Long time lurker, first time posting...
I am a mum go a child with complex needs and I am absolutely appalled by what I am seeing.
i wouldn't be surprised if Talia receives Continuing Care which is respite funded through health care. To qualify for CC you have to score high on various sections of Oakleys health care needs. The fact Oakley is being looked after every week by a nurse ...A community nurse wouldn't do that, he'd recieve imput with a community nurse who would help in terms of ordering stock, checking dressings etc... not provide respite. CC is a carer who is qualified in health care needs. Such a sectioning, administering meds, using a feeding machine, epilepsy trained, hoist trained etc.
CC will document everything. The nurse looking after him would have a log book of his Sat's, his general well being and what theyve done that day all wrote down with times. This is to monitor not just what the carer is doing but monitor oakleys wellbeing. If the carers are always the ones who are telling Talia to seek medical advice... this will be logged.
Talia will also have 'Direct Access' which is a pass that let's her bypass children's a&e and go straight to the children's ward. All she'd need to do is ring the ward, tell them what is worrying her ( or in her case worrying the carers
![Face with rolling eyes :rolling_eyes: 🙄](https://cdn.jsdelivr.net/gh/joypixels/emoji-assets@5.0/png/64/1f644.png)
) and he'd be told to come straight away. As someone who has this, we've never used the GP for when Sat's have dropped. GP has only ever been used a couple of times because complex children would only get referred to the hospital by the gp anyway so you wouldn't bother.
That woman is a disgrace. She is failing that poor boy time and time again by not responding quickly to his deteriorating health. The fact she's let her ill mother around her son whose just had major surgery is unthinkable.
I am disgusted in her constantly hiding him having a blanket over his pram when he's already struggling to breath. Refusing physio when that would be so beneficial not just for him reaching milestones with his neck, trunk, sitting etc but also ... chest physio! Which for Oakley is so important to help clear his chest.
Notice the radio silence of who the other kids are with. I wonder if now she's allowing aaron to have the boys.
All of those children deserve so much better than the
tit parents they have. Talia for me however is the front runner in the shittest parent. I get no sense of love, pride, affection from her when it comes to Oakley in particular. It's coming across resentful. She's unable to have the carefree life she once had. Nothing but a selfish
twit.