who knows where else the cancer has spread without anyone knowing?
Which is why patients in T's situation have scans every 12 weeks, and its why surgeons/oncologists are hesitant to discuss remission being free of cancer.
A scan may suggest 'No Evidence of disease' but that only means ' No Evidence of VISIBLE disease'
@Sheba
She said she didn't want to cry so did not mention her bladder too much.
here is the transcript from the video
Download0:00
hi my loving Tiffany thanks family how
0:03
are you all I'm so so sorry for not
0:06
posting a video in a really really long
0:09
time
0:10
um this is the first time that I'm
0:12
actually starting this video
0:15
um without crying I've tried to film
0:16
this a couple of times and
0:18
I think I just wasn't ready I I just
0:21
didn't feel ready today I woke up and I
0:24
just feel like I can't keep blocking
0:27
everyone out so I haven't talked to
0:30
anyone I haven't talked to any of my
0:31
friends I haven't talked to any of my
0:32
family I haven't talked to any of the
0:33
Tiffany thinks family I've just kind of
0:36
been
0:37
I've kind of been very low and you guys
0:40
know what I'm like normally I'm very
0:42
good at blocking things out and um
0:46
as soon as I got home
0:49
so I was in the hospital for a very long
0:51
time less than three weeks which I'm
0:54
happy about because initially they were
0:56
saying I'll be in hospital three to four
0:58
weeks so the fact that I got home in
1:00
less than three weeks was amazing but
1:03
then as soon as I got home
1:05
I just went downhill mentally I just it
1:09
hit me that I wasn't able to do
1:12
much I'm still kind of sitting on my
1:15
side so what the plan was for me to what
1:19
I did was I filmed little Clips in the
1:21
hospital and I thought I could make one
1:23
big video so like a an hour long or two
1:26
hour long video of my experience
1:29
but I just can't sit up so right now how
1:32
I'm sitting is I'm sitting on a big
1:34
pillow on my side and I can do that for
1:38
20 minutes and then I have to kind of
1:40
lie down back on my side so it's quite
1:43
difficult for me to edit a video so what
1:46
I thought I could do is if this is okay
1:48
with you I thought I could um you know
1:51
the clips that I filmed in the hospital
1:53
I thought I could just post those so
1:57
um it won't be an hour long it just
1:59
might be like 10 minutes or 15 minutes
2:01
or 20 minute videos
2:04
um so that you guys would see what it
2:06
was like in hospital I've always said
2:09
this channel isn't an educational
2:11
channel channel it's just more my
2:14
experience and everyone's cancer journey
2:17
is different I always say this
2:19
everyone's cancer journey is different
2:20
even the doctors say this they always
2:23
say we can say it might be four weeks it
2:25
might be three weeks it might be three
2:27
to four weeks it might be longer
2:30
um so everyone is different and I came
2:32
home earlier than I expected and I'm so
2:36
grateful that I I can cover at home I've
2:39
had nurses come home and I've had
2:41
appointments and so I've been filming
2:44
little clips and what I thought I should
2:46
do is just kind of post them so I will
2:49
try and post them Tuesday Thursday and
2:51
Sundays I'm not going to be strict with
2:54
the schedule you guys know like some
2:56
days I just don't want to get out of bed
2:58
I'm just crying all the time and there's
3:01
days where I feel like today and I feel
3:03
like yep I can sit down for 20 30
3:05
minutes and try and edit a video so
3:07
everything I put out will be all kind of
3:10
from when I was in the hospital so
3:13
everything's pre-recorded and initially
3:15
I did want to put out a whole big long
3:17
video it's just I'm unable to sit up for
3:20
too long so it's just going to be little
3:22
short videos I hope that's okay
3:25
um
3:26
I just feel like it is unfair for me not
3:30
to show you kind of my experience in the
3:32
hospital because I took you through
3:35
everything with chemotherapy with
