It’s really gross that she timed this news to promote a podcast.
And note in that news article that the NDIS denies all the statements she made!!
And note in that news article that the NDIS denies all the statements she made!!
- Status
New to Tattle Life? Click "Order Thread by Most Liked Posts" button below to get an idea of what the site is about:
100% this. I wouldn't leave the house and would have groceries delivered and I'd live like a hermit if that was what I had to do to give my daughter a chance, even if it meant stopping therapies for a period of time.Oh how sad. I knew her timeline was fabricated
Also…hindsight and all that.
If you told me my child needed this major surgery, but had to be healthy for six weeks prior, we’d be boarded up in the house like hermits, only leaving when necessary and wearing masks anytime we came into contact with anyone else.
I feel for her I really do, because regret is a difficult thing to live with, but she reminds me on my oldest who always wants something when it's too late. They won't make a decision and then when that option is off the table for whatever reason, then they decide that was what they really wanted. I feel this is with Erin. She only got clarity when she could no longer have it.
I honestly believe if they told her surgery was still an option and tried to schedule it, she would have pushed it back again.
She's literally making money off her daughters disability in the most awful way. And people like Zoe Marshall are a part of it, just let that sink in!! She is a vile human being.
Soo unless you have a subscription you can't listen?
Also I feel like its a bit premature to say she will never be able to walk, feed or toilet herself. From what we have seen Lu has been making incredible strides at NAPA
Also I feel like its a bit premature to say she will never be able to walk, feed or toilet herself. From what we have seen Lu has been making incredible strides at NAPA
(Erin and Zoe)
Oh Jesus, that just clicked with me. She’s been teasing this update for weeks! That’s exactly why she did it, to promote the podcast!
And lying about the NDIS funding?! She is abhorrent.
Kick up enough of a fuss in the media and you too can have enough funding for a full time support worker whilst you stay at home and build your new Eastern suburbs house
Poor them they are living on one consultant level income where they can afford overseas holidays and build a new house in the eastern suburbs while renting a very fancy looking house also in the eastern suburbs. They are So hard done by financially.Kick up enough of a fuss in the media and you too can have enough funding for a full time support worker whilst you stay at home and build your new Eastern suburbs house
Sad isn’t it, all the other stuff seems to take priority, but she portrays it as poor Lulu over there ruining Erin’s life, what gives this witch the right to feel like she’s entitled to have some sort of life she’s dreamed of? Many people have crappy hands dealt even worse than this, yet she is always poor me. No wonder her friends dumped her arse. She’s a negative woe is me moll.
I read Erin’s posts and listened to the podcast. The podcast didn’t say anything particularly interesting, it was heartbreaking to hear how bad things are for their family. I really feel for all of them.
I found that her insta post is all about her and her feelings and how hard it is for her. What about Luella? She’s barely mentioned, in a post that basically states that there is now no hope of treatment for her.
She had also obviously been putting off posting it but had to because the podcast was coming out. She knows it was her fault about the surgery, much as she half heartedly tries to blame the medical professionals again in her post. I think she didn’t want to post the news so close to her international child free holiday where she was living her best life posting things like ‘happiest here’ on a beach miles from her children. It’s a bit jarring.
I’ll never understand why a 60% chance of a good outcome wasn’t worth the risk for Erin until it was too late. Surely 60% is better than no chance? In her old posts about the surgery she seemed very worried about things like Luella not having a symmetrical smile any more, that one side of her body wouldn’t be as strong as the other. But without surgery, she’ll never be able to self-feed, walk, talk etc. That’s a trade off that I would certainly have risked. Another poster mentioned above that she didn’t seem to want the surgery because it would leave Lulu still disabled, and Erin only wants a cure that would have made her ‘perfect’, I think this is spot on. I’m heartbroken for Lulu and hope medications can help her life the best life possible
I found that her insta post is all about her and her feelings and how hard it is for her. What about Luella? She’s barely mentioned, in a post that basically states that there is now no hope of treatment for her.
She had also obviously been putting off posting it but had to because the podcast was coming out. She knows it was her fault about the surgery, much as she half heartedly tries to blame the medical professionals again in her post. I think she didn’t want to post the news so close to her international child free holiday where she was living her best life posting things like ‘happiest here’ on a beach miles from her children. It’s a bit jarring.
I’ll never understand why a 60% chance of a good outcome wasn’t worth the risk for Erin until it was too late. Surely 60% is better than no chance? In her old posts about the surgery she seemed very worried about things like Luella not having a symmetrical smile any more, that one side of her body wouldn’t be as strong as the other. But without surgery, she’ll never be able to self-feed, walk, talk etc. That’s a trade off that I would certainly have risked. Another poster mentioned above that she didn’t seem to want the surgery because it would leave Lulu still disabled, and Erin only wants a cure that would have made her ‘perfect’, I think this is spot on. I’m heartbroken for Lulu and hope medications can help her life the best life possible
It’s all about Erin and how it affects her. In the podcast they even listed how it affected Erin’s, Dave and Ts lives ahead of Luella’s… but they chose to have Tom knowing Lu’s condition and prognosis. So doesn’t feel right to complain about how it affects Tom when they chose to bring Tom into the world after knowing all this….
And they have already admitted they would have chosen to be child free if they knew they were going to have a child with epilepsy… yet they still went and had another child.
