I googled “cancer that doesn’t show up on PET scan” and the first result was a certain type of stomach cancer.I currently have a friend who is in chemo for liver cancer and "unspecified/unknown" cancer. They know the liver cancer is met. from somewhere else but can't find it, it doesn't light up on the PET scans, etc. They THINK it's from chest or head area. I was just wondering if anyone knows how common it is for cancer not to show on PET scans but you actually have it. It doesn't look good for my friend right now.
Her videos really are incredibly repetitive. This vlog about having a PET scan really wasn't needed. We have seen the exact same thing many times before. I don't get how she can think that this could be interesting to anyone.It's a cult and she is their high priestess.
In watching the latter part of her vlog today, she has the WORST diet. And she almost sneers when she says vegan sandwich.
Another thing that's struck me is how boring her videos truly are. Seriously, it's the same old, same old on nearly every video. Eating chips or fries, drinking tea, walking down a hospital corridor, opening up a new shopping haul, or being cozy on her bed or sofa.
I seriously doubt she'll provide any real details on her scans and biopsy. But she'll talk endlessly about how delicious Matt's scrambled eggs are!
I forgot to add: Repeating "We got this" and shilling her merchandise, over and over.It's a cult and she is their high priestess.
In watching the latter part of her vlog today, she has the WORST diet. And she almost sneers when she says vegan sandwich.
Another thing that's struck me is how boring her videos truly are. Seriously, it's the same old, same old on nearly every video. Eating chips or fries, drinking tea, walking down a hospital corridor, opening up a new shopping haul, or being cozy on her bed or sofa.
I seriously doubt she'll provide any real details on her scans and biopsy. But she'll talk endlessly about how delicious Matt's scrambled eggs are!
Did she not have her port removed? It’s not visible and I think there may have been vague mention. My daughters was only removed once ALL treatment completed and I remover thinking “ why is she taking the port out” it’s a procedure to replace it.And port-a-caths still need to be flushed every so often. I can't remember exactly but it was either every 3 months or every 6 months for me and I hung onto my port for 2 years after chemo was completed because there was a good chance of my breast cancer repaying me a visit. Basically the chemo nurse injects a syringe of heparin into the port. Then within seconds you get a yucky metallic taste in your throat. At least I did LOL. Tiff would surely be annoyed at having to go back to the hospital for her port flushes.
Hey ... maybe her medical team is onto us and that's why the unexpected scheduling of her repeat biopsies happened.
She had her PICC line removed only.Did she not have her port removed? It’s not visible and I think there may have been vague mention. My daughters was only removed once ALL treatment completed and I remover thinking “ why is she taking the port out” it’s a procedure to replace it.
She had her PICC line removed from her right arm. She still has the port in her left arm - I could see it in a video last week. I don’t know why the port is in her arm instead of her chest.Did she not have her port removed? It’s not visible and I think there may have been vague mention. My daughters was only removed once ALL treatment completed and I remover thinking “ why is she taking the port out” it’s a procedure to replace it.
I’m so confused. The PET scan is all that is needed to see if cancer “ lights up” or shows Mets.it would also show the tumor size/ location . Why have a CT scan or MRI which would essentially show same information? She’s having the full Monty PET,CT,MRI,biopsy under anesthesia the NHS is a richly resourced medical service. InShe just posted a short on YT. Filmed as she waited in the hospital to get her Pet Scan. So it seems the first scan has been done. Next is CT Scan, then MRI, then biopsy. She doesn't say when this actually happened. My guess is it all (the scans and biopsy) happened last week. That could explain her Insta post yesterday where she looked so ill. Oh, she was watching Miracle on 34thStreet on a tv set up in her room as she waited..
Her Insta from yesterday is gone now.
I wondered myself why the port was in her upper arm as opposed to her chest.She had her PICC line removed from her right arm. She still has the port in her left arm - I could see it in a video last week. I don’t know why the port is in her arm instead of her chest.
