She’ll probably be slagging the friend off in her stories soon.
Thenursemum
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I'm new here, seen this thread being shared on Ig stories by other tubie sen parents. She said her friend is training and becoming ofsted registered. The government will help with child care costs only if the person is ofsted registered. He has a ehc plan, care can also be provided through that additionally, she brielfy mentioned continuing care said the support may be able to continue through that but she did not elaborate. There's 2 things on a ehc plan you can do on top of claiming childcare costs normally, apply for direct payments and a personal budget which can be used for different things, including care/support/personal assistants/additional private therapy.
My daughter is tube fed with complex needs, Ehc plans (education and healthcare plans) are for health too, you should have a social care assessment as part of it who assess what support you need and this gets added to a section in the ehc plan. Before she started school I got 30 hours free childcare paid for from age 3 to 4, I used a ofsted reg/approved Sen carer. She now gets additional funding paid to me through her ehc plan and I use that to hire a PA/carer for around the school hours.
Kaytee has the money raised to pay for care but there would be no need for her friend to be ofsted reg if she was going to use friends or family to do care privately. She might not have enough of that money left to pay for private care. Shes wearing Valentino trainers flannels sell for £710, the down payment on the merc, the hot tub (that immuno at GOSH told us never to put our daughter in, she's 6, tube fed & high risk of infection from the different bacteria found in hot tubs & cant regulate her body temp being underweight), holidays, engagement party, 5* hotel stays plus whatever else she has blown cash on as we only see what influencers want us to see. Her son will still receive the benefits he is entitled to even if she is working and I think J**** is still paying his way. She said she is earning less money now she works so that doesn't make sense if she is paying 700 smackers for trainers when most of us carers shop in primark.
She was getting 60 hours a week of carers and 15 hours of nursery. She will share the camera monitor stats to make people think he is awake constantly. We have the same monitor, her stats are fantastic compared to ours. Dont look at the bit where it flags up each movement detected, its sensitive and will flag up slight movements when my daughter is asleep, for instance her arms/legs moving, duvet/blanket movements. At the top it will say how many hours of actual sleep there has been. Kaytee cuts this bit off but occasionally you see a glimpse of it, the last time she shared a few days of stats, there was a couple of days where she didnt cut the top off in time and it showed he was having between 10 and 11 hours of physical sleep a night. On ours, if we get 5 hours of physically being asleep we see that as a miracle.
Alot of his needs are just delayed. He has been able to move around shuffling, hes starting to take steps, he can hold his weight for short periods, starting to talk, hes very aware and can communicate in his own way. She has showed him using her phone to make calls & he knows certain things like car and home. It upsets alot of us SEN parents when she says he cant communicate and has no mobility, some of us would move mountains for our children to be at his level. His progress is really showing over the past year, I would be celebrating if it was my daughter. Continuing Care are right to cut carers hours, it should have been cut months ago. Carers hours are not there so the parent can go out on the piss, there is a certain amount of funding and carers, if they give to one just because their mum is a influencer and can cause a media storm, it stops another child/family who actually needs it from having it.
The feeding school programme she used I have looked into, it is £108 for the assessment and
£4,223 for the programme. It's a standard fee per child, not a individual quote. I followed advice from GOSH who strictly advised against.
My daughter is tube fed with complex needs, Ehc plans (education and healthcare plans) are for health too, you should have a social care assessment as part of it who assess what support you need and this gets added to a section in the ehc plan. Before she started school I got 30 hours free childcare paid for from age 3 to 4, I used a ofsted reg/approved Sen carer. She now gets additional funding paid to me through her ehc plan and I use that to hire a PA/carer for around the school hours.
Kaytee has the money raised to pay for care but there would be no need for her friend to be ofsted reg if she was going to use friends or family to do care privately. She might not have enough of that money left to pay for private care. Shes wearing Valentino trainers flannels sell for £710, the down payment on the merc, the hot tub (that immuno at GOSH told us never to put our daughter in, she's 6, tube fed & high risk of infection from the different bacteria found in hot tubs & cant regulate her body temp being underweight), holidays, engagement party, 5* hotel stays plus whatever else she has blown cash on as we only see what influencers want us to see. Her son will still receive the benefits he is entitled to even if she is working and I think J**** is still paying his way. She said she is earning less money now she works so that doesn't make sense if she is paying 700 smackers for trainers when most of us carers shop in primark.
