to all who celebrate!
Yeah i was born in 89 and i was the 3rd child, i wasn't diagnosed til i was about 4 or 5 so around 1993-94 bc it was such a new thing that no local doctors knew what it was so i had to go to a major city to see a specialist. By that time though my parents had already had another kid but luckily i was the only one out of 4 to be affected but they all carry the gene still and have gotten their spouses tested before having kids.I agree. I don't see your opinion as being unpopular here. If S&G are to be believed, about 1 in 40 people are carriers of the SMA gene. Of course they insist that should not be a reason for 1 in 40 people to not have children, and I agree. I actually applaud Hannah for being tested herself. She's not a carrier, so while any children of hers that Shane might potentially father (boy, that's a huge "IF") WILL be carriers, THEIR children together, unless the baby develops SMA in the womb from some random gene modification after conception, will not HAVE SMA.
Maybe it's just because genetic testing wasn't as advanced in 1992, the year Shane was born. By the time Shane's parents tried for a 2nd child, I gather Shane had already been diagnosed (I think he said he was between 1 and 2 years old when dx'd), so it seems they might have thought long and hard about their high odds of bringing another child with SMA into the world. Not saying they were wrong to have another child... and maybe they had an amnio done when the mom was carrying Andrew. I'm not "pro-choice" WRT ending a pregnancy solely b/c of a genetic defect. I just think after having one child WITH a serious genetic defect they'd want to lessen the odds they have another, not b/c that child's life is in any way "less worthy" than that of an unafflicted child, but is it okay to just blindly roll the dice and not consider all a child MIGHT have to deal with down the road?
I have type 3 which is what Shane has i think and i'm in no way close to how bad he is but i also did a lot of things to help prevent it like wearing my braces on my legs and hands as i grew up. The being pitied sucks yes, but i just correct them and say "you don't have to do that, i'm actually pretty well off" and they usually seemed shocked for some reason haha.@Handi, I especially respect and value your insight about all this because you're living with SMA. I don't remember you ever saying the type or in what ways it affects you (and you do NOT owe anybody an explanation), but you KNOW the challenges involved with the condition. I can understand Shane's frustration with people (often little old ladies) expressing pity for him. He says he lives a happy and fulfilling life in spite of his condition, but it's all he's ever known. His situation is quite different from someone like Cole (of "Cole & Charisma" fame) who in an instant went from having a fully-functioning body to being a quadriplegic. Unlike Shane, Cole remembers what his life was like before, so it's understandable that his "new normal" presented a much bigger challenge for him than Shane has ever experienced, even though Shane is still "more" disabled than Cole. In Shane's case, I don't think he can fully appreciate or mourn what he's "lost" because he never HAD it.
I think the word you were hunting for was "symbiosis."Interabled couples I've met in real life have lives outside of each other- whereas S and G seem very codependent and consumed in each other's identities at the expense of creating their own.
I should have worded that a little differently. I'm sure most people, at least to some degree "abled" or "disabled," CAN appreciate, and even mourn, something they've never been able to do. I was speaking only about Shane. He's the one who seems to always try to minimize his condition... IOW, he's just a regular guy who happens to use a wheelchair. Uh... not exactly. I've no doubt he would eagerly trade places with someone who doesn't share his degree of disability, including Cole, but unlike Cole, Shane's never walked, run, swum, pedaled a bike, fixed himself a sandwich, brushed his own teeth, and so on, so it doesn't seem like it is or ever can be exactly the same as if he'd ever experienced those things.There is a vast difference between being born with a disability and gaining it through an accident but dont get it wrong, just bc we never really walked or any of that, doesn't mean we can't appreciate or mourn what we have never been able to do. Everyday of our lives we have watched as people climbed, ran, jumped, kicked a ball, played football, etc. and that's hard on its own. at least Cole got to experience a lot of that before getting disabled.
Oh ok i understand better now. Yeah I guess that's how he gets through his days by rejecting reality and instead he should embrace it. There's nothing to be ashamed of for being disabled but he acts like there is. its very frustrating for sure.I think the word you were hunting for was "symbiosis."
I should have worded that a little differently. I'm sure most people, at least to some degree "abled" or "disabled," CAN appreciate, and even mourn, something they've never been able to do. I was speaking only about Shane. He's the one who seems to always try to minimize his condition... IOW, he's just a regular guy who happens to use a wheelchair. Uh... not exactly. I've no doubt he would eagerly trade places with someone who doesn't share his degree of disability, including Cole, but unlike Cole, Shane's never walked, run, swum, pedaled a bike, fixed himself a sandwich, brushed his own teeth, and so on, so it doesn't seem like it is or ever can be exactly the same as if he'd ever experienced those things.
