Thank you for posting that update, although it was a tough read..... I feel sick that she literally hasn't any other options - how IS that possible in 2024?
I wish I could give her a massive hug..... 
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I wish I could give her a massive hug..... 
so sad, thanks for explaining to me x x
It blows my mind that someone like Lizzie who is actually pretty well in herself i,e isn’t in and out of hospital like bowel babe / NNL constantly, seems to live a fairly ‘normal’ life, can just hit the end of the road like this and then that’s it? She seems like she’s so strong physically still I just can’t get my head around it. So crappy
It is. It is hard hearing them comment on outliving their prognosis, and the impact that has had on her psyche, only to be hit with such a hard barrier of the lack of new viable treatment options.
It absolutely sucks.
I have been another fan of her indomitable, indefatigable, unwavering and unapologetic spirit.
Such sad news to read from both Lizzie and Amy. Cancer is tit.... end of!
I see a lot of this happening. Such harsh treatments where they aim to kill the cancer cells affect the heart meaning when that treatment can't help your limited to what you can have next because the heart has been damaged by the chemo!
I see a lot of this happening. Such harsh treatments where they aim to kill the cancer cells affect the heart meaning when that treatment can't help your limited to what you can have next because the heart has been damaged by the chemo!
We can only hope things are different in the future
You'd think it would be different now! With new medications coming out and research!We can only hope things are different in the future
I hope some miracle pops up for Lizzi. It must be utterly terrifying to be facing the end of your life because treatments have run out. Knowing you're leaving your babies.
Always. Even now she’s having to fight for stuff whilst others, rightly, have been offered a lot more information/tests.
That's the awful thing about Cancer knowing that in yourself you feel well but there is nothing else you are able to receive and eventually will take over your body x
Lizzie really reminds me of Emily Hayward. Physically fit (given the circumstances), with so much spirit and determination, but just out of treatment options. I hope her current chemo can keep the progression slow enough to allow another treatment or trial to become available, and that her oncologist is willing to fight for her too.
I don't know how long this has been the case but Lizzie's insta is public again now. So sad seeing her stories. She just seems exasperated. She's doing everything she can but in all honesty, no one seems arsed. Not her oncologist. Not the Marsden. Not the trials. I hope she can find a targeted therapy or that they will allow her to get her heart ablated (not sure what that means tbh). Really hoping for the best for her.
Loved Emily Hayward, genuinely cried when she passed away & I never do that usually. She was such a vibrant soul many could learn from her example. Im glad she’s not forgotten
She made it public today I think, so people could share her stories.
I know this is maybe strange but I think her and Emily’s friend are in a relationship, but if she’s happy that’s all that matters
My husband found himself in this situation at the start of last year. Out of treatment options and damage to his heart. The NHS couldn't fund any further treatments. Due to him being in his early 30s with pretty good performance status the very best option was turning to medical trials. Sadly and very unexpectedly he died with a heart problem while waiting to hear about the trial he had applied for.
I feel very sorry for Liz because she is youngish with young children and will have a good performance score/performance status, but sadly NHS have very strict rules around how much treatment can be offered. Lizzie isn't alone, thousands of others have found themselves in the same situation, are in the same situation or will find themselves in the same situation.
Lizzie's best hope is getting a referral to the Marsden or the Christie and searching all UK trial databases.
I feel very sorry for Liz because she is youngish with young children and will have a good performance score/performance status, but sadly NHS have very strict rules around how much treatment can be offered. Lizzie isn't alone, thousands of others have found themselves in the same situation, are in the same situation or will find themselves in the same situation.
Lizzie's best hope is getting a referral to the Marsden or the Christie and searching all UK trial databases.
OMG Saydee, I am so sorry for your loss, I can't even imagine.
I really hope I cause noone offence with this replyThank you for posting that update, although it was a tough read..... I feel sick that she literally hasn't any other options - how IS that possible in 2024?
I say this as someone who is deal with mutiple chronic illnesses...11 different meds a day
Hospitals..specialists ..doctors..
The medical field...even medical professionals are meant to see everyone as someone worth the time, money and effort of helping and saving..
But ....that's not how it is
It's not how it is for people who can't be cured or cured easily..
I'm a woman and I have been treated like an absolute waste of time
Drs don't want me as a patient because it's too hard to manage all my issues..
They just want the easily managed..in and out cases
I've had to fight so hard to be heard and respected and there are times I've cried and cried because it feels like my life as a human being...as a mother..a daughter ..a sister.. a friend..isn't worth much because I'm sick..
And in the eyes of the decision makers
Who hold the government's purse strings..
Who are you going to give your money to?
Those who can be cured and can then go on and work and pay taxes
Or those who cannot be cured and will never recover
And who cannot work..
People who are ill are still in 2024 viewed as less than
And a waste of time,energy and resources.
We aren't all equal
We should be
But we aren't.
Until that changes
Patients who are terminally or chronically ill
Will continue to fight to be listened to..to be respected ..to be valued..
For more treatments..
Sadly...I don't see that happening anytime soon
As what rules is the all mighty dollar and budgets
Her wife?
I know life is supposed to be about quality rather than quantity. But my mum died within 2 weeks of her relapse of cancer because 'they didn't think her kidneys would withstand more chemo'. In my eyes (and I'm a nurse), if she's imminently dying anyway just TRY. she either lives with poor kidneys or the alternative was to die anyway. I also understand resources are not endless, but give Lizzie chemo!!!
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