She was getting 60 hours a week of carers and 15 hours of nursery. She will share the camera monitor stats to make people think he is awake constantly. We have the same monitor, her stats are fantastic compared to ours. Dont look at the bit where it flags up each movement detected, its sensitive and will flag up slight movements when my daughter is asleep, for instance her arms/legs moving, duvet/blanket movements. At the top it will say how many hours of actual sleep there has been. Kaytee cuts this bit off but occasionally you see a glimpse of it, the last time she shared a few days of stats, there was a couple of days where she didnt cut the top off in time and it showed he was having between 10 and 11 hours of physical sleep a night. On ours, if we get 5 hours of physically being asleep we see that as a miracle.
Alot of his needs are just delayed. He has been able to move around shuffling, hes starting to take steps, he can hold his weight for short periods, starting to talk, hes very aware and can communicate in his own way. She has showed him using her phone to make calls & he knows certain things like car and home. It upsets alot of us SEN parents when she says he cant communicate and has no mobility, some of us would move mountains for our children to be at his level. His progress is really showing over the past year, I would be celebrating if it was my daughter. Continuing Care are right to cut carers hours, it should have been cut months ago. Carers hours are not there so the parent can go out on the piss, there is a certain amount of funding and carers, if they give to one just because their mum is a influencer and can cause a media storm, it stops another child/family who actually needs it from having it.
The feeding school programme she used I have looked into, it is £108 for the assessment and
£4,223 for the programme. It's a standard fee per child, not a individual quote. I followed advice from GOSH who strictly advised against.
There is nothing more disheartening when she plays down how clever he actually is. Why does she always look for the negative instead of celebrate them positive. He can clearly make his needs known- (if she says otherwise she needs to pay more attention to him!), he can sign some Makaton signs, use technology to call who he wants and understands how this works, bum shuffles around to areas he wants, can ‘say’ some words e.g the flash cards.
I don’t get why she wants him to he more disabled than he is. Yes he is disabled, yes he clearly has additional care needs compared to other children his age, BUT he can also do far more than she ever gives credit for. Heartbreaking.
I don’t get why she wants him to he more disabled than he is. Yes he is disabled, yes he clearly has additional care needs compared to other children his age, BUT he can also do far more than she ever gives credit for. Heartbreaking.
£700 on shoes. But she just a dedicated nurse and SEN mum. It’s all about the dollar with her.
Thank you for this. It’s a real eye opener and just goes to show Kaytee’s true colours further. She really is materialistic.
I do wonder if she has seen or noticed that many have seen her for what she really is and ought to address it like an adult. I’m still gobsmacked at £700 odd on trainers!
What do other SEN parents make of this?
It truly is heartbreaking. He is coming along so well, yet she focuses on all the negatives.
This is what alot of sen/aen parents are finding hard. He clearly is more capable than she makes out yet most of us would be shouting from rooftops if our children were doing aswell. We wouldn't be exaggerating their needs to get attention/sympathy/donations/carers hours so we can socialise/date.
She has previously mentioned writing a book, she sees herself as the voice for the SEN community but when you first become a SEN parent it's a whole new world. She has previously said that all SEN families have fundraisers. No we dont, the minority do fundraisers for urgent things that are not funded. We all know chairs are funded. We share each others things, Kaytee didn't even share her friends fundraiser but shared a homeless persons fundraiser that was already going viral and getting attention.
We visit GOSH every 3 weeks, we stay in budget accommodation, I dont know any SEN family who can afford the hotels she stays in, including those who are working full time and on a higher income than she claims to be on.
Some things are performative and it feels like she doesnt want people seeing the families that do really need help. She also mentioned some SEN parents have live in nannys. This was a dig at 1 parent who does not live in the UK, you wont find average SEN families here with live in nannys, other countries do things differently but again it makes people think we have it easy and she is struggling.
People all discuss the dubai holiday and assume this is why the SEN community have turned on her. We all know what happened with the dubai holiday & part of it does play a part but there is more to it than that. In truth she distanced herself from others first and avoided replying to friends asking her to help, even those who helped her.
