I've worked in oncology research for over 15 years....this trial is over 10 years old and is the basis for current practice - that's why trials are done- to hopefully improve patient outcomes and try new approaches/ treatments-
yes, that is why I try not to be angry in my remarks to anyone here or to her. It *is* tragic.
Well, I am only one person, so I can only create one collection at a time...Do you also have bullet journals, saucepans and cozy slippers?
Great points! From now on, only cancer vloggers whose journey is complete.
Exactly! This one was interesting.Quote a few NEGATIVE COMMENTS just added to the video, what did she expect
About listening & not taking advice
Do you have it in black? For funeral season;
I guess the latter … Who knows the surgeon didn’t say much according to Tiffany …
in a 9 yr old vid she says she cant eat spicy food. Sound like crohns or ulcerative colitis. Who knows tho.
I believe you have hit the nail on the head now! She is enrolled in this clinical trial but is being deliberately vague and confusing about it. She must have had at least a partial improvement so she is on the 8 week repeat of scans side of the protocol. Her surgeon is heavily involved with research and lecturing and likely this is his main interest of his practice. If she didn’t have at least a partial response or no visible tumour they go right into surgery. He told her that he coukd offer surgery instead but clearly he thinks she may have a better outcome or extended life with this protocol. The issue is IT IS A RESEARCH PROJECT. Not sure how many have been enrolled thus far and how good their outcomes are vs the control groups which are thise that actually go right to surgery after their CRT IS DONE. She chooses to try and avoid the surgery at all costs even though tnis is emerging research. It has not been proven as yet I believe. Its a crap shoot imo and at her late stage I am skeptical. Its her life, its her choice but be frank. Tell viewers you chose this path and they will support you. Dont try and evade what may be a good choice for you and dont try and hide that you have had some good news and what that news actually is. Lets see if she gets more CRT or surgery after her next meeting with the surgeon. We will then know what her response likely was. If more growth or no rebression then the chart goes to surgery. Its a MEDICAL MYSTERY TOUR Snakes and Ladders Edition! Im going to ask her plainly if she is on this research protocol. Of course she wont admit it.Just leaving this here for all those outside the UK who seem to think that The RM is some back street clinicBased of Tiffany’s vlogs.
I don't think they remove everything automatically. Doctors usually take individualized approach. I think in her case bladder, ureters, urethra, external genitalia -vulva would remain intact. It depends if the cancer has reached these organs. What I deducated from her videos that her cancer has reached posterior vaginal wall and uterus. Yes, she would have stoma. Cannot bear children but luckly she freezed her eggs.
It is the gift that keeps on giving!
She is taking morphine for a considerable amount of time now. First it was because she suffered from pain from the radiotherapy, but that is also more than 2 months ago. Then she had very much pain from her first biopsy. So I think the morphine was a stayer in the end.
This was excellent! I just saw it a few minutes ago and took a screenshot to share here. I posted it in a reply to someone else before I read this!
I dont think the difference is in the quality but access/cost. For sure usa has the best medical centers, cutting edge treatment centers, best doctors but the question is can you afford it? You can go broke here if you get sick or have major accident and dont have the right insurance.the us has the top five best Cancer treatment and research centers in the world but okay sis. go off
this is why I now genuinely don't believe anything she says, too many things don't add up. Like the fact she made out she wasn't told it would be someone else carrying out her latest biopsies, that just wouldn't happen, unless the surgeon had an emergency which he obviously didn't since she spoke to him later on after she demanded to see him.
Message clear and taken. Thanks.
I think it’d depend where the new activity was cos they know that it’d take her longer to recover than she’d probably have time left depending..and they said she could likely be incurable so the surgery would basically screw up her quality of life for what?
I don't think so. She is stage 3. Still can be cured. But 2 months without therapy her condition might become worse. Or maybe she really had late nearly complete response to chemoradiation that is why they waited. Who knows. Aggressive biopsies were taken radiation damaged rectum, that can be one of the reason of the prolonged bleeding. Or the bleeding can be from cancer. Probably we would know soon.
I’m wondering if Matt has just said no to filming. He likely knows the full picture, notice she blogs late at night. May have had visited during regular hours.
