Shamelesshorse
VIP Member
the only people ‘deforming’ her character are Talia and the butchers filling her face with filler
![Face with tears of joy :joy: 😂](https://cdn.jsdelivr.net/gh/joypixels/emoji-assets@5.0/png/64/1f602.png)
![Face with tears of joy :joy: 😂](https://cdn.jsdelivr.net/gh/joypixels/emoji-assets@5.0/png/64/1f602.png)
![Face with tears of joy :joy: 😂](https://cdn.jsdelivr.net/gh/joypixels/emoji-assets@5.0/png/64/1f602.png)
My experience of Apert Syndrome has been completely different, he’s never stayed in hospital except after operations. The last 16 months have been so lovely at home as he’s not had any surgeries in that time and don’t have any scheduled hopefully for another few years. I’m always on edge that a surgery will pop up though and we pain manage a lot for him with his feet at home but we manage. I had to basically give up my career.Without being insensitive, does Oakley’s length of hospital stay match up with your sons or has he been able to go home in between his surgeries?
It makes me so angry. I’ve got a profoundly disabled child. They also have a medical condition. They have a sibling who is also disabled but to a lesser extent. I work full time (which is exhausting but thankfully remotely). I’ve fought for both kids, we’ve been to court with local authorities over schools and we get no respite or help. There’s no local holiday clubs nothing. We don’t get to use the NHS hospital stay. She’s disgusting. So many of us are carers who are really struggling and that selfish, lazy crow wants a carer when she only has Oakley and Siennah. I was shocked, I struggle with my children but I step up.It would mean she has to actually look after him and that’s too much for Jodie
Wonder if "filming Jodie walk round the estate like a GTA character in her Burberry bikini" is part of the job descriptionI think I’d actually quit my job if I was told I was going to be Jodie’s personal slave. She will have that poor carer doing all kinds that they aren’t paid for.
You hearing her say she can't bare feeding him matches up with what another person saw while, her niece I think it was, was on his ward.Got led to this thread after seeing someone mention it on instagram and I must say I had to comment as somebody who knows a heck of a lot about apert syndrome as my little brother has it. Not to judge not to gossip but to throw some actual information out there because I can’t believe what talia is doing. My brother needed all the same care, as all children with apert syndrome; all the same operations. Cared for in the same hospital. My mother also had four other children. Oakley does not need to be in hospital whatsoever and this is Talia’s choice as she was overheard on the ward talking about how she has severe PTSD after Oakleys birth. It is not normal for any child of aperts syndrome to be kept in hospital other than for operations and recovery, then taken home with all the medical equipment (my brother had all the same equipment and we cared for him at home) she has absolutely pleaded and begged/pushed for a carer for Oakley because of her PTSD which is not needed. No other parent of a child with apert syndrome has ever been given a carer that I know of. That’s not normal. I bet half of her followers think this is the norm for a child with apert syndrome so thought I would clear it up. Also she was overheard telling the nurses at feeding time that she ‘couldn’t bare feeding him’ so would pop out for ‘half an hour’ to rock up 5 hours later looking immaculate. I feel so so sorry for Oakley. Must say Aaron seems like he loves him to bits though.
Spiteful how ? By making a room just for Oakley and for oakleys needs ? Very spiteful of him he should just shove him in his bed with a fake purseHe's so spiteful!