She was told by his cardiologist at GOSH to under no certain terms do it. The feeding school also advised that he wasn't stable enough to actually attend the physical school which was her first plan but they'd do an online plan but they also didn't recommend it but naturally they pushed for it cause they wanted the ££££. Kaytee didn't listen to any of the advice she was told she just went ahead and did it and documented it for us all to see, you could see J deteriorating by the second.It’s been a few hours and I still can’t comprehend the feeding school. My FIL had a PEG following cancer treatment, and despite making a great recovery, he still uses his PEG as he was scared of eating orally. I can’t even begin to imagine refusing to use the PEG to keep him going. It’s just cruel? Did anyone question this?
I can't find the other threads to read.. does anyone have a link?
I've followed TNM since one of her posts came on my feed once and it was of jaxon violently vomiting. I remember thinking poor boy and his mother having to deal with this daily.
But after reading this thread, it seems all is what was shown is not all what it seems.
Very sad to hear.
She got a very expensive blender from a charity so that she would blend him some good food up BUT then she couldn’t be arsed so put him back on nhs milk and used the blender to make smoothie recipes and share them with her insta famShe was told by his cardiologist at GOSH to under no certain terms do it. The feeding school also advised that he wasn't stable enough to actually attend the physical school which was her first plan but they'd do an online plan but they also didn't recommend it but naturally they pushed for it cause they wanted the ££££. Kaytee didn't listen to any of the advice she was told she just went ahead and did it and documented it for us all to see, you could see J deteriorating by the second.
Also, she wasn't actually really trying him with anything that had substantial nutritional value. As previous posters have said it was chocolate cakes and frazzles. For a time he was on a blended diet thru his PEG which you could actually see him tolerate and he was gaining some weight & making process but all K could do was complain how it was so time consuming prepping the blended meals, cooking the blended meals & flushing with pepper mint tea. Again, this treatment plan that was somewhat working for J was too much of an inconvenience for her, that's when she began looking into the feeding school.
Can that be used against her in the review? Not against her but you know what I mean, used as evidence. (A whole day of speaking my other two languages at work and I can no longer think in English ffsShe constantly bad mouthed the Nottingham specialists because they didn't tel her what she wanted to hear.
I shouldn't laugh but at this point I think I'd be sobbing for that poor but if I didn't.Can you imagine wearing one of those 398 t shirts and someone going ‘Hey, what’s your t shirt all about?’, and you saying ‘Oh it’s the exact age a boy I never met was when he died’.
They would look at you, rightly, like you were insane.
I want to cry. I really do.She was told by his cardiologist at GOSH to under no certain terms do it. The feeding school also advised that he wasn't stable enough to actually attend the physical school which was her first plan but they'd do an online plan but they also didn't recommend it but naturally they pushed for it cause they wanted the ££££. Kaytee didn't listen to any of the advice she was told she just went ahead and did it and documented it for us all to see, you could see J deteriorating by the second.
Also, she wasn't actually really trying him with anything that had substantial nutritional value. As previous posters have said it was chocolate cakes and frazzles. For a time he was on a blended diet thru his PEG which you could actually see him tolerate and he was gaining some weight & making process but all K could do was complain how it was so time consuming prepping the blended meals, cooking the blended meals & flushing with pepper mint tea. Again, this treatment plan that was somewhat working for J was too much of an inconvenience for her, that's when she began looking into the feeding school.
The blender and cooking equipment that costs a bomb that she went to a charity for just a couple of weeks AFTER having 2 GoFundMe's and 1 Justgiving set up for her. Couldn't use it for J but could make smoothies for herself in it. This is the same blender you see other SEN families fundraising for.She got a very expensive blender from a charity so that she would blend him some good food up BUT then she couldn’t be arsed so put him back on nhs milk and used the blender to make smoothie recipes and share them with her insta fam
I wasn’t even trying to be funny, it’s just grim isn’t it.I shouldn't laugh but at this point I think I'd be sobbing for that poor but if I didn't.
I was trying to explain all of this to my partner who doesn't really do social media at all. Explaining it from the start and to an outsider of sorts just makes it all seem and feel 100 times worse
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