It is a shock having a child with additional needs and thr adjusting period. I found out during my pregnancy that something was wrong with my daughter so I had some time to adjust but, as these things often go, lots changed when she was born.
In one morning I was told I'd be going home, then that I'd be transferring to a hospital closer to home and then another doctor told me that I would be staying at least 6 months.
Being inpatient with a sick child is a roller coaster. (I'm not turning this into a rave thread) She and Aaron are allowed to feel sad and tit about it. You basically grieve for the child you thought you would have and the life you imagined with your family.
I bawled my eyes out when my daughter had her first anesthetic and surgery. I thought it'd be the last time I saw her. It was hard on me, my husband and our son who had to remain at home 2 hours away with my parents for a period of 6 months give or take.
I think it has to be accepted that it is hard for her as well as Oakley. She is allowed to feel that way as his mother and to her other children who are going to miss her being at home due to her many hospital stays.