I agree with your last sentence. I have a friend whose daughter has neuroblastoma. She's a single parent. Her daughter is 5, like Dilly. My friend is Polish, but has lived here since she was 8. They've had a really traumatic journey which culminated in them having to seek treatment in Poland as her concerns weren't taken seriously by their doctor here (hence why I mentioned she's Polish, in case I seem xenophobic). She found out her daughter has stage 4 neuroblastoma, and then found out recently that Car T therapy is her only remaining treatment and they're really struggling to raise the funds. She's been treated in Poland because for various reasons it wasn't possible to bring her home to treat her post diagnosis. They've lost their house, her school, their entire life. They managed to get back to the UK for 2 weeks between treatment recently because things are looking quite dire at the moment. My friend isn't rough, but she's certainly not a millionaire. It breaks my heart seeing the difference in funding between two similar cases. Even more so because the family getting the funding doesn't actually seem to need it.
Obviously my heart breaks for Amy, Dilly and family.... But I just wish that all children had the ability to access the resources needed to have a chance at winning their battle.