Fathering Autism #111 Marshmallow fail and resembling a whale

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I’m so sorry. I’ve been wondering how you are faring. For patients like us, Covid is particularly hard. I would love to see 2 of my kids without glass between us. I can’t chance it. My PKD kid is waiting on a test from the doctor. His 2 at home tests were negative. I feel a huge sense of guilt as I have access, very limited at this point as my husband refuses to come home, to home tests. There is a country doctor in my village and she’s set up a drive through at her office trying to test as many people in our vicinity as they can. The local libraries are doing the same.
If anyone is following along my son’s friends saga, he is on high flow oxygen and has managed to stay out of ICU. He is so sick it’s scary. He came home to Ohio after testing positive in the Avondale area of Jacksonville which is where the Maassives are. He’s got Covid-19, not Delta or Omicron. His parents keep telling me how grateful they are for my husband. I appreciate them, but my husbands main focus right now are his patients. He can’t release any info concerning their son but can encourage the doctors and nurses to call the parents daily. There is a one visitor per patient across the board but there are other factors in most families prohibiting them from being there. I would give anything to hug all of my kids. Trying to keep my ID son away from his brother and sister here at home until the doctor tells us they are negative is hard. Supposedly tomorrow about noon we will know for sure. I’m so sorry, @Broken puzzle. I wish there was something I could do or say that would make it better.
I cant imagine how hard this is for you and your family. My issues are nothing in comparison and the stress and uncertainty is becoming so hard, your strength is inspiring. Its just crazy how rapidly things fell apart again here in Ohio. And everywhere else really. :(
 
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I want to know how they are going to hold Abbie down, at least 2 times, to get a Covid test.
We have only had to do them once with one of our children, because we are hermits and try not to go anywhere, the kids are all old enough (and have received) both Covid shots, along with my husband and myself (and I even already have the booster).
It was not easy having our oldest get one, so she could get surgery (due to protocols). I could not see them being able to get Abbie to cooperate to have it done. There is no waiver for testing either, even vaccinated, you still have to test, by what I am hearing…
Also, could you imagine if they had to quarantine with Abbie, 24/7 never leaving a small room for days to possibly weeks, if they contracted it, before coming home?
I would go nuts!!

Also, for someone that said she may not have Autism. It very well could be. Abbie is at the age of when Autism diagnoses were being thrown around like candy. Parents were going for basic check ups and being sent home with referrals for Autism diagnoses. When she was probably 5 years old, studies came out showing that psychologists and developmental specialists in the US were over diagnosing Autism at an alarming rate and that something needed to be done. This was when younger children were also starting to be diagnosed at a higher level too.
For parents with slightly older children 5-12 years old, it made it nearly impossible to get a diagnosis after the study came out. Doctors were starting to watch so much more heavily and some just stopped seeing new patients (at least in my area), so they didn’t increase the numbers.
My oldest child showed signs of autism at 7 years old and her diagnosis was developmental and learning delayed until then. At 7, we had to fight like crazy to get her diagnosed because the doctors were slowing down on diagnosing and she was more higher functioning.

But, Abbie does have what they would call a “infant Autism” diagnosis now. Meaning she was diagnosed at a very early age. There are some in the medical field, at least in my area, that are starting to look at this heavily. They believe that “infant diagnoses” need to be readdressed once a child reaches a certain age and to make sure the diagnosis still fits, especially when it comes to Autism because of the therapies and interventions now being done. I have talked with a few parents that their children have went back through ADOS testing between ages 10-14 years old recently and their children no longer qualify as being on the Autism Spectrum and some come out without a diagnosis at all (others have still had ADHD or other neuropsychological issues).
I totally believe that Abbie may no longer qualify for Autism diagnosis or it would be at least pushed back behind a ID diagnosis. Of course, that would mean Assa and Princess P would actually have to take her and ask for new neurological psych testing, which they would never do…
Do the government and/or other agencies providing services require any type of reevaluation or testing by an impartial licensed, trained psychologist or psychiatrist every so often?
 
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I get if you suspect something... but then you go see a professional. But it isn't what any of the trend is about. It is all for attention and some weird clout chasing.

In the end it just diminish what other people are actually going through
I agree with everything you just said. People making autism to be simply a few quirky traits or otherwise making light of it, and then you also have those saying that it is not a disability, but a different ability. I'm sorry, but no. Autism for a lot of people is quite disabling.
 
