For anyone questioning the Medicaid program that Abbie is on... (Not to support but to inform the public that doesn’t understand, as I am a Mom of 4 kids that are on the Autism Spectrum)... Pretense, Asa has said she has a waiver, which I am assuming she actually does...
Most states have Medicaid waivers for ID/D children and adults, which includes children and adults that are on the Autism Spectrum.
The Medicaid waivers are not income restricted. It is actually the opposite because it “waves” the income requirements on the household...
The Medicaid waiver also “waves” the right to institutionalize an ID/D person into an institution. The children and adults that are placed on the wait list or into the waivers, usually are at risk for being placed into an institution due to the parents not able to handle the needs of the child or adult...
The state’s DHHS department gives a set allotment of money, per year, for each child/adult on the waivers, to support the family and disabled person, to stay and live within the community. It is usually much cheaper for the state to pay $60-80k a year for care, than +/-$150k per person to be institutionalized for the rest of their life. The waiver pays for respite care, accessibility, after school programs, etc.
Once a person is placed on the waiver, that person receives the waiver usually the rest of their life. Just like if they were placed into an institution because basically a parent is saying “I promise not to institutionalize my child and will take care of them in my house, if the state will support us by giving us needed supports within the house and into the community for them.”
Here is the kicker though. Most states have very strict requirements for waivers. It takes psychological reports, living evaluations, and multiple phone interviews to even apply for your child to sit on a wait list. Most states have years long waitlists for these waiver programs (Florida is 7 years long), in comparison, my state just stated the average is 9.5 years long.
Personally, I am surprised with as little functioning that Abbie can do and how unsafe she is, that she could qualify. I wouldn’t be shocked if the state didn’t pull her waiver eventually because of how little they use the services. The state can pull waivers if they feel the child or adult isn’t safe or needs more than the waiver can give but it takes a lot of reporting that happens through the case worker and showing that the waiver isn’t being used due to more extensive care needed...
There is a lot more that can be done but because of her functioning ability (or lack of), they aren’t able to utilize the waiver to its capability. They do make sure to utilize the respite care though (which our state caps out at 135 hours a month, don’t know about Florida) but she could be getting after school music therapy, way more ABA (inwhich our state is a minimum of 20 hours, any less shows inefficiency), etc..
Also, I don’t see why she isn’t getting more ABA therapy and it was cut back. She still struggles with going into public, staying safe, meltdowns and running off.. Those are very huge issues that her ABA therapist could be working with her on...