She has also used her platform to cyber bully a parent, which most will not have noticed unless they know about what has really gone on. None of us in the SEN community will talk about this out of respect for the parent, not Kaytee.
I will never understand why people blow cash on designer goods when you don’t have the money. When you are young free of responsibilities sure if it’s not going to get you into debt just to have a expensive bag. And I love fashion!
I’m pretty sure it was kisscub who she slated over her stories and sent her followers to bombard her. Kisscub then had to put her account on private.
On paper SEN parents who have at least 1 parent working full time on a high salary look like they can afford more, but they can’t and because of their income they are often denied any more financial help.
I don’t think I‘ve ever seen anyone from the SEN community stay in plush hotels as much as Kaytee does. It’s wild that she even tries to justify it.
She what?? I must have missed this. I’m a big fan of kisscub and gutted she had felt the need to disappear from Instagram. What did Kaytee say about her?
Gotta do it for the gram! She mentioned that her ex purchased most of her designer bags, surely you would’ve binned them or given them to charity after they broke up. Why would you keep items that remind you of an abusive ex as she claims.
Its also very telling that she never mentioned having an ex until she was outed. He was trained in how to do tube feeds so was obviously helping a lot more that she stated. They even had an engagement party which she didn’t reveal until they broke up.
This was a few months ago I think, she went on stories ranting about how another SEN parent was treating her, which is so bloody hypocritical. Lots of people started to DM kisscub and she shared one of them with another SEN parent I follow who showed me. Kaytee is vile and plain nasty
She will be glued to this thread herself. Everyone talks about tattle when she has been mentioned on here, people are sharing this thread this weekend. Wouldn't be surprised if she has commented herself so that she can then do stories about people picking on her, to gain more sympathy with those who believe her when she talks about trolls
Theres a mixed response with SEN parents, some sympathise with her but those often dont realise the full background and may not be in the certain friendship groups to hear the full picture/details. Some tolerate her in the hope she will share their fundraisers. Some have blocked her. Some have no idea that shes causing concern, some dont even know tattle exists.
There's concern from some SEN parents who are worried that the image she is giving across applys to all SEN families and that people wont realise how bad things are for the majority of us as people will be thinking we all waste £700 on trainers and stay at the Shard when we visit GOSH.
She has two kinds of fans. Able bodied parents with able bodied children who want to look like they support all causes. She looks good on their follow list.(this includes celebrities. Giovanna Fletcher. Motherpukka).
Then she has a small number of fellow SEN parents who are trying to find a path, they are scared, lost and need a friend. They don’t want to oppose her because they have no where else to turn. And if your against her then you must be against single mums, disability, BLM, politics, the government, slagging off the NHS etc.
Then she has a small number of fellow SEN parents who are trying to find a path, they are scared, lost and need a friend. They don’t want to oppose her because they have no where else to turn. And if your against her then you must be against single mums, disability, BLM, politics, the government, slagging off the NHS etc.
I'm on about something else, not the kisscub situation although that has happened too. She also did similar to the Dubai holiday mum who was trolled and had lots of follower requests off Kaytee's followers including her blue tick new pals.
We wont talk about the particular incident I'm on about, in order to give that family privacy.
Kaytee briefly mentioned something once and implied she could easily blab this information out to tens of thousands of people. This information was very sensitive and personal to the family involved and caused stress that impacted on them in a devastating way.
People talk about the SEN community but dont realise there are multiple friendship groups so one friendship group might not realise others have had things happen to them too by her.
I would like to think most are not so closed minded that they base opinions and thoughts of SEN children and parents on Kaytee. She really is not an advocate for SEN families at all.
My sister is a SEN mum. My nephew has CDLS, I know how hard it is and she never has any spare money, let alone enough to buy £700 trainers
We clubbed together as a family to buy his bed. Also, working for the NHS I’ve not been to see them since March for fear of anything I could carry and pass on. I was shocked she started her job in the midst of the pandemic.as a SEN parent I can confirm nothing she does or says represents me in anyway.
£700 for trainers? I could only dream of having that amount of money “spare” (and if I did it would be able to fund 10 weeks of private therapies for my child)
she raised around 80k plus in total? That money would be life changing to most SEN parents!!!
But all she does is continuously moan! Nothing is ever good enough.
The fact that some of her followers will now think all of us parents in the sen(d) community have this lifestyle makes me feel physically sick.
