What I find unforgiveable is that it feels like they are actually using the fact that SA is a member of the public and so wouldn't necessarily know the rules around ethics and consent to wriggle out of acting. This means they are doing the same as JT. Even if they believe that consent was given---which is hard enough to accept, given the nature of how that was relayed, ie SA saying it in an email--that consent was only given to a blog. Even when consent is fully granted and proof exists, ie a signed consent form, ethics allow for consent to be withdrawn for future publications. Are they actually saying that a professional owns your data for the rest of their lives and you can't ask for them to stop using it, ever??? That will have 'epic' consequences for the profession. Who would participate in research if that is the deal? I note they don't appear to have responded to professionals who have raised these issues, ie people who DO know the ins and outs of ethics.