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Do the government and/or other agencies providing services require any type of reevaluation or testing by an impartial licensed, trained psychologist or psychiatrist every so often?
Think it different based on the State you are in. But yes they require evaluations by doctors. Some "conditions" a child/person is under pretty consistent doctor care so there isn't a specific appointment for reevaluating as the doctor is actively participating in the patients care regularly.

But the most recent dr visit by the Maasholes Ass said it was to confirm Abbie still had autism... so they could keep on her government programs. Ass was pretty bitter about it... like how dare he have to jump through hoops to keep getting the taxpayers money.
 
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Is non-verbal something that can happen with ID alone? (Clearly I don't know much about that)
According to this, I suppose it could, but ID most often doesn't come by itself.

The 5 most common types of Intellectual Disabilities are:
Autism
Trisomy 21 (Down Syndrome)
Fragile X
Fetal Alcohol Syndrome
Prader-Willi Syndrome

Do the government and/or other agencies providing services require any type of reevaluation or testing by an impartial licensed, trained psychologist or psychiatrist every so often?
Yes. We have to be seen by a psychologist annually to determine if he still meets the diagnostic criteria and qualifies for services.
 
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Think it different based on the State you are in. But yes they require evaluations by doctors. Some "conditions" a child/person is under pretty consistent doctor care so there isn't a specific appointment for reevaluating as the doctor is actively participating in the patients care regularly.

But the most recent dr visit by the Maasholes Ass said it was to confirm Abbie still had autism... so they could keep on her government programs. Ass was pretty bitter about it... like how dare he have to jump through hoops to keep getting the taxpayers money.
Was that the one they just did with the new psychiatrist?...via the internet?
 
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That is a bizarre comment! And Friday is Christmas Eve. I dont think P would be away from Big Candy's bosom on Christmas, lol.
I know last year they had planned to travel to Canada over Isaiahs break. They had originally wanted to do it for Isaiahs graduation but Covid prevented it, so they thought the restrictions would be lifted by the new year, and they were not. They went to the ski lodge instead. I have been wondering if they had a RV trip to Canada planned this break. Who knows? But you know Asa is chomping at the bit to get his RV back on the road!
Canada huh... :unsure:
Cananaherewecome.jpg
 
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Was that the one they just did with the new psychiatrist?...via the internet?
No... it's the one they did in person.





Was one of these two.... I think the second one... they click bated hard with it. Like 100k more views than normal videos because I am sure people thought some medical miracle happened.

But do believe it was one of those they talked about it being to confirm she still had asd.

Eya... quick look through comments and seems it is the secon one... the clickybated one.

The other video may just be for her depo shot.

It is sad the share so much of Abbie's private business that anyone could know ANY of that
 
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I hate the self diagnosing thing too, seen lots of kids on Tumblr who have a whole list of mental illness or just every mental illness going. I ask them if they have all mental illnesses, how do you function enough to be able to do things and type?

Also these people add ASD too to their long list of conditions.

But I would not be surprised if they tell you next she has CP or something like that. Just because I think they are a bit of a doctor shopper when it comes to Abbie. But that is just what I see.

My family have a history of autism, I have 2 cousins with autism. One I have mentioned is severe, and the other is in the middle of the spectrum. His 24 years old and has just lost his dad due to a heart attack.

I hope those people on here who are unwell, get better soon. Sorry I haven't replied with well wishes, I wasn't sure if it was appropriate since I haven't been here for very long, and I didn't want to come across as rude or insincere.
I don’t think anyone here would think you are rude. Those of us that are left from a year or two ago are really nice nonjudgmental people. We appreciate each other and other’s thoughts and opinions. I was afraid at first. I joined when Covid and the Boo Hoo video hit. Even when I admitted I was a former patreon, only one person jumped my case. That persons not here anymore. We haven’t had any big issues since.

I cant imagine how hard this is for you and your family. My issues are nothing in comparison and the stress and uncertainty is becoming so hard, your strength is inspiring. Its just crazy how rapidly things fell apart again here in Ohio. And everywhere else really. :(
You are the one I admire. You have a strength none of us will ever know. I’m glad I spoke up in here after watching how much fun most of you guys were having! This is my social life for now and now that I backed off radiation and the nasty strength of my meds I can enjoy tattle friends again.

According to this, I suppose it could, but ID most often doesn't come by itself.

