TiffanyThinks #5

[Saydee]

Her tantrum about not seeing the main surgeon is unreal .I don't understand why she feels she has a right to a dedicated surgeon, especially under the NHS.

My Dad was under the care of the Royal Marsden for 17 months and the senior surgeon didn't perform EUA (examination under anaestethic) or biopsies.
He did the big boy surgeries such as bowel resections, removal of tumours, removal of cancerous tissues etc.

In that 17 months my Dad didn't always see the same oncologist/surgeon for outpatient appointments either. You're not going to see the same doctors/nurses/surgeons for every appointment or surgery or hospital admission. They work as a team.

I don't know what sort of bubble she's living in. She seems to have chosen self destruction by shitting all over the reputation of a renowned cancer hospital all because the nice looking Asian surgeon that she likes to cuddle didn't perform the investigative surgery.

I imagine after that outburst and pulling the main surgeon out of his clinic to see her, that they all have a very low opinion of her now and see her as one of those demanding 'difficult customer' types.
The self sabotage is off the scale.

'Shitting all over the reputation of a renowned cancer hospital' < I couldn't have put it any better myself.

I know from my husbands appointments just how busy medical oncology clinics get. Sometimes we are waiting for 2 - 3 hours because the clinic is so busy.
Imagine running a clinic, dealing with patient cases, discussing surgeries etc, and getting a message "Tiffany is on ward such and such and sheis crying and wants to see you immediately". I shall rename Tiffany 'Queenie' from now on.
Queenie is up on the ward with the curtains around her bed because she is vlogging to her online family, crying and wailing because she doesn't have a clue whats going on. Despite the fact that doctor such and such has just attended her bed side and explained what happened during the procedure and what happens next.

 

[LeonorG]

I agree 100%. Tiffany was waiting for surgery. When the surgeon explained what it actually entails? Mind change! Its a life changing surgery. If Tiffany cant cope with post biopsy bleeding? The surgeon will be massively concerned about how surgery will effect her. Her bleeding prompted a trip to the hospital, and admission, costs to the NHS. Nothing could be done because its to be expected after a biopsy.

Maybe a more fitting one in Tiffanys case.
The last one I posted was for prostate cancer. It did give a basic understanding of active surveillance and watch and wait.

Is watch-and-wait after chemoradiotherapy safe

Professor Renehan joins a team of authors

www.christie.nhs.uk

That makes no sense to me. He explained the surgery specifics to her long before that meeting. She knew months and months before that about exactly what the surgery entails. I think she just grew hopeful after the 'surprising' results and got it into her head that she is cancer free and that she can avoid surgery altogether. Even Matt said that 'the best thing would be if she did not need surgery at all' - they genuinely started to believe that that could happen.

 

[Saydee]

and …
The specialist staff at the major referral centres do not withhold information for the mental / psychological state of the patient. They may take the softly softly approach but the pertinent and necessary facts as per the file are given.
Even special needs / geriatric/ dementia patients have their NOK told bare facts if the patient is unable to understand.
The RM is at the cutting edge of research and treatment… Tiffany would know everything in black and white. How she chooses to go forward, deal with or ignore the facts is of her choosing.

Thats correct. My husband was 28 when his disease was deemed palliative only. They didn't tell him bluntly and did take the softly softly approach which went something like "Unfortunately the latest scan shows disease is advancing. Not today, but at some point in the very near future, I will be sitting here and having to tell you that there is no treatment left to try slow disease down. Hopefully with treatment we may be able to slow growth and buy you and your family some time, but this is palliative treatment only"
When my husband signs consenst for treatment, it always says "Palliative treatment, reason - to treat cancer symptoms"

 

[Idrisrex]

'Shitting all over the reputation of a renowned cancer hospital' < I couldn't have put it any better myself.

I know from my husbands appointments just how busy medical oncology clinics get. Sometimes we are waiting for 2 - 3 hours because the clinic is so busy.
Imagine running a clinic, dealing with patient cases, discussing surgeries etc, and getting a message "Tiffany is on ward such and such and sheis crying and wants to see you immediately". I shall rename Tiffany 'Queenie' from now on.
Queenie is up on the ward with the curtains around her bed because she is vlogging to her online family, crying and wailing because she doesn't have a clue whats going on. Despite the fact that doctor such and such has just attended her bed side and explained what happened during the procedure and what happens next.

