Got led to this thread after seeing someone mention it on instagram and I must say I had to comment as somebody who knows a heck of a lot about apert syndrome as my little brother has it. Not to judge not to gossip but to throw some actual information out there because I can’t believe what talia is doing. My brother needed all the same care, as all children with apert syndrome; all the same operations. Cared for in the same hospital. My mother also had four other children. Oakley does not need to be in hospital whatsoever and this is Talia’s choice as she was overheard on the ward talking about how she has severe PTSD after Oakleys birth. It is not normal for any child of aperts syndrome to be kept in hospital other than for operations and recovery, then taken home with all the medical equipment (my brother had all the same equipment and we cared for him at home) she has absolutely pleaded and begged/pushed for a carer for Oakley because of her PTSD which is not needed. No other parent of a child with apert syndrome has ever been given a carer that I know of. That’s not normal. I bet half of her followers think this is the norm for a child with apert syndrome so thought I would clear it up. Also she was overheard telling the nurses at feeding time that she ‘couldn’t bare feeding him’ so would pop out for ‘half an hour’ to rock up 5 hours later looking immaculate. I feel so so sorry for Oakley. Must say Aaron seems like he loves him to bits though.