3:38
radiotherapy with my C diff and I just
3:41
feel like with the surgery
3:43
I wasn't physically able to kind of edit
3:46
I was able to pick up my camera which I
3:49
wasn't sure I would be able to do
3:51
because I thought
3:53
I I don't like I just thought I wouldn't
3:55
think about it but even when I was
3:57
highly medicated and even when
4:01
like I don't think I filmed every single
4:03
day I don't know I haven't looked at the
4:05
clips and I know most of the time I was
4:07
in the hospital I was very highly
4:09
medicated but I just remember picking up
4:12
the camera here and there and
4:15
um so I'll kind of I'll figure it out
4:17
but I just wanted to come on here and
4:18
say I am okay I am recovering
4:22
um in regards to my surgery
4:25
I haven't really told you what I had
4:28
done I'm gonna give you kind of a quick
4:30
summary of my surgery and then maybe
4:32
after you guys watch all the clips if
4:36
you have any questions maybe I can do a
4:38
q a right at the end when I'm able to
4:41
sit up for longer
4:44
um I had a pelvic accenteration and I
4:47
didn't get a colostomy I got an
4:49
ileostomy only because when they looked
4:52
at my scan so my plan so I was mentally
4:55
preparing for a colostomy bag so um
4:59
but when they looked at the scans and
5:02
when they kind of opened me up they
5:04
realized my whole large colon was just
5:07
kind of full of cancer cells and
5:10
um the scans kind of showed that as well
5:12
so they had to remove the whole colon
5:16
um and just leave the small colon in and
5:18
so I've got an ileostomy they managed to
5:21
save my bladder which is amazing because
5:23
I only have one bag but the bladder is
5:27
still not okay like it's you I don't
5:30
want to talk about it without crying
5:33
so the bladder
5:35
um even though I don't have a bag I'm
5:36
still kind of trying to cope with my
5:39
bladder situation
5:41
um
5:42
but yeah it's all kind of a lot to talk
5:44
about right now because it just feels
5:46
fairly new it all it's real now like you
5:49
know I think before when I was talking
5:51
about it
5:52
it didn't feel real I knew it was going
5:54
to happen but it didn't feel real
5:55
whereas now it's all happened it's kind
5:58
of like not a shock it just feels like I
6:00
need to settle into this new body into
6:03
this new life into this
6:06
new way of living and
6:09
it has been difficult like it's been
6:12
um it's been very difficult
6:15
I would say you know I had chemotherapy
6:17
radiotherapy and I've had
6:19
surgery I would say each
6:22
has like each has been very very
6:24
difficult
6:25
but the plan was always to have surgery
6:28
to have this removed so
6:30
um
6:32
yeah I feel like I'm not really ready to
6:35
talk about it a lot because I'm still
6:38
trying to process everything and I feel
6:40
like in a couple of weeks I might be
6:43
better and I might feel like I'm ready
6:45
to talk
6:47
um
6:48
but right now I feel like if you want to
6:50
do any research you can Google you can
6:52
find out what my surgery involves and
6:57
but for now I just feel like I really
6:59
really miss you guys I really miss my
7:01
family I miss my friends I miss
7:04
I just miss doing the things that I love
7:07
and
7:08
um just simple things like making a cup
7:10
of tea
7:13
has been difficult so
7:15
um
7:17
I am so so so sorry for
7:20
not talking to you and for
7:25
doing a cry
7:26
like you guys have helped me through
7:29
every aspect this past kind of year if
7:32
you've helped me so so so much since I
7:35
posted my cancer video even way before I
7:37
had cancer so many of you have kind of
7:40
helped me
7:41
um through life and I truly truly
7:44
appreciate you all I'm just so sorry
7:46
because I feel like
7:49
I didn't want to talk to anyone I got to
7:52
a point where
7:54
if my friends would call me I wouldn't
7:55
pick up I would kind of not go on
7:57
Instagram I would not go on YouTube I
8:00
would kind of just I just wanted to be
8:02
on my own and
8:04
um
8:06
