Tiffany Thinks #19

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I guess we’re kind of lucky in the US, or at least every hospital I’ve been in, in that we have rooms which are either double or single occupancy. So much less noise. Where she was seemed incredibly noisy.
that is the big takeaway for me watching all of this. I have not been in every hospital in our area but enough and these days it is even rare to get a double room...usually single. If you watch Jessica Krock her room is typical of my experience. This ward concept is something really different to me. I know immediately after surgery when you are still sort of groggy and out of it there is a room with a few beds but after that you are taken to your room. Even in day surgery the most you share is with one other with curtain in between. I did not realize the differences and as much as people complain here in US about healthcare (with good reason) the hospital situation is better....I am sure the care is still good in the ward but again listening to that all night can take a toll.
 
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I think because insurance covers the cost, so it equates to private care here in the UK. I am not sure which system is better, both have their good and bad points, but from what I have seen from videos, if you are able to afford insurance in the US, and if the company plays ball, the patient experience is much better there. Everything comes down to money in the end.
I don’t think the experience is different for those who do or don’t have insurance here. The difference is the bill you get at the end of the stay. The bill I got a couple years ago for a 5 day stay was around $30K, but after insurance amounted to about $3K out of pocket.
 
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I don’t think the experience is different for those who do or don’t have insurance here. The difference is the bill you get at the end of the stay. The bill I got a couple years ago for a 5 day stay was around $30K, but after insurance amounted to about $3K out of pocket.
So if you don't have insurance in the US what happens? Here, if you are entitled to it, all treatment, from GP to ambulance, hospital, specialists, scans etc are free, whether you have the money to pay or not. We can opt to pay ('go private') and get a much enhanced experience in terms of comfort, access to treatment etc.
 
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I guess we’re kind of lucky in the US, or at least every hospital I’ve been in, in that we have rooms which are either double or single occupancy. So much less noise. Where she was seemed incredibly noisy.
I feel guilty that I had a large private room last summer for my overnight stay.
I'm on medicaid (public health insurance) which pays for pretty much everything. I've found really good doctors, very lucky.
 
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So if you don't have insurance in the US what happens? Here, if you are entitled to it, all treatment, from GP to ambulance, hospital, specialists, scans etc are free, whether you have the money to pay or not. We can opt to pay ('go private') and get a much enhanced experience in terms of comfort, access to treatment etc.
If you go to ER you get care...insurance or not.
 
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If you go to ER you get care...insurance or not.
So do they not expect payment in some way, here we hear horror stories of people racking up huge bills for medical treatment in the US, does that not happen?
 
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So do they not expect payment in some way, here we hear horror stories of people racking up huge bills for medical treatment in the US, does that not happen?
i can't speak to the "racking up of bills" but treatment is not withheld because of no insurance. There are many programs for people to sign up for to be covered for medical events. I am no expert on all of this and are they sometimes shuttled to another hospital due to no insurance....not sure. Most insurance has very high deductibles so getting care for a serious illness can wipe out people..no utopia here at all.
 
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So if you don't have insurance in the US what happens? Here, if you are entitled to it, all treatment, from GP to ambulance, hospital, specialists, scans etc are free, whether you have the money to pay or not. We can opt to pay ('go private') and get a much enhanced experience in terms of comfort, access to treatment etc.
Most have insurance of some form or another, through employer or Medicare/Medicaid (public insurance - if you qualify). The coverage varies with different plans. For the truly indigent (i.e. no income, homeless), I think the hospitals get reimbursed from public funds, but not totally sure.

For people that aren’t in any of these groups, you can be stuck with huge debt for sure. For a while it was required that everyone had to have some form of insurance, but I don’t think that’s the case anymore. You can buy insurance on your own but it is pretty expensive.

It does leave you feeling pretty insecure about getting sick and losing your job.
 
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So do they not expect payment in some way, here we hear horror stories of people racking up huge bills for medical treatment in the US, does that not happen?
Oh they expect payment and don't care where it comes from, if you have no insurance they may try to work with you on a payment plan but a surgery or stay in hospital will crush you.
 