The 5 most common types of Intellectual Disabilities are:
Autism
Trisomy 21 (Down Syndrome)
Fragile X
Fetal Alcohol Syndrome
Prader-Willi Syndrome



Yes. We have to be seen by a psychologist annually to determine if he still meets the diagnostic criteria and qualifies for services.
We are ID NOS. There are a huge number of us who will never have an answer, and in my kids case he was 100% typical until almost age 5. Also, he is now 18 and we need to have yearly exams not only for insurance but also to keep him on the placement list where we ideally will want him to live. And I have no shame whatsoever about our plans. We are fortunate that his school, although private, is cost efficient enough to not have to rely on scholarship money. Since therapy is done primarily by a teaching hospital therapy students, private insurance covers it. I’m lucky and I know it. I’m more than grateful for not having to scam anyone to take care of my kid. I do just fine. That’s most of why those fat Maassive fuckwads piss me off so bad. Do better, Assa and Tinkerhog.
 
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Do the government and/or other agencies providing services require any type of reevaluation or testing by an impartial licensed, trained psychologist or psychiatrist every so often?
Definitely is state dependent. For the waiver Abbie is on, we have one kinda like it and the recertification is every 3 years. Even on the massive waitlist we are on, to get it, we have to still see neurologist or a psychologist to say that they are still on the Autism Spectrum and it is followed with a full neurological psych evaluation and takes 2-4hr appointments or one very long 7 hr appointment.
 
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I used to watch 6 adopted blind kids that SBSK did a vlog on them about the same time as Chris did one on Abbie. These 6 children were blind at birth and 2? have no eyes at all, but they still need to be evaluated every couple of years by an opothomologist just in case they suddenly can see! 5 out of the 6 are on the ASD spectrum, the most profound is non verbal, but can sing, strips her clothes off on the school bus on occasion! They had to pick one diagnosis for funding, and didn’t get the ASD until she was near the end of her schooling.
 
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@Kermy - if you are reading this, please know I’m thinking of you! ❤❤
Hi everyone, I'm still around..
Back to back Covid has kicked my butt, by the time I'm done working the braincell left over from the 80's is shot. Yup covid brain is real...
So yes I'm 3 for 3 on variants and had to go to UK for 2 of them.
I have alot to catch up on here when I can finally concentrate so if you see a random rambling you'll know why.
Happy and Safe Holidays to all
And
Healing Wishes too
Everyone stay safe
 
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Hi everyone, I'm still around..
Back to back Covid has kicked my butt, by the time I'm done working the braincell left over from the 80's is shot. Yup covid brain is real...
So yes I'm 3 for 3 on variants and had to go to UK for 2 of them.
I have alot to catch up on here when I can finally concentrate so if you see a random rambling you'll know why.
Happy and Safe Holidays to all
And
Healing Wishes too
Everyone stay safe
Good to hear from you Kermy! I'm so sorry you've gone through so much. I will add you to my prayer list...I hope you feel yourself again soon.
 
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6A4C1111-759C-444F-B798-7CDC34A43F7F.png

It might be bust!!!
I just looked up the rules for crossing the border, going on a vacation trip from the US to Canada. Unless they are vaccinated or they are going to lie to the Canadian government about the nature of their trip, they are actually not allowed to cross the border right now…
Hi everyone, I'm still around..
Back to back Covid has kicked my butt, by the time I'm done working the braincell left over from the 80's is shot. Yup covid brain is real...
So yes I'm 3 for 3 on variants and had to go to UK for 2 of them.
I have alot to catch up on here when I can finally concentrate so if you see a random rambling you'll know why.
Happy and Safe Holidays to all
And
Healing Wishes too
Everyone stay safe
Yay!! Welcome back Kermy! I hate to hear you have been so sick though… Many well wishes coming your way and all the other Tattlers fighting sicknesses way too!!
 
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Oh a PSA for New Jersey tattlers
You may already know but
free at home Covid test if you are showing symptoms...some ppl getting kits and results faster than others but it beats leaving the house
Www.learn.vaulthealth.com/NJ
If link doesn't work go to NJ dept of health website..link is there also
And to keep on topic
Am I reading correctly.. these fatasses what to travel now...um ok
 
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They like to bring up how Abbie destroyed the couch. She absolutely did some damage, but so did Pigcill. Her cushion in the corner where she clearly spent a great deal of time was easily 3 inches flatter than the other cushions. 🐽
 
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The couch completely blocks the bi-fold doors, where all her toys are now.. 🤬
Heck with the new paint, rug, etc..
It looks ridiculous, covering the closet doors. Do these people not know how to measure?
Asa's mom and stepdad are coming for Christmas. Havent seen them in a very long time.
At EVERY virtual appt., P never fails to mention Abbies typical teen behavior and stomping up the stairs. Gimme a break.
 
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