teach her son to be gentle. The selling from his hospital bed, using his starving to sell weighing scales.

The amount of insisting he couldn't move around but would then film him bum shuffling, standing, stepping. Insisting he couldn't toilet but then used him for potty training ads. Insisting he couldn't communicate at all but then all of a sudden could talk, use Makaton etc. Always making out his disabilities were more than they were to bring in the fundraisers.... the pity.... the carer appeals.

The boy never got the hype of Xmas or birthdays.In his own mothers words he didn't understand it. But then can be seen spelling words on his ipad. His mother's own ableism towards her son was sickening.

I hardly ever saw that poor boy have fun with his mother without the lavish holidays. lets face it those holidays were for her and he got dragged around. Hence the urge to get him eating so she could get abroad easier .He went to school then he'd be sat in that high chair with the ipad constantly. School transport to stick on another 2 hiurs child free j she'd have. No baking, no playing, no painting. The same day in day out. Unless he was being dragged to London to hand over to his dad so she could live the life she's always wanted. And even with school, transport, carers, his dad, her family she kept quiet... she still couldn't manage. She still would say she's late putting an ad together... missing appointments , missing feeds, missing sending paperwork off. What was she doing?setting up her candles and random mirror on the hallway for yet another posed selfish in her same cleavage showing top?? Face full of slap everyday but was so exhausted. Priorities. They were lacking and always were so wrong.

Everything has always been about her. The lifestyle she is clinging on to. Clinging to carers so she didn't have to actually parent her child. Taking every ad going and using her sons disability to get the engagement up for it.

Shes deleted some of the most outrageous stories and posts because she reads here.

I am gutted j was failed. I will not say my thoughts on blame .... but I know that boy was let down massively. I hope there's an inquest and they take on board issues raised by many people on here who have reported various things. Oh there's guilt there alright. I think she knows exactly her actions And scared abiut those consequences.Hence the photos of him just before he passed being over shared. Trying to prove he was OK when actually his body was screaming out it was being pushed to the limit.

His mother is in yet about lavish resort. Second holiday since his passing. Her friends with her all glammed up, going for expensive meals and drinks.... whose visiting his grave she said she hated being away from?all I see is someone cashing in on what shouldn't never be used to gain money, living the life in marrakesh and using personal and heartbreaking memories of his lifeless body to thousands of people to sell the brand.

I've never come across a thread so serious and sickening.
 
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How could he come out of intensive care and the next day go to school and Keira’s so she could go out for her birthday? Also how she went against specialists advice all the time. Wouldn’t stuff like this come up in the review? It is all just so so sad 😢
 
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Notts city safeguarding is tit hot… if you have a shite postcode. When my son was a baby and we lived in a shite area, he crawled backwards off a change table and banged his head. Few days later I had safeguarding ring me to explain how it happened, and why was I using a change table when he was crawling. I would like to think someone was involved.
 
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His needs were quite obviously neglected by her, it’s heartbreaking that no one intervened as I do believe this could of been prevented if someone had. If he was a child with no complex medical needs and she was refusing to feed him because it didn’t fit in with her time then it would be neglect, if you don’t take you child to her medical help when needed because it doesn’t fit in with your time it is neglect. His death could of been prevented, but she failed him, that sounds harsh and honestly I feel like an absolute witch saying it, but it’s clear to see. If I stopped giving my son his insulin and testing his blood sugar, he would die and that would be my fault, it would be on me, as his mother I make sure he has that medicine and we follow the steps we do to ensure his levels stay good and he stays healthy. It doesn’t stop when he goes to bed, I have to be up in the night multiple times to check his blood sugars. He was an innocent child with no way of voicing how he was feeling, if he was hungry or felt ill and she took advantage of that and completely failed him in doing so. He deserved more and it breaks my heart that he had to pay the ultimate price due to her lack of care and parenting
 
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