yeah it's it's I don't know I'm
8:10
normally when things happen I kind of
8:13
block things out and I'll do something
8:14
I'll leave the house I go and see
8:16
someone but this time it just felt
8:18
different it felt obviously I can't do
8:20
the things
8:21
I want to do right now and I know all of
8:24
this is going to get easier
8:26
um
8:26
I just wanted to apologize for leaving
8:29
you
8:31
um I kind of I did an update not really
8:33
an update but I wanted to let you know
8:35
that I'm at home so I posted it on
8:37
Instagram and Facebook and
8:40
um
8:42
I just yeah I feel like
8:47
I feel like I still need some time and
8:49
that's why I thought I'll just rather
8:52
than kind of shutting off completely
8:55
even if I lie on my side and edit like I
8:58
can lie on my outside and edit and I can
9:01
sit up for a little while so even if I
9:04
get some videos out for you you'll
9:06
understand what I've kind of gone
9:07
through
9:09
um
9:10
because it's hard to explain it's really
9:12
hard to explain that I went into ICU and
9:16
I was expected to kind of stay in the
9:18
intensive care for like two days and
9:20
then I ended up staying around four days
9:23
um
9:24
just because they needed to get the
9:26
pain right I was in pain I I
9:29
tried to stand up quite quickly and
9:31
there was a lot going on
9:33
um I went to one Ward and then I got
9:35
moved to another Ward and so I did
9:39
manage to get those clips and I I think
9:41
right now
9:42
if I upload those videos you will still
9:45
be part of my journey
9:47
um but it's all kind of pre-recorded so
9:51
I just want you to know that I'm
9:52
recovering at home I am okay
9:55
um I love you all so much honestly thank
9:57
you for your prayers thank you for your
9:59
love
9:59
I don't think
10:01
like I don't think I could have done any
10:03
of this without your support and
10:06
rather than shutting off I think the
10:09
next step for me
10:10
is to edit the videos
10:12
to get them out for you and just to
10:15
slowly kind of get back into a routine
10:20
um and I'm not going to push myself so
10:22
let's say on Tuesday if you don't get a
10:24
video out it's probably because I wasn't
10:26
well enough to edit and so the next
10:28
video will be Thursday and if that video
10:30
is not out it'll be on a Sunday okay but
10:32
you know what I'm like I really I really
10:35
like having a routine I really like
10:36
having a structure so and I just really
10:39
miss you I can't explain like just
10:41
talking to you and also everyone that
10:45
sent me a card in the PO box thank you
10:47
thank you thank you and I'mma Matt and I
10:50
uh we'd sit in the evenings and we read
10:52
the cards and honestly I truly truly
10:54
appreciate all of you I'm I'm so so so
10:57
lucky I know I'm the luckiest girl I'm
11:00
so blessed and
11:02
um just want to say thank you
11:04
hold on
11:06
yeah bum
11:10
I just had to reposition my bottom
11:12
because it's on like the side I know I
11:15
should have done this update sooner it's
11:16
just any time I turn the camera on I
11:19
would just cry and I just wasn't ready
11:21
you know I just wasn't ready and
11:24
I am
11:27
this surgery is
11:30
crazy it's the craziest
11:32
I've ever heard I didn't even know
11:34
things like this was ever possible
11:37
like to remove this remove that take
11:40
this from that area and put it in this
11:41
area it's just
11:43
it doesn't feel real like I can't
11:46
believe
11:47
doctors and I I was so lucky and so so
11:50
blessed to have the best surgeons on
11:52
board
11:54
um
11:55
and we'll just wait for results now I
11:58
guess um
11:59
that's all we can do
12:01
but I know you know my main surgeon he
12:04
said he was always going to treat me
12:06
like family and I genuinely feel like he
12:09
he has been treating me like family and
12:12
I'm so so so so lucky to have the best
12:16
care and who knows what's gonna happen
12:19
but all I do know is that everyone tried
12:21
their hardest the doctors and nurses I
12:24