My fellow forum queen; I bow for you in utter admiration. You have perfectly described our little miss stomping feet and also utter brat in all her despicable glory. It is really off putting if you have to handle well such a “uhum” patient for an over qualified physician.

 

[AlwaysScience]

That makes no sense to me. He explained the surgery specifics to her long before that meeting. She knew months and months before that about exactly what the surgery entails. I think she just grew hopeful after the 'surprising' results and got it into her head that she is cancer free and that she can avoid surgery altogether. Even Matt said that 'the best thing would be if she did not need surgery at all' - they genuinely started to believe that that could happen.

In the video about the letter from the doctor, she said that she was told about the surgery in May. There have been comments here about TiffanyThinks being NED. I don’t think she is because if she was told that I think she would have told all her followers and celebrated it, though it isn’t as good as “cancer free.”

 

[Saydee]

For anyone who doesn't live in the UK or for anyone that believes the Royal Marsden aren't amazing in what they do, there is a solution. Look up Emily Haywoods videos and Pee Wee Toms. Both cancer patients that was treated at the Royal Marsden. In any of their videos did either of them look confused and unsure? No. Both gave regular updates and both was very straight to the point. Pee Wee Tom often recorded his consults with Prof Gore. The consultants are very proffesional, and always deliver factual updates (even when it was bad news).

 

[LeonorG]

Lets remind ourselves of her possible surgical outcomes first. Removal of rectum, anus, some colon, vagina, poss clitoris, ovaries, cervix, uterus, bladder, some peritoneum, fallopian tubes, urethra. Partial or full. Now, look at TT and Darling. Are they the thpe of people that would be able to cope or fight through all of the possible consequences from this type of life altering last ditch surgery??? Ummm NO. They heard the total picture of what it may or would entail and you saw it in their eyes in the video. Darling looked like he just saw a ghost or worse. Things changed drastically after that fateful video and Dr meeting. The doc had to offer something else so he may have offered to wait and watch. No one can force any procedure on anyone. Not even a life saving one. Its very sad but sometimes there are no real viable options bc diagnosis was delayed for whatever the reasons or its just horrible bad luck.

They were told about the surgery way before that. She even told us after that old meeting that 'I'm not ready to talk about that' and then to Matt: 'But my whole life would change' and 'I would stay in the hospital a long time. I don't want that'. There is no way they would not know exactly what the surgery involved. They must have googled total pelvic exenteration. At least Matt did and he probably explained it to Tiffany. But anyway they did not have to google it. The surgeon explained it to them.

 

[Idrisrex]

In the video about the letter from the doctor, she said that she was told about the surgery in May. There have been comments here about TiffanyThinks being NED. I don’t think she is because if she was told that I think she would have told all her followers and celebrated it, though it isn’t as good as “cancer free.”

No, no, not that mucin and no cancer activity in the site crap anymore. After 8 weeks of no treatment what so ever and her state of health now nobody can say that she is NED. Look at the deplorable state she is in. It is no just because of the addiction to morphine.

 

[JellyBellyBeanie]

'Shitting all over the reputation of a renowned cancer hospital' < I couldn't have put it any better myself.

I know from my husbands appointments just how busy medical oncology clinics get. Sometimes we are waiting for 2 - 3 hours because the clinic is so busy.
Imagine running a clinic, dealing with patient cases, discussing surgeries etc, and getting a message "Tiffany is on ward such and such and sheis crying and wants to see you immediately". I shall rename Tiffany 'Queenie' from now on.
Queenie is up on the ward with the curtains around her bed because she is vlogging to her online family, crying and wailing because she doesn't have a clue whats going on. Despite the fact that doctor such and such has just attended her bed side and explained what happened during the procedure and what happens next.

imagine being one of the other patients and hearing her carrying on like that with all the dramatics. She also had zero consideration for the other patients at 2am when she was blogging and talking to the nurse and asking what the name of her anti sickness meds are. There was absolutely no need. Every time I’m in hospital I whisper or don’t talk at all just let the nurse do their thing and silently mouth thank you when they are done.

