Thank you for this and the to person you quoted too. I have 3 out of 5 children diagnosed but I think the other two are autistic too, just more able to mask. It's clearly hereditary along with the ADHD which two of them have. I'm not on Instagram etc, the most I've mentioned it is on here, mainly because it's anonymous.
I do feel blamed as a parent but realistically I'm not at fault for my genetics. It's very clear it's passed down through generations.
Some days I feel rage about how people don't understand but other days I have no fight because I've used it on dealing with my actual life. Today is one of the latter.
I desperately wish more people understood.
I feel the same
@TwooTwooTwitTwitTwoo it's demoralising sometimes isn't it? I try not to let it get to me, but sometimes when people come out with unkind comments I find it hurtful as well, and frustrating, because I feel like some people are on the outside looking in,and they just don't understand.
I get this whole performative culture on social media, yes it does exist, and it does seem to attract narcissists and people that exaggerate or would do anything for attention or validation, but I'm definitely not one of those people, I suspect most people aren't like that. (I prefer to give people the benefit of the doubt)
I don't have or do any social media, I'm not comfortable with it, or want my kids over exposed, I think maybe some people are just getting the wrong idea about autism or parents who have autistic kids.
Frankly i',m too tired to put on a performance,or beg and I'm the last person to (as has been said on here, yes I know it wasn't personally directed at me, but even so I don't find it helpful,) take advantage of the situation for benefits or freebies or feel entitled because I have special needs kids
Oh please! My brain doesn't work like that, if anything I have been the opposite, too honest and open and taken advantage of (and yes I find that embarrassing to admit to), so have my kids to a lesser extent bullying and exclusion are real,also in my son's case being too kind (that's not a humble brag, it's been working against him),it's hard to see people who would take advantage of them, but some have tried.
Thankfully the school have been supportive and aware and we nipped it in the bud, together but yes people can be shady and not very nice and it was difficult for my son to learn that.
I'm 44 and it's been hard for me to learn that as well, (I think I've just had a delayed response to most things in life) but I've also because of that awareness of my own weaknesses if you will, set more boundaries and become more strict, kids are a reflection of ourselves sometimes and vica versa, for good or for bad, but everything has two sides and I feel like only one side is focused on? (The more negative or problematic one) maybe that's what generates attention? That's unfortunate though because I understand and accept autism it's integrated, it's a part of our family but it's not the only part.
Yes they know they are autistic but it's not the big deal to them, that the world seems to think it is, they are modest and rather Shy even withdrawn.
So again I don't understand this supposed exhibitionism or attention seeking either coming from parents or kids with autism.
Or this stereotype of a feckless grifter parent/con artist is lost on me?
Honestly I don't know anyone like that in real life,. Yes there must be a small minority of very dysfunctional people who maybe go through life using everything as a means to an end, and it looks like (unfortunately) maybe they are the ones who make the most noise, and get the most negative attention.
I guess that's true in life in general, but it's a shame because I don't think it's representative of most parents.