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Well I watched this one. I just have no words right now so I'll hold off on that bit.
I have a question about her actual surgery. She has said she had a PE and we are supposed to google it. I read all PE surgeries involve the reproductive organs, and then other organs depending on which version you have. Do they all entail being sewn up/shut rectally and vaginally? Or are there lesser versions where that doesn't happen? And from what I read a PE is for the reproductive organs primarily, I never recall her saying anything had spread there except for when she briefly mentioned the back vaginal wall, I could be wrong? Any healthcare people want to help me understand what she may have actually had done by the only clues we get in the videos since she's obviously not going to tell us anytime soon?
Here is a brief synopsis of her case:
She had a T4BN1bM0 adenocarcinoma colorectal cancer tumor prior to any treatment. This was locally advanced colorectal cancer. Post chemo-radio-therapy, the tumor grade became T4BN1cM0.
For colorectal cancers, T4B designates a tumor that has grown out of the colorectal area and has adhered to or invaded nearby organs. The cancer she had was therefore locally advanced, and remained that way, even after the chemo-radio-therapy.
The N1c means that tumor nodules are present. Tumor nodules are cancerous regions that are discontinuous with the primary tumor.
There were also other parameters that described her case, but the relative good news was that distant metastases were not present. (That is what the M0 designation means.)

Tiffany did mention in one of her videos with the key words 'organs' and 'removed' in the title that the following was going to be removed: colon (At the time she had made that video, only part of the colon was going to be removed.), rectum, uterus, ovaries, and vagina, with the bladder remaining in question.
Pelvic exenteration surgery is when most pelvic organs are removed, but some may remain. That depends upon where the cancer has spread.
Tiffany had a partial pelvic exenteration (as opposed to total pelvic exenteration) because her bladder was preserved. The type of exenteration she most likely had was a posterior pelvic exenteration, which is surgery to remove all or part of the colon, rectum, uterus, ovaries, cervix, and vagina. The reason she has an incision also in the front of her body is because the female reproductive organs were removed from the belly.
(When laparoscopic surgery is done to remove the uterus, there is no big incision, but a series of small ones to detach the uterus from the abdomen. The uterus is then pulled out via the vaginal opening. However, in cases of cancer or when the uterus is filled with big fibroids, the uterus and other organs need to be removed the 'traditional' way: from an incision in the belly area.)
Much earlier Tiffanythinks threads on this forum have extensive medical detail on her case, as many of us would link medical journal articles pertaining to colorectal cancers and even publications from her surgeon, Dr. Shahnawaz Rashid.
 
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Okay watched the latest and have some comments...some of which I guess will not be popular..
-First I frankly totally agree with Tiffany asking about another ward. Just the sound effects and some of
what she probably heard as she becomes more and more alert is a valid reason to ask. She is right...
you don't ask you don't get. It cannot hurt. As it turns out she has another c-diff and now in private room.
I think that is a good thing.
-She is much more comfortable with the stoma concept and speaks freely about it.
-Note that Amma and Matt wear no mask around her in the room but put hem on for the hallways.
Makes no sense to me.
-Elodie is missing and apparently part of family that she wants no communication with at this point.
I think that is strange. That is her sister.
-She is in the Ellis Ward and don't know if she will have to move back into the big wards again. I know many
will say she is not special etc. but I think the c-diff saved her.
I did note myself she speaks freely of her stoma, but let’s not forget it’s not really active yet! Things will change a lot once she commences a solid diet and the stoma becomes active.
That will be interesting!
 
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I did note myself she speaks freely of her stoma, but let’s not forget it’s not really active yet! Things will change a lot once she commences a solid diet and the stoma becomes active.
That will be interesting!
Yes! Note that she said her stoma was 'very cute' and that she liked the size and shape of it. That is one of the take-home messages of this video, (Crying to the Doctor (hospital) *cancer*) and it is very important. :)
 
