But you don,t *need* to fix us (I'm autistic too) to make us 'normal'
The way we think, behave etc *is* our normal. Feel free to check out cites like 'NeuroClastic' or FB grous like 'Autism Inclusivity' and you can connect and relate, or let your kids connect and relate on there
As parents, our job when you are little is to keep you loved, secure, feed, in good health and grow you into human adults that can accomplish anything you put your minds to. If something arises, we are there to take care and fix the problem. It is basic human nature, as being Mom and Dad, to fix it...
I am not saying that it is right that we “fix” Autism. It is the way the brain works and how someone functions. I am saying that it is just how we operate as parents...
When an infant is born, if there is a major medical issue, a parent knows from the start something is wrong, doctors try to fix what they can and whatever is still wrong, sometimes just has to be lived with. They find out from the start though.
With developmental disorders or even massive medical disorders, parents take infants home, none the wiser, we are raising them and then all of a sudden, we start seeing that they can’t keep up with the other infants/toddlers/young children. We take them to doctor and after doctor, therapist and many therapy appointments..
Then, one day, someone sits the parents down and tells them that their child may have Autism and needs to be evaluated for it. They go through the process, evaluations, and then get told that yes, their child is on the Autism Spectrum...
So, what does a parent first want to do? They want to fix it but they learn quickly, there is no fix... There will always be some pain that they cannot fix it... It doesn’t mean we are right, we are just human and basic human instinct is to fix problems and find solutions..
Also, like my 2 children that have a very rare disorder that was just found, again, it is a need to fix it. Sadly, there is absolutely no fix. Life expectancy after diagnosis is 15-20 years... Usually the anxiety/depression of being diagnosed and living with their disorder, will drive them to suicide. Now we add in that both have anxiety due to them being on the Autism Spectrum. Our counselors have time on strict watch for suicidal behaviors. For two teenagers, that isn’t easy all the time, when they are out with their respite workers, which also know... Again, not something that I, nor the doctors, can fix because it is so rare... There is pain knowing that you can’t fix the problem...