Just. Wow.Welp, he finally replaced his chest harness... After only 15 years!
Allegedly they couldn't find a fitting harness. He claims the new one needs to broken in. Sounds like BS to me. Also, the content of the videos makes me think they are following tattle. I doubt their sycophant fans would risk hurting his fragile ego.Why did it take him or his caretakers 15 years to change his filthy, oil slicked harness if he's a public figure?! He should change that yellowed dirty towel on his arm rest- we might have to wait until he's 45 for that to change. He kind of reminds me of how old boats collect barnacles and debris overtime- he should be looked after more. Hannah and her grifter parents could really beam him up with cleanliness and outfits, but instead his harness was filthy, his wheelchair is fixed with duct tape and his arm towel is caked with dirt. We're talking years of dirt and oil accumulating on Shane who either doesn't want to be clean or he is simply a fixture in their home like a corner lamp or a table without anyone actually paying attention to/caring about dirt, oil, stains and dust accumulating on the things he wears/uses every day.
Yeah, right (WRT the harness). Like you, I call on that story, too. They "found" a fitting harness in 2022, but apparently Shane, his parents, his healthcare providers, medical supply companies, the world wide web, and later Hannah, couldn't find one in 2007, 2008, 2009... , or 2021. Was it just one of those "once in a lifetime" finds on eBay? As if seeing it front and center wasn't stomach-turning enough, including at their 2nd or 3rd "wedding" (the one where Shane wore the bright blue suit), they turned the old harness inside out, splayed it like a dissected frog pinned to a board in biology lab, and photographed it! We just thought it looked gross on the outside! I threw up in my mouth a little when I saw the condition it was really in. You'd think they'd be embarrassed for anyone to see that... the stains, the rips, 15 years' worth of Shane's dribbling food and beer on it (or worse). It probably stank.Allegedly they couldn't find a fitting harness. He claims the new one needs to broken in. Sounds like BS to me. Also, the content of the videos makes me think they are following tattle. I doubt their sycophant fans would risk hurting his fragile ego.
They also try to explain how he eats without showing an example.
I feel guilty for laughing, @fredflintstone. But I wouldn't laugh unless it was really possible that they would do that. And that there would be bidders.It just occurred to me... they could auction off Shane's old harness! I guarantee you there are S&G groupies out there who'd bid. Then, assuming it can be peeled off that armrest, they could auction off the yellow towel.
I'm not sure what all they're pushing now, but I'm not self-flagellating for laughing at that idea. I noticed Hannah was wearing a blue top/jacket with the little battery symbol they both had tattooed on their skin, reportedly as a "memory" of a trip they took to NYC when Shane's wheelchair just stopped. As I recall they found a repair shop that fixed the problem... a loose connection or something. Then there were the "custom bras" Hannah was pushing recently.I feel guilty for laughing, @fredflintstone. But I wouldn't laugh unless it was really possible that they would do that. And that there would be bidders.
What else are they trying to merch? I can't bear to watch. (Are they really doing Ducky and Squirt t-shirts?)
I watched their recent IVF journey video, and they said that Hannah had to do a hysteroscopy which takes 20-30 minutes and uses a small light and camera attached to a tube that enters her to look at her cervix and uterus to make sure that her uterus is viable for IVF and pregnancy.Has anyone listened to their IVF journey regarding the fertility test? Posted like 9 hours ago. I haven’t not sure if I want to but it almost sounds like it’s going to be really hard to get pregnant? I’m not sure but either way I am surprised no one mentioning their pregnancy scare from before. Seems suspicious.
Oh, so that's how they'll spin it: Shane was willing and able but it was Hannah who couldn't have children.I watched their recent IVF journey video, and they said that Hannah had to do a hysteroscopy which takes 20-30 minutes and uses a small light and camera attached to a tube that enters her to look at her cervix and uterus to make sure that her uterus is viable for IVF and pregnancy.
I totally agree, Double Old! Shane stated that his sperm was good in volume but lacking in all other measures and I guarantee that if the IVF fails, they'll pin it on Hannah. I just don't see either of them being ready to have kids right now (or ever)- they're immature, unstructured in their daily lives and self absorbed.Oh, so that's how they'll spin it: Shane was willing and able but it was Hannah who couldn't have children.
Yawn.