Thanks
@Facehugger xx - here are the details.
Warning long post ahead!!
My situation is - my Mum needs 24 hour care. She has severe mental health problems with constant suicide threats. My Dad was constantly supervising and caring for her until his sudden death in January. Since then, I have had her with me from 12 - 8pm every day and my Brother stays at hers overnight from 8pm - 12pm but he needs to move into his flat soon. (I've also had her 24hours for a couple of weeks at a time) She won't let us leave her for even 20 minutes. Due to her condition, she sometimes becomes almost catatonic and will fall when she gets up and needs help being fed and taken to the toilet. I offered to move in with her - but I would need to take my family with me as I'm not prepared to leave them all behind, she didn't want that. My Son offered to move in with her overnight - she didn't want that. I don't have a spare room in my house to accommodate her (she's had to use my room and me and Mr Spangly had to sleep on the settee)
After 6 months of trying to cope, we decided to get a 24 hour carer.
The few days before, she created havoc, managing to actually run away from us, across roads etc when before, all she could do was shuffle along, hunched over with a walking stick! We went through a care broker, that rang around agencies and there was only one agency with any carers available, So we went with them, they came and assessed her and we said she needed an older companion (that's what she really wanted). We did want care as soon as possible but were prepared to wait. They came up with someone to start the following week but only let me know her details the night before she was due to start. She wasn't really of an age my Mum wanted but she agreed to give it a go! (she was only 23). As soon as she arrived my Mum played up so much - after 20 minutes of trying to persuade her, we had to turn them away. (I was mortified and asked her to send us an invoice for her time and the original assessment) - after which I received an irate call from the care manager saying that no-one had ever had a problem with her care packages before. She started the conversation by shouting at me "What's going on then?" - it was one of the most unprofessional calls I've ever dealt with!
Anyway - we are back to square one, trying to find a 24 hour carer (I never knew they were such a rare thing!) In the meantime, she refuses to go into a home or even respite care (I don't really want her to do this anyway but my Brother is pushing for this)
I've looked into trying to hire someone privately but it seems you have to become their employer and pay their tax, NI etc - it seems complicated.
Next week, I have managed to find a lady to come in from 10-12 mornings and 7-9 evenings, to see if having someone new around to do activities with her, will boost Mum up a little bit. (she could bounce back at some point in the future, that's why we don't really want to sell her home just yet to pay for a care home)
She's under the older person's mental health team but they have more or less said there is nothing left to offer her. She's had every combination of medication available, she's just finished another round of ECT (which didn't help this time), they won't section her and there's no places in a mental health facility for her.
My Brother and I both have mental health problems but nothing as severe as my Mum. But her constant need for attention and reassurance is taking a big toll on both of us. I really don't think I'm cut out to be the caring type! It's also affecting my business and I need to get back to work properly without distraction or I won't be able to pay my bills if I take much more time off!
Phew - that was a long one! I will come back with jumping goats to try and counteract all this negativity!
Jumping baby goats - yay