I take 40mg propanolol as and when I need it usually, so they'd likely just tell me to take that anyway. But i'll see what the GP says, and what the next test results say!
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Hypothyroidism - diagnosed at 15 (now 29). Been on levothyroxine since I was diagnosed but have never felt like it’s made a difference. GPs don’t seem to give a tit and as long as they’re satisfied with the blood results then that’s good enough for them. I’ve considered going private but it’s just too expensive atm.
The exhaustion and brain fog is the worst. I can easily sleep for 12+ hours a night (and would if I didn’t have to go to work
). I used to be fairly intelligent, nothing to rave about but I did well in school up until I was diagnosed then everything took a nosedive. Still affecting me now as I’m about 6 months behind on my college work and every time I sit down and try to get something done my brain just goes blank and can’t string a sentence together or concentrate. I’ve been in tears over not being able to focus.
Always have cold hands and feet even when I’m warm. Dry skin, dry eyes, brittle hair and nails, heart palpitations, low mood/mood swings, raging irritability, consistently crave sugar, bad circulation - get frequent cramps and numb/tingly hands and feet. Was always underweight and struggled to gain no matter what I was eating, now the weight has decided it wants to stick around and am no longer a bottomless pit
Also have PCOS on top of all that plus cervical issues. I wonder what it’s like to be illness-free
The exhaustion and brain fog is the worst. I can easily sleep for 12+ hours a night (and would if I didn’t have to go to work
). I used to be fairly intelligent, nothing to rave about but I did well in school up until I was diagnosed then everything took a nosedive. Still affecting me now as I’m about 6 months behind on my college work and every time I sit down and try to get something done my brain just goes blank and can’t string a sentence together or concentrate. I’ve been in tears over not being able to focus.Always have cold hands and feet even when I’m warm. Dry skin, dry eyes, brittle hair and nails, heart palpitations, low mood/mood swings, raging irritability, consistently crave sugar, bad circulation - get frequent cramps and numb/tingly hands and feet. Was always underweight and struggled to gain no matter what I was eating, now the weight has decided it wants to stick around and am no longer a bottomless pit
Also have PCOS on top of all that plus cervical issues. I wonder what it’s like to be illness-free
Thank you. I’m due for another blood test soon so I might ask if I can be referred to see an Endocrinologist. I really wish thyroid conditions were taken more seriously
Hi xbxbx. I'm so sorry you are struggling like this. I too feel like the "numbers" on your blood tests aren't taken overly seriously and even if you do have symptoms they need to be severe. I've been on medication for mine for 10 years now and repeatedly get told my numbers are borderline (they've have been changing over recent years, dr has admitted this) - I still have the dry skin and hair I had when I was originally told I had hypothyroidism and my weight although under control is higher than it ordinarily would have been. Despite this, I've repeatedly been told my doctor won't budge my medication unless I decide I want to get pregnant - then he says we'd need to do a more thorough review. I too would love referral to a specialist. My mother sees the endocrinologist regularly for hers (although her issues are hyper rather than hypo) and has had much more in depth discussions around her thyroid health.Hypothyroidism - diagnosed at 15 (now 29). Been on levothyroxine since I was diagnosed but have never felt like it’s made a difference. GPs don’t seem to give a tit and as long as they’re satisfied with the blood results then that’s good enough for them. I’ve considered going private but it’s just too expensive atm.
The exhaustion and brain fog is the worst. I can easily sleep for 12+ hours a night (and would if I didn’t have to go to work
Always have cold hands and feet even when I’m warm. Dry skin, dry eyes, brittle hair and nails, heart palpitations, low mood/mood swings, raging irritability, consistently crave sugar, bad circulation - get frequent cramps and numb/tingly hands and feet. Was always underweight and struggled to gain no matter what I was eating, now the weight has decided it wants to stick around and am no longer a bottomless pit
Also have PCOS on top of all that plus cervical issues. I wonder what it’s like to be illness-free
They only refer you if you're hyper as there's more indepth investigations take place my mums had it for years and has never once been referred to endo .
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Yes, I feel like the blood results should only be an indicator of what’s going on and they should be looking at the overall picture. Blood results say X, patient symptoms say Y, and then managing it from there. It seems like a lot of people don’t realise how debilitating it can actually be unless you have thyroid problems yourself. I have friends and colleagues that think it just means you’re a little bit tired and gain weight easily
. I work for the NHS and I’m tempted to just head along to endo and speak to someone to see if its even worth asking for a referral.I follow a girl on Tiktok who also has hypo and PCOS and manages it purely by changing her diet. She’s no longer on any medication for anything. I completely admire her dedication but it seems like such a huge lifestyle change as she watches every single she eats and drinks. Her account is heal.with.fifi if anyone is interested!
I do think hyperthyroidism seems more complex - it can affect your eyes and stuff too can't it? I think it was my mums optician who originally suspected thats what she had. It also seems harder to control - hers has gone underactive a couple of times due to the meds.
Yes it is a really debilitating thing doctors seem to shrug it off and tell you to get on with it , my GP can't even treat me I have to wait for consultant care even though it can be weeks before they contact you .I have to use my own initiative between times as you're basically left to your own devices , have you thought about going private and see what they could offer .Yes, I feel like the blood results should only be an indicator of what’s going on and they should be looking at the overall picture. Blood results say X, patient symptoms say Y, and then managing it from there. It seems like a lot of people don’t realise how debilitating it can actually be unless you have thyroid problems yourself. I have friends and colleagues that think it just means you’re a little bit tired and gain weight easily
I follow a girl on Tiktok who also has hypo and PCOS and manages it purely by changing her diet. She’s no longer on any medication for anything. I completely admire her dedication but it seems like such a huge lifestyle change as she watches every single she eats and drinks. Her account is heal.with.fifi if anyone is interested!
