Oh, she's always wanging on about needing another baby/more babies.
ME is one thing, but the woman is at least 45, in alleged grinding poverty, has given birth to a now deceased son, an eldest with epilepsy, autism and OTHER DISABILITIES YOU CAN'T EVEN FATHOM, and the ADHD and Autism apparently continue in the younger two.
I'd call it a day, tbh
![Winking face :wink: 😉](https://cdn.jsdelivr.net/gh/joypixels/emoji-assets@5.0/png/64/1f609.png)
It's often an artefact of the later stages of perimenopause, thanks to the hormones going a bit haywire in a 'Last Chance Clearance, Final Closing Sale, Everything Must Go' cycle. I was most displeased to suddenly find myself desperately wishing I was pregnant, as it would have been a complete disaster for all concerned, but logic couldn't make estrogen listen.
Disregarding the fact that she is an utter prick to everybody, there are other things that could impact upon her health, both physical and mental, that have very similar symptoms to ME and perhaps being addressed could reduce her symptoms and make for a happier life.
1. Perimenopause. YMMV, but it's documented that women report things including exhaustion, depression, rages, pain, disturbed sleep patterns, mental fog and awful/heavy periods with accompanying back and pelvic pain, gastro disturbances and anaemia (which has tiredness/exhaustion/breathlessness/collapse as symptoms on its own). Also helps to prevent vaginal atrophy, which nobody wants to experience, and possibly has a protective effective upon bone density.
Easy to deal with - stick a patch on one's arse twice a week.
2. In her pill photo, she's got high strength, POM, cholecalciferol, at least 10,000 IU, if not more. So she's been diagnosed with a severe vitamin D deficiency. Not entirely surprising, as almost all of us spent at least one summer, if not two, pretty much confined to barracks due to lockdowns. She's also less mobile, might not be eating a high in vitamin D diet, drinks alcohol, smokes and has moved to somewhere with even less daylight than where she was before. The symptoms of a severe vitamin D deficiency include tiredness, depression, vulnerability to illness, muscle weakness and, commonly the first diagnosable/indication that a blood test is necessary, pain. Osteomalacia is an incredibly deep, constant pain in the bones and, from experience, is bloody awful.
Can be relatively low effort to deal with - take the supplements, try to eat oily fish regularly (also good for multiple other reasons), try to get time out of doors everyday, even if it's ten minutes in the afternoon sitting in her chair wearing a T shirt thinking '
duck me, it's cold, how much longer have I got before I can go back inside?'. Where possible, standing or walking with crutches is more beneficial than staying in the chair, as it's a small amount of weightbearing. It does take a long time to resolve, but once that deep pain stops, it's rather lovely. And worth the effort/drain to avoid the next stages of osteopenia (thinning of the bones) and eventual osteoporosis. Something that might help with leg/foot/back pain from weakness and deconditioning keeping her indoors is to get orthotics, even just commercial arch supports online - putting the body into a better alignment might help her to stand and move for longer as it reduces the physical effort needed to hold herself up.
3. SAD. She's chronically deprived of sunlight, both from not going out, keeping erratic hours and moving somewhere with less daylight that could make it better. If she went from living in a van, which would almost guarantee prolonged daily exposure to daylight (not just throughout Spring and Summer, but year-round) into a house she barely left, that's going to have an effect upon her.
On top of trying to get outside and see daylight for vitamin D synthesis from March, using a cheap daylight light or a sunrise clock helps. She was really happy being out and about in the summer when the days were long and the light was bright. It's also possible the flights were also providing an element of bright daylight that she hasn't been experiencing where she lives now. We're in the darkest, most miserable time of the year, so forcing herself outside in daylight could help her get back into the habit, rather than potentially staying indoors come Spring. Maybe a powerchair trip to the shop would be better than driving or sending the kids all the time.
4. Deconditioning. The forced exercise will fix you stuff is bollocks, but
very controlled things can help address lack of core strength causing backpain, reduced flexibiliity, pain from unstable musculature, and can just feel pretty bloody good. Simply being immersed in a warm pool, not even swimming but just moving a little with the weight of gravity being taken off can help.
If the local pools aren't accessible then a referral for hydrotherapy could be an option; many hospitals also offer the opportunity to enrol in private hydro out of hours for a reasonable cost (£6 is less than a bottle of gin or packet of fags, after all) after completing a funded course. Stuff like that is the sort of thing that counts as a cost of disability and it would be perfectly appropriate to use a small proportion of PIP for.
Pool accessibility varies; I have one that comes complete with hoist and shallow steps, one with a sloped entry, both with fully accessible shower and changing areas - and two that just aren't an option if you can't haul yourself up and out of the water/climb a ladder just as the full effects of gravity hit you again - within a couple of bus rides, with a vehicle, that would open up into a huge number with varying degrees of access.
I found it much easier to walk out of a pool than hoik myself out of the bath, so with the pool showers, it became far easier to maintain hygiene than when left with a bath I couldn't necessarily get myself in or out of.
Granted, that may not feel possible for her right now if she's struggling to dress herself, but maybe it could be in the future
if she starts to feel improvement from looking at the other aspects that all have symptom overlaps with ME/CFS.
There's no magic bullet for anything she describes and maybe it is all 100% ME/CFS. But even if it's 5% or 10% or 20% of her pain/exhaustion/everything caused by something other than the single diagnosis, it might make a difference to her (and by extension, the kids). There's no way that sending fucktons of money, raging at children who don't want to be forced to be carers and living on booze, fags and deliveroo whilst doing weird
tit like having the internet boyfriend watch you sleep (or say he does when he's actually watching TV or hitting up Tinder) is going to improve her health one bit, whatever the actual root of her illness might be.