All of these tests are standard for evaluation of suitability for a pelvic exenteration. Since it has been over 6 weeks since she had them previously they need to be redone as cancer may have grown or mestastisized.I’m so confused. The PET scan is all that is needed to see if cancer “ lights up” or shows Mets.it would also show the tumor size/ location . Why have a CT scan or MRI which would essentially show same information? She’s having the full Monty PET,CT,MRI,biopsy under anesthesia the NHS is a richly resourced medical service. InWe try to reduce the exposure to radiation and unnecessary tests. So weird. But every thing about her channel is off, this is why I’m here.
I’m so confused. The PET scan is all that is needed to see if cancer “ lights up” or shows Mets.it would also show the tumor size/ location . Why have a CT scan or MRI which would essentially show same information? She’s having the full Monty PET,CT,MRI,biopsy under anesthesia the NHS is a richly resourced medical service. InWe try to reduce the exposure to radiation and unnecessary tests. So weird. But every thing about her channel is off, this is why I’m here.
Thanks, I was confused when she said “ I’ve had so many PET scans, so many”. It’s not usual practice here, the radioactive dye isn’t great for kidneys. One scan to determine staging, one after chemo. Maybe another in yr time for cancers that respond. I feel for her and all these procedures.All of these tests are standard for evaluation of suitability for a pelvic exenteration. Since it has been over 6 weeks since she had them previously they need to be redone as cancer may have grown or mestastisized.
The MRI would be a pelvic MRI that would only concentrate on whatever is going on with the initial rectal tumor that may or may not still be there. If tumor is present the MRI can show if surrounding tissue/structures such as the vagina and bladder are invaded by the tumor by "direct extension". It also looks for enlarged perirectal nodes. The distant mets would be evaluated by the CT and the PET. I think most hospitals now perform "PET/CTs" that somehow combine these two types of imaging. Unlike Jessica Krock I doubt Tiff will ever share what is actually stated in the reports.I’m so confused. The PET scan is all that is needed to see if cancer “ lights up” or shows Mets.it would also show the tumor size/ location . Why have a CT scan or MRI which would essentially show same information? She’s having the full Monty PET,CT,MRI,biopsy under anesthesia the NHS is a richly resourced medical service. InWe try to reduce the exposure to radiation and unnecessary tests. So weird. But every thing about her channel is off, this is why I’m here.
Agree … it is known and has a reputation as one of the best in the world …She wouldn't be in unnecessary care wrt to those exposures. She is under the best care at the Royal Marsden
Yes, I remember RM from another blogger I followed Emily Hayward who tragically passed away. I found her when my daughter was diagnosed. This is why tiffany makes me want to drink popped up. It’s really tragic to watch this young woman and as a MH professional, she is NOT well, as many have commented. I hope she sees the counselor but I suspect she will not.Agree … it is known and has a reputation as one of the best in the world …
However, I won’t speak to the reputation of the patient. My potty mouth would be on display!
Here's the Queen of Anecdotes piping in again LOL: my surgeon put my port in an unusual spot in my chest, closer to my armpit and shoulder area. She told me she had to do that because I was so thin she was afraid she was going to puncture my lung. Yes I was thin when my cancer was DX but not as thin as Tiffany. I'm wondering if that was the reason the port could not be put into her chest. IMHO I'd much rather have it in my chest than my arm.I wondered myself why the port was in her upper arm as opposed to her chest.
I thought perhaps it was placed there to allow maximum chest access post op if ventilated and for central lines / monitoring.
I also thought maybe this was common or best practice in the UK.
Here is Australia we don’t see that access location used commonly as best practice. It is usually chest but the surgery may have been a factor perhaps?
I know, it's crazy. When I get tests for anything, the results are uploaded to the online portals before I even have the follow up appts. I have wondered if the UK just didn't do that.Also it's crazy how the Krocks were able to see Jessica's scan results immediately after they were taken (they were electronically updated just hours after they finished) but Tiffany takes several days- sometimes even longer- to tell us what the hell is going on.
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