I tried looking it up and it’s extremely confusing. But when A&P talk about it in their vlogs for parents looking for help getting care and funding they always come off as they know the skinny (only skinny they know lol) on how to get every agency to pay top dollar. I mean the lemmings think they are being nice offering help but to me they come off sounding sleazy as like we know how to con every agency out of funds! Rubs hands together and both laugh like evil villains.
When Abbie was first placed on the waitlist, she would have had to qualify based on her disability. Her IDD would have actually immediately qualified her. If she just had Autism as a dx, she would have had many more hurdles to overcome to qualify. They usually use a baseline of daily living scores done through a psychologist and they have to be lower functioning, in so many areas...
Abbie would be a slam dunk case. She would have gotten a very small amount of respite hours (our state, it is 30 hours a month) back then and for the next 7 years, while was waiting for her long term Medicaid waiver...
Now that she has her full waiver, her hours are increased to over 120 hours per month.. Parents can push for more hours and there are emergency hours, that can be added too...
These services though are scrutinized like crazy...
Example: My case worker cannot find a respite worker(s) for three of my children and hasn’t been able to for 3 months now. We got hours right before this COVID mess started. We have to renew their hours for the next 3 months, at the end of the month but we haven’t used any hours, nor have assigned workers. My case manager is in hot water with the state. She is wanting me to drop their hours off and us to reapply for hours next month because if not, her company will be fined for not providing care..
It isn’t my fault. I have called her each week. My basic requirements are: 1-no smoking or heavy perfumes/colognes, 2-no swearing or playing inappropriate music around the kids, 3-being interactive with the kid(s) while they are in your care...
Did you know I had one respite worker show up for an interview and she walked out when my daughter asked her about going to Goodwill or playing with her dolls in her room.. The interviewee told the case manager (Her boss), she didn’t expect to have to really interact with the child she was suppose to be caring for...
![Pouting face :rage: 😡](https://cdn.jsdelivr.net/gh/joypixels/emoji-assets@5.0/png/64/1f621.png)
![Face with symbols on mouth :face_with_symbols_over_mouth: 🤬](https://cdn.jsdelivr.net/gh/joypixels/emoji-assets@5.0/png/64/1f92c.png)