Me to, I think it’s a brilliant area, I’ve done some fundraising for a similar charity whose little boy also passed with AML, they paid for a parents car to get through mot and filled with petrol , specials days/trips/ like a fairy godmother if charity’s,,, all about the love/fun and making memories.Regardless of where they stayed, in my view this is an example of the sort of awareness raising that could really help....the cost (not just financial) of having a child in hospital long term, the effect on family life, employment, relationships and even travel expenses to visit. The NHS will always provide the best available treatment and children will usually be ery stoic about their illness, but there are huge hidden costs as described above. I would love to see awareness raised on this and funds raised to help ease the burden on families.
a couple of caravans where the family could go on holiday, I bet some of those families havnt even had a single holiday! I would have liked to it be used like this. We should have had a say, he had no right, doing what he has.