Is it normal or even safe to have this manh surgeries in a week?
I was thinking that, so many anaesthetics for a baby. But they're obv life savingIs it normal or even safe to have this manh surgeries in a week?
CSF leak can also dangerous if not treated, I think people with it need a blood patch surgery, a main symptom of a leak is a migraine that doesn’t go at all. I followed a tiktoker who sadly passed away from this last year, she went down for the blood patch and the next update was that she had passed- tiktok is jehanethomas1 . Really sad she was a lovely mum to 2 young boys.Sorry to sound so stupid but what is CSF leak? X
I've just read it can effect the brain developmentsI was thinking that, so many anaesthetics for a baby. But they're obv life saving
I knew Jehane. Went to school with her, Was so sadCSF leak can also dangerous if not treated, I think people with it need a blood patch surgery, a main symptom of a leak is a migraine that doesn’t go at all. I followed a tiktoker who sadly passed away from this last year, she went down for the blood patch and the next update was that she had passed- tiktok is jehanethomas1 . Really sad she was a lovely mum to 2 young boys.
I'd imagine the CSF leak is their main concern at the minute rather than the sepsis. They can't control the sepsis if they can't find what's causing the leak and fix it and Im sure Aperts adds even more compexitiy to it too. Depending on where the leak is and how severe it is, it can have lasting adverse effects on the brain especially on a child, never mind if meningitis comes into play. We had a surgical and medical team explain all of these things to us in relation to our baby's upcoming op (which is nowhere near as major as what Oakleys was) so my heart does (for once) go out to Talia and Aaron, no matter how crappy they've been nobody deserves this and not to mention the suffering poor little Oakley is enduringCSF leak can also dangerous if not treated, I think people with it need a blood patch surgery, a main symptom of a leak is a migraine that doesn’t go at all. I followed a tiktoker who sadly passed away from this last year, she went down for the blood patch and the next update was that she had passed- tiktok is jehanethomas1 . Really sad she was a lovely mum to 2 young boys.
I just thought the exact same. I have been in a similar position (child in ICU and things were not looking good at all) and it’s absolutely awful feeling so useless. Maybe this has been a wake up call for her instead of her seeing Oakley and all his appointments etc as an inconvenience she will realise how truly lucky she is to have such a special little boy. I do hope that her and Aaron have put their differences aside and they are both supporting that precious boy.Got to say her current stories are the most honest I've ever believed her to be, it's almost like she's been humbled by the experience massively. It's the first time she's ever given an update without the me me me me stage.
All prayers and thoughts are with Oakley at this stage
she appreciates everyone's messages yesterday, he's got a drain in his head for the CSF leak + infection, still has sepsis + another infection too, will need another operation in 2 weeks, he's on iv anti biotics, and will be in hospital for a while, he's still intubated and in intensive care, its been horrendous but the whole team came in yesterday and the care has been amazing, she can't believe how much he's been through and its been the worst week of 'our' liveswhat did she say? im in work and cant listen with volume on