Yes ! you have to get an ultrasound and MRI which isn't the most pleasant if you're claustrophobic
my eyesight is the first indicator there's something brewing ,even a cold, all linked to the immune system you see.are we the same person?? literally relate to everything but my weight has always been hard to shift. i'm 19 now and have a CFS diagnosis but after a bit of cbt it's literally just a label so still have to put up w the symptoms. even down to the PCOS and experience with school (went from 12 subjects to 3, 2hrs / day part time and did more gcses in outpatient hospital school). in all honesty some of my chronic pain / thyroid crossover symptoms have had me researching MS but i'm too scared to enquire w a doctor bc i feel like it'll be easily dismissed!Hypothyroidism - diagnosed at 15 (now 29). Been on levothyroxine since I was diagnosed but have never felt like it’s made a difference. GPs don’t seem to give a tit and as long as they’re satisfied with the blood results then that’s good enough for them. I’ve considered going private but it’s just too expensive atm.
The exhaustion and brain fog is the worst. I can easily sleep for 12+ hours a night (and would if I didn’t have to go to work
Always have cold hands and feet even when I’m warm. Dry skin, dry eyes, brittle hair and nails, heart palpitations, low mood/mood swings, raging irritability, consistently crave sugar, bad circulation - get frequent cramps and numb/tingly hands and feet. Was always underweight and struggled to gain no matter what I was eating, now the weight has decided it wants to stick around and am no longer a bottomless pit
Also have PCOS on top of all that plus cervical issues. I wonder what it’s like to be illness-free
Hoping someone with experience can help me here...
My partner and I have been struggling to conceive for a while and I've had this thought at the back of my mind about me possibly having an undractive thyroid. I had a blood test in 2020 and my serum TSH was 3.76. I don't really know what I'm looking for but I've read it should be under 2.5 in pregnancy. I'm going to contact my doctor anyway but is there a chance this is what's stopping me getting pregnant? I would say I have all the symptoms of an underactive thyroid.
My partner and I have been struggling to conceive for a while and I've had this thought at the back of my mind about me possibly having an undractive thyroid. I had a blood test in 2020 and my serum TSH was 3.76. I don't really know what I'm looking for but I've read it should be under 2.5 in pregnancy. I'm going to contact my doctor anyway but is there a chance this is what's stopping me getting pregnant? I would say I have all the symptoms of an underactive thyroid.
I'm not too sure but it might be borderline ? it does no harm to get it rechecked as it can be hard to pick up in some people and can take numerous bloodtests to establish .
I know my doctor mentioned needing to bring mine down if I wanted to conceive - but I think that was more due to pregnancy health rather than to actually conceiving (though I could be wrong!). I'd get in contact ASAP because it can take a while for them to start medicating, they like to check bloods repeatedly with 4/6 week intervals sometimes to get a solid baseline of your numbers.
I have an underactive thyroid and my level needed to be below 2.5 during pregnancy. My dose was increased and now I’ve had my baby, my dose has gone back to my original one. Definitely speak to the doctor about it as thyroid plays havoc with everything! I didn’t realise how much until I researched it myself
Got my latest results and my TSH has settled to within range apparently. It was 0.57 and now its 0.74 where their level started from 0.55 so it wasnt majorly out anyway (but T levels were ok?). She mentioned that it could be autoimmune thyroiditis? I feel like ive come away more confused
imo that sounds like hyperthyroidism? ik for me (with hashimoto's) the tsh is high and t4 is low so the signalling hormone works overtime to produce enough thyroxine, and if i'm reading it right yours is the opposite! p sure that would fall under graves disease or something similar where the body is attacking healthy cells.
disclaimer - not a doctor and i could v easily be wrong
also i think this site explains it better: https://www.healthline.com/health/subclinical-hyperthyroidism
Yeah, this is the thing, she said my levels showed as though a dose of thyroid medicatication was too high but im not on any! (I think the T levels were ok, i dont remember what she said about about them). I had postpartum thyroiditis 6yrs ago. Maybe its just a bit of a tit thyroid i have
it was slightly overactive but has no seemingly settled.She said it doesnt need treatment as long as it stays within range
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Me and my partner are currently going through the same. It is common that thyroid problems can stop you from ovulating so it’s definitely worth getting checked! Especially as the thyroid itself and medication involved can affect pregnancies. I’ve got an overactive thyroid and found out today we should put a pause on TTC due to high levels
Was it your consultant advised this ? there is medication available but has to be carefully monitored ,if it's an autoimmune condition that's causing your hyperthyroidism it actually goes away in pregnancy as your immune system dampens down .Me and my partner are currently going through the same. It is common that thyroid problems can stop you from ovulating so it’s definitely worth getting checked! Especially as the thyroid itself and medication involved can affect pregnancies. I’ve got an overactive thyroid and found out today we should put a pause on TTC due to high levels
Yeah it was, I’m on medication and was told about there being a different type of medication that would be given during pregnancy with thyroid problems. Oh really! My Drs have never actually told me what the cause of having it is