£700 for trainers? I could only dream of having that amount of money “spare” (and if I did it would be able to fund 10 weeks of private therapies for my child)
she raised around 80k plus in total? That money would be life changing to most SEN parents!!!
But all she does is continuously moan! Nothing is ever good enough.
The fact that some of her followers will now think all of us parents in the sen(d) community have this lifestyle makes me feel physically sick.
I contributed to the chair for jaxon after an epic meltdown/ crying session/ vomit videos from kaytee. I felt so upset for him. Her 3 funds quickly jumped to 80k pls. I also contributed to a fundraiser for kisskub to buy a trike for amy. This was done by sen mum without kisscub knowing, it took absolute months of begging and sharing for the fund to get to what was needed to buy the relatively inexpensive trike. There's a massive disparity in what people contribute to and I just don't get it. I think the impression gives is that she doesn't want to use any of the fund monies on carers, when it was actually raised to pay for carers.
What happened to the Dubai sen mum? She had an awesome account, very real and honest and then just disappeared.
What happened to the Dubai sen mum? She had an awesome account, very real and honest and then just disappeared.
nailed it in one.
I’m a non SEN parent and she was shared everywhere when her son had the awful vomiting fits and she was about to lose care so it reached nationwide. She’s still on my Insta but I’ve come of the opinion that I can’t bloody stand her! I watch to see his progress and he appears to be doing well, can sign, taking steps etc (not health wise I know this and I have very limited knowledge so I apologise in advance for my “ignorance”)
I would much rather give my hard earned money to families that NEED this money for equipment, god forbid (sarcasm) a break!Or anything than this moaner. She has it hard I know, but she’s portraying herself in a bad light.
Can totally see her doing this too!
It’s like when she keeps saying she’s the one telling the dieticians etc what he needs and she is the one advising them how to do their job!!
As a SEN parent I find how she makes her sons disabilities worse than what they are disgusting. There are a heck of a lot of people who have children who would score high on each category in the continuing health care assessment and seeing her try her hardest to justify why her son would score the same score as a child who has no mobility what so ever, who cannot communicate their needs etc it's a kick in the teeth. I know myself I would love to untick those boxes.
It's hard to watch someone who identifies as a voice for the SEN community bang on about how severe her sons mobility needs are, watching him crawl, shuffle around, stand, pull himself up, have the trunk control to sit and balance on her hip.... Whilst my own child cannot do any of those things.
Does she not care how that looks to some of the SEN parents who follow her?
I never see her baking, painting, taking him anywhere (precovid) all I see is her booking expensive hotels that no other SEN parent could ever afford. Seeing her raise a heck of a lot of money that she didn't even lift a finger for, however there are SEN parents who have to swallow their pride and ask for help, who do a challenge for that money and then also show what they've bought. What has she bought for her son out of that money? A hot tub. A hot tub for a child who has kidney problems. Who gets dehydrated.
Any other mum would be thanking everyone, showing what that fundraising money is for...
It was only the other day another SEN Mum gave her a walker for free?!?
Why not buy him one out of funds?
She tells people a fraction. She doesn't tell people her family set up. Her sons father, because that doesn't tie in with the "I'm a single mum all on my own" facade.
It's hard to watch someone who identifies as a voice for the SEN community bang on about how severe her sons mobility needs are, watching him crawl, shuffle around, stand, pull himself up, have the trunk control to sit and balance on her hip.... Whilst my own child cannot do any of those things.
Does she not care how that looks to some of the SEN parents who follow her?
I never see her baking, painting, taking him anywhere (precovid) all I see is her booking expensive hotels that no other SEN parent could ever afford. Seeing her raise a heck of a lot of money that she didn't even lift a finger for, however there are SEN parents who have to swallow their pride and ask for help, who do a challenge for that money and then also show what they've bought. What has she bought for her son out of that money? A hot tub. A hot tub for a child who has kidney problems. Who gets dehydrated.
Any other mum would be thanking everyone, showing what that fundraising money is for...
It was only the other day another SEN Mum gave her a walker for free?!?
Why not buy him one out of funds?
She tells people a fraction. She doesn't tell people her family set up. Her sons father, because that doesn't tie in with the "I'm a single mum all on my own" facade.
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