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In the US you aren't required to have insurance any more in some states. Other states, like mine, still require it.
The best healthcare is generally through your employer. If you are lucky to have an employer with a good health plan, the coverage can be amazing. I am covered though my husband's job and paid a $15 co-pay to have a c-section and recover in a hospital for 3 days. We don't have a deductible.
If you don't have employer health insurance you can get government insurance (Medicaid) but only if you are very poor and have few assets. All elderly people quality for Medicare (again, provided by the government), and some disabled people get this as well.
Otherwise you can buy your own insurance. If you are lower income, you can get subsidies. These vary by state. Some people get generous subsidies but as soon as you enter "middle class" territory subsidies become low and insurance can be VERY tough to afford.
If you don't have any insurance (or your insurance is poor) you would have to go to the ER for treatment. You can apply for charity care from hospitals if they offer it. Otherwise they will put you on a payment plan and sometimes you can negotiate your bill down. Obviously some are still left with a lot of medical debt.
So your situation could vary wildly depending on what state you are in and how you get your insurance. I've been fortunate to always have top tier insurance that has paid for everything (general care, specialists, prescriptions, hospital stays, etc).
 
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Did she actually have c diff again or just a reason to put down on paper to authorise a private room? I’m sure she will stop crying now, she will be able to record and make stupid TikTok videos with Anna and Matt in a private room.

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Okay watched the latest and have some comments...some of which I guess will not be popular..
-First I frankly totally agree with Tiffany asking about another ward. Just the sound effects and some of
what she probably heard as she becomes more and more alert is a valid reason to ask. She is right...
you don't ask you don't get. It cannot hurt. As it turns out she has another c-diff and now in private room.
I think that is a good thing.
-She is much more comfortable with the stoma concept and speaks freely about it.
-Note that Amma and Matt wear no mask around her in the room but put hem on for the hallways.
Makes no sense to me.
-Elodie is missing and apparently part of family that she wants no communication with at this point.
I think that is strange. That is her sister.
-She is in the Ellis Ward and don't know if she will have to move back into the big wards again. I know many
will say she is not special etc. but I think the c-diff saved her.
Of course you agree that she was given a private room. You was mortified that the NHS had put her on a ward and asked why she wasn’t in a private room. What she heard and sound effects has she became more alert? What did she hear and what sound effects?
It’s clear that you have no experience or understanding of our NHS.
 
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An amazing “mental health “ bounce back once she got her private room. All smiles and Netflicks. Wow!
 
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She requested the room before knowing about the possible C-Dfff infection, right? She said it was for mental health?
Did she and the doctors know about this (maybe) infection before or after she got moved to the private room? I couldn't tell.
I agree that being in a private room would be best for EVERYONE, but I get the impression they are in very short supply in the UK. Mental health is important but the rooms should be prioritized for someone with highly contagious condition or someone who is dying so they can have some privacy with their family.
 
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It's all very odd and out of time, with loads of her followers on YT and FB saying how glad they were about her room, and hope she gets home soon etc. Not seeming to realise that this was all recorded weeks back and she’s been home for ages.
 
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They did a test that flagged up c-diff 'seeds'??? Presume they are treating her as though she does have it until proved otherwise, which is why she is in a side room. She didn't request a room, just a move from that ward. They took her to Ellis ward (which is a ward specific for those in Tiffany's position, post of gyny/cancer etc), and she is in one of the two rooms there.
 
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She requested the room before knowing about the possible C-Dfff infection, right? She said it was for mental health?
Did she and the doctors know about this (maybe) infection before or after she got moved to the private room? I couldn't tell.
I agree that being in a private room would be best for EVERYONE, but I get the impression they are in very short supply in the UK. Mental health is important but the rooms should be prioritized for someone with highly contagious condition or someone who is dying so they can have some privacy with their family.
Per the video she simply requested to move to another ward...I think the Ellis ward. She did not request a private room. The private room was needed due to the c-diff....she did not have control over that. I get that she thinks the world revolves around Tiffany and she can be very irritating but on this one I think she had cause. They have to keep those privates for infection control and as luck would have it she got it. Otherwise she was going to go to another ward that based on the description is more appropriate for her case. Probably still not super quiet but maybe better.
 
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Anyone else feel like Tiffany compulsively films because she can't be alone with her thoughts? A lot of the time it feels like she's talking to the camera like it's a therapist. I know she's a bit annoying but I feel sorry for her more than anything, she's obviously not coping at all.
 
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