It actually kills me. I've been following since the beginning and Erin has a long history of going against medical advice. Even when Luella was a baby and in status she instead chose to believe that Luella having tonic clonic seizures was due to the anti-epileptics they gave her to STOP her being in status, rather than the fact that this was a natural progression of the state she was in. Multiple doctors have been recommending a hemispherectomy because she's so resistant to treatment, then finally Erin agrees to this but backs out at the last second (after $37k is raised on go fund me to help them pay for a nurse to give Luella around the clock care). She didn't want to go through with the surgery because she thought Luella was improving and she wouldn't be able to cope with the pregnancy/postpartum and support Lu too. Then, surprise, she hasn't improved. Now she has taken her off her medication because "we thought that pharma med might be causing more seizures and making things worse". Because it makes soo much more sense to reduce her meds to see if its causing the seizures to worsen, rather than follow medical advice and increase the dose
![Face with rolling eyes :rolling_eyes: 🙄](https://cdn.jsdelivr.net/gh/joypixels/emoji-assets@5.0/png/64/1f644.png)
. *Surprise* turns out she actually needs that med.
I just keep holding out hope Luella will get her hemispherectomy and then improve in leaps.