all of us have tried our hardest so
12:29
we'll just leave it to God now and
12:33
let's let's see let's see what happens
12:35
next but
12:36
for now the next few videos I don't know
12:39
how many videos I feel like I can't
12:41
remember
12:43
how much I filmed Everything feels like
12:45
a bit of a blur but
12:48
what I will do is maybe in the bottom in
12:50
the description box I'll I'll put like
12:52
in Little Stars or I'll write down
12:54
pre-recorded
12:57
um so you know that it's all been
12:59
pre-recorded
13:04
okay what I'm gonna do now I feel really
13:06
good already just kind of talking to you
13:08
I already feel instantly better I'm
13:10
gonna reply back to all my friends and
13:12
my family now
13:14
um
13:15
yeah because I feel like today is the
13:16
day that I just want to tell I just want
13:19
to say sorry like I'm so sorry that I
13:22
feel like I've been selfish and I
13:24
haven't talked to anyone I just kind of
13:27
being in my own thoughts in my own world
13:30
and trying to adapt this new life and
13:32
new body a new
13:34
everything that's new for me so it's
13:36
just like I feel like I've put myself
13:38
first and sometimes I think you know
13:40
what that's the best thing to do to put
13:42
yourself first because when I feel good
13:44
I can give you all the best version of
13:47
myself
13:48
um
13:50
but I feel really really bad that
13:52
I've left it too long so I just feel
13:54
like I need to reply back to all my
13:56
friends my family and
13:59
to you all as well I
14:03
I think if you knew the extent of the
14:06
surgery and I know I haven't explained
14:08
it so if you want you can like do your
14:09
own research if you knew the extent
14:11
you'd understand why
14:14
it's
14:15
why I needed this time to learn to adapt
14:19
to understand and it's not easy you know
14:22
you're learning to adapt with this
14:24
physical change but then mentally you've
14:26
got a understand what's going on and
14:30
yeah it's not it's not easy I never I
14:34
never ever said it was easy cancer it's
14:37
not easy and I always feel like if you
14:39
know anyone with any health condition
14:42
not just cancer just any health
14:44
condition reach out to them and even if
14:46
they don't reply
14:49
um they will they will reply in their
14:50
own time but it's so nice to know that
14:53
all my friends family and you all
14:55
are kind of here waiting for me to come
14:58
back and
15:00
that in itself is just like getting me
15:03
out of bed and thinking yes Tiffany you
15:05
need to do this and you've got so many
15:07
people that
15:08
love you and
15:12
and I just feel like you know
15:15
everything that we're all dealing with
15:17
in life is horrible like we all have
15:19
these battles we have to fight
15:22
um because that's just life we all have
15:25
these battles that are thrown at us and
15:27
we have to deal with so let's all be
15:30
kind to each other because
15:33
we're all dealing with things so like we
15:35
have to be nice to each other I think
15:37
that's the most important in life just
15:39
be kind and just because you don't know
15:42
what anyone's going through like someone
15:44
that doesn't know me could look at me
15:46
and think oh she's fine but you know you
15:49
just don't know everyone is dealing with
15:51
some sort of battle in life and we all
15:54
have to
15:55
remember that
15:57
just remember that because
16:01
life is tough life is tough
16:04
I love you all a lot a lot a lot thank
16:07
you thank you so much for
16:09
everything honestly I can't thank you
16:12
enough hopefully there will be a video
16:14
for you on Tuesday Thursday and Sunday
16:17
at 6 00 p.m like I used to do
16:21
um
16:22
but if there's a day missing please
16:23
don't worry I love you a lot a lot a lot
16:26
thank you for watching and thank you for
16:28
being part of my Tiffany thinks family I
16:31
feel like we're growing and growing
16:32
every single day and
16:34
um
16:35
thank you thank you goodbye
16:42
[Music]