I agree I'm guilty of checking too. But they should just be doing text updates now surely. Its awful seeing him like that.poor Dillan, he’s such a sweet little lad. I’m surprised he’s still being actively treated (steroids/transfusions). I thought as he was on palliative care it was more about keeping him pain-free and allowing him to be comfortable in his home. It must be so awful for them, I almost wish they’d take if off social media, but I’m guilty of checking for updates to see how he is 🥲 I’m guessing it’s a double edge sword, if they don’t post they’ll be inundated with messages worrying about him and if they carry on then people will question their decisions.
I just hope he’s not in pain or distress.
I get they've shared his journey but they don't owe anyone anything. They should say, we are logging off now to enjoy the time we have. We will be back when we are ready. But they wouldn't get the last of the gfm donations if they did that would theypoor Dillan, he’s such a sweet little lad. I’m surprised he’s still being actively treated (steroids/transfusions). I thought as he was on palliative care it was more about keeping him pain-free and allowing him to be comfortable in his home. It must be so awful for them, I almost wish they’d take if off social media, but I’m guilty of checking for updates to see how he is 🥲 I’m guessing it’s a double edge sword, if they don’t post they’ll be inundated with messages worrying about him and if they carry on then people will question their decisions.
I just hope he’s not in pain or distress.
I did notice that Amy mentioned he needed them to make him more comfortable. It must the most hellish thing to navigateTbf transfusions can be given right to the end of life if it will help someone to be more comfortable. But I feel for Dilly having to go back into hospital which can’t be nice for him.
Yes text updates would be enough now. People care about Dillan but his privacy and dignity are paramount.I agree I'm guilty of checking too. But they should just be doing text updates now surely. Its awful seeing him like that.
To play devils advocate, maybe it's a way to highlight the realities of childhood cancer, that so many families face.
Poor Dilly.
It's so devastating. That poor boy stood there looking so unwell, so tired. He just needs a cuddle. Being dragged out to a fucking restaurant. I don't think I can watch anymoreWhy is she constantly filming her super sick child and labeling him with roid rage … so fucking bizarre he also has no immune system out eating in public … get him home comfortable and snug with food delivered … such odd behaviour..
Totally agree WonkaIt's so devastating. That poor boy stood there looking so unwell, so tired. He just needs a cuddle. Being dragged out to a fucking restaurant. I don't think I can watch anymore
The roid rage comments are way across the line for me. He is exhausted, facing things most of us can’t imagine, undergoing rigorous treatment. Give him some basic respect.Totally agree Wonka
I want to go and scoop him up and take him home to be snug watching films and having any treat he wants, it’s not about them and their wants at this point, stop trying to make everything “normal” it’s not …
This! If he is neutropenic, which is very likely, then he is susceptible to everything. We see it all the time on my oncology ward. It's not the cancer that kills the patients, it's a virus/infection that they are unable to fight off.he also has no immune system out eating in public
It's like when she called him kicking off about having MORE natural treatments a tantrum. Just sickeningThe roid rage comments are way across the line for me. He is exhausted, facing things most of us can’t imagine, undergoing rigorous treatment. Give him some basic respect.
Agree. When my close relative was neutropenic (which was a lot of the time during intensive treatment) we were paranoid about keeping everything spotless. Even a takeaway was a no no. Everything was sterilised like having a newborn. That poor poor boy. He looks so tired he can hardly lift the food to his mouth.This! If he is neutropenic, which is very likely, then he is susceptible to everything. We see it all the time on my oncology ward. It's not the cancer that kills the patients, it's a virus/infection that they are unable to fight off.
I was neutropenic at the start of the year, and it's awful as I had to be careful that my family knew not to visit and my children had to up there cleanliness and try not to fetch germs in the house!This! If he is neutropenic, which is very likely, then he is susceptible to everything. We see it all the time on my oncology ward. It's not the cancer that kills the patients, it's a virus/infection that they are unable to fight off.
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