That was a really hard post to read.
i know i’ve been harsh in my comments about Erin in the past. But that’s really bleeping tough.
Anyone with a shadow of a heart would feel her words there and really feel so distressed for her- and Luella and their family. Especially poor Luella. I doubt surgery was ever going to fix it, but Erin has been looking under every rock for a magical cure that was never going to happen. Epilepsy sucks.
I have thought that She has seemed brighter since their holiday, it’s been nice to see, and it does seem genuine. The post the other day on her stories she seemed to be having a really good day with her family (and no Chrystal either!) Big for her.
Although she’s absolutely berating herself and that post is a tiny glimpse into what she must think and feel on a daily basis, i genuinely hope that now this is off the table, Erin is able - finally - to find some peace and is able to at least become comfortable and acquainted with their reality and focus on the things that they can control. for far too long she has Resisted reality and let anger and lack of control consume her. I hope now this is the final call, that she can get the proper help she needs, let this part go and focus on enjoying her beautiful daughter, who despite her huge challenges is still an incredible little human and not something to try and “fix”.
The disability community is always waiting and ready to catch parents when they need it. So i hope she has some real shifts in her perspective moving forward, because it’s the ableism and angry entitlement that isn’t well tolerated.
Life’s much better when you simply accept the (crappy) reality and get acquainted with it.