And they have already admitted they would have chosen to be child free if they knew they were going to have a child with epilepsy… yet they still went and had another child.
In an article I posted it was an 80% chance of a successful outcome. So my assumption was successful meaning Luella being seizure free?. It’s actually heartbreaking that her whole brain is now effected and surgery isn’t on the cards anymore.I read Erin’s posts and listened to the podcast. The podcast didn’t say anything particularly interesting, it was heartbreaking to hear how bad things are for their family. I really feel for all of them.
I found that her insta post is all about her and her feelings and how hard it is for her. What about Luella? She’s barely mentioned, in a post that basically states that there is now no hope of treatment for her.
She had also obviously been putting off posting it but had to because the podcast was coming out. She knows it was her fault about the surgery, much as she half heartedly tries to blame the medical professionals again in her post. I think she didn’t want to post the news so close to her international child free holiday where she was living her best life posting things like ‘happiest here’ on a beach miles from her children. It’s a bit jarring.
I’ll never understand why a 60% chance of a good outcome wasn’t worth the risk for Erin until it was too late. Surely 60% is better than no chance? In her old posts about the surgery she seemed very worried about things like Luella not having a symmetrical smile any more, that one side of her body wouldn’t be as strong as the other. But without surgery, she’ll never be able to self-feed, walk, talk etc. That’s a trade off that I would certainly have risked. Another poster mentioned above that she didn’t seem to want the surgery because it would leave Lulu still disabled, and Erin only wants a cure that would have made her ‘perfect’, I think this is spot on. I’m heartbroken for Lulu and hope medications can help her life the best life possible
Sounds like it was a choice between - surgery- half a brain, likely deficits, lots of therapy - Lu would be "disabled"... Or maybe there would be a miracle cure out there potentially. I feel like the thought process is understandable, employing magical thinking - hoping it would manifest an outcome... Lots of people do this, especially when it comes to things like people in comas, or not wanting to turn life support off. Generally medicine and doctors are sort of much further down the thought process and patients and families are back thinking the choices are much simpler- or that someone's health can be restored/or they will be cured completely - when medicine is talking about the 'lesser of two evils'.
When her own mother has already given up on her 
Erin only ever talks about all the things Lu 'can't' do. It's now even progressed to telling everyone that Lu will NEVER do these things! Never walk, never talk, never self-feed (as if those are the only qualities of a life worth living). Lu will absolutely walk, even if it is always with the assistance of a walker. She will absolutely 'talk', though it might be via picture cards, a speech-generating device or eye-gaze technology. & she will no doubt self-feed, too, though probably not with cutlery or with table manners suited to fine dining. If Lu will 'never' do any of these things, why keep working on them via therapy?
Lu isn't even four years old. To already define her completely by her disability and all the things she cannot do (yet) is so sad to me.
Erin only ever talks about all the things Lu 'can't' do. It's now even progressed to telling everyone that Lu will NEVER do these things! Never walk, never talk, never self-feed (as if those are the only qualities of a life worth living). Lu will absolutely walk, even if it is always with the assistance of a walker. She will absolutely 'talk', though it might be via picture cards, a speech-generating device or eye-gaze technology. & she will no doubt self-feed, too, though probably not with cutlery or with table manners suited to fine dining. If Lu will 'never' do any of these things, why keep working on them via therapy?
Lu isn't even four years old. To already define her completely by her disability and all the things she cannot do (yet) is so sad to me.
You’ve put it very well. It’s so focused on how she won’t be like other kids, there’s no celebration for the things that make Luella unique and lovable. The fact that Erin says she will never get over it means Luella will always have her biggest “cheerleader” looking at her like she’s not enough. I follow some amazing parents of children with disabilities who focus so much on the great things about their kids. No doubt there’s challenges, heartache and tough days but what does your life look like and that of your child when you only focus on them.When her own mother has already given up on her
Erin only ever talks about all the things Lu 'can't' do. It's now even progressed to telling everyone that Lu will NEVER do these things! Never walk, never talk, never self-feed (as if those are the only qualities of a life worth living). Lu will absolutely walk, even if it is always with the assistance of a walker. She will absolutely 'talk', though it might be via picture cards, a speech-generating device or eye-gaze technology. & she will no doubt self-feed, too, though probably not with cutlery or with table manners suited to fine dining. If Lu will 'never' do any of these things, why keep working on them via therapy?
Lu isn't even four years old. To already define her completely by her disability and all the things she cannot do (yet) is so sad to me.
The glimpses we see from therapy, Lulu is doing so well!! She such a determined little girl and she has achieved so much. I hate how it’s always framed so negatively.
Agree. The sit to stand movement and testing walkers is great progress.
I think @Moomin_mama is spot on that Erin has been fixated on a cure. And anything “less” is not enough as L will still be disabled.
I acknowledge the pain and guilty Erin must be feeling. But her dramatic language choices always make me angry. I bet she sits there googling synonyms. “Barbaric” yeah ok hun I think you mean “in denial about L prognosis” or “indecisive” or “thinking I knew better than specialists”
. The timing of the post to go with the podcast release was ick. And the nice bright posts about L today feel more like a show for her followers to tell her what a great mum she is. I also note none of the old crew have really commented on her post.
- Status