 

[RamonaRemembers]

She's responding in the comments of her last video a lot today. I don't know how to screenshot or I would post here. In the last hour under new comments she has responded several times. She said her team (surgeon, oncologist, CNS) are meeting to review tests, come up with a plan and let her know on Friday.

 

[MissB123]

TT is well informed. She did a quick Instagram story months ago about watching a documentary on BBC or Channel 4 (sorry I’m in the U.S.) about surgeons at the Royal Marsden AND the surgery that was recommended to her.
Since it was a story, it disappeared.

 

[Saydee]

This is the look my 6 year pulls when he is confused about what I am saying. Tiffany is 30?

 

[Idrisrex]

TT is well informed. She did a quick Instagram story months ago about watching a documentary on BBC or Channel 4 (sorry I’m in the U.S.) about surgeons at the Royal Marsden AND the surgery that was recommended to her.
Since it was a story, it disappeared.

This must be the one:

https://www.channel4.com/programmes/super-surgeons-a-chance-at-life

This is the look my 6 year pulls when he is confused about what I am saying. Tiffany is 30?

According to her passport .

 

[LeonorG]

I don't think they remove everything automatically. Doctors usually take individualized approach. I think in her case bladder, ureters, urethra, external genitalia -vulva would remain intact. It depends if the cancer has reached these organs. What I deducated from her videos that her cancer has reached posterior vaginal wall and uterus. Yes, she would have stoma. Cannot bear children but luckly she freezed her eggs.

At some point she mentioned bladder as one of the organs to be removed. And she said 'total pelvic removal'.

 

[AlwaysScience]

Great person to follow on Twitter

 

[Ferngullible]

Hi everyone,
I've been following Ts story since the summer after I saw her and her mum filming at the Marsden when I was there for an appointment myself. I clocked the t shirts and guessed it was for a YouTube video so did some searching when I got home.
The video she was recording was published on her channel exactly a week after I saw her filming (I know that as I spotted myself in her video!)
What has angered me in recent months is the insinuating of bad practice against the hospital. I have had incredible care from every single person during my treatment, at both the Sutton and Chelsea sites. I have never left an appointment confused or without full knowledge of my current situation and I can't understand how Ts treatment 'seems' to be so very different.
The Marsdens success rate in treatment is significantly above that of other cancer centres in the country and it makes me mad that she is giving the impression to thousands online that they are incompetent at best and downright negligible at worst.
By the way, expect a moan at her next Sutton Marsden visit as when I went there today they have finally introduced the parking charges that they were going to implement back in August but didn't.
I dont begrudge the charges, they are not excessive and a small price to pay for first class care, plus there are 2 buses that go into the hospital grounds and a train station not far so other options available, In fact I got the bus to my chemo appointments each week!

 

[RamonaRemembers]

I don't think she would be able to survive the surgery mentally and physically. Does anyone else agree?

 

[ladyt7087]

Wow. Some tough observations ftom people on her channel who are in healthcare. Mention of cachexia, end stage, etc, etc. I, too, have wondered about this. They said theyve seen this before and she is showing the signs.

 

[Idrisrex]

Wow. Some tough observations ftom people on her channel who are in healthcare. Mention of cachexia, end stage, etc, etc. I, too, have wondered about this. They said theyve seen this before and she is showing the signs.

Cachexia is not correct for T., because she still weighs a solid 47 kg. A real underweight patient was my mother at 34 kg (1.62 metres) at the end stage of Alzheimer close before her death.

 

[AlwaysScience]

I don't think she would be able to survive the surgery mentally and physically. Does anyone else agree?

No. I think if she is presented with the choice between this surgery and a possible cure, or palliative care then hospice care then death, she will choose surgery. But the truth is that none of us can predict what others will do when faced with life or death decisions. Some patients change their minds over time about what they are willing to do for a chance to live, or a chance to live longer. Let’s respect that.