Debating going back on the implant, slightly suppressed TSH for thyroid cancer purposes. Anyone on the implant and it’s been fine, no failures?
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Not the implant but I take the combined pill with levothyroxine (for hypo though) and I've found it totally fine. Appreciate not the same but if you are worried you could speak to someone at your GPs
Hi everyone, bit of a long winded message but hope I can get advice. I have had underactive thyroid since 2012, always been between 50mg-75mg for my thyroxine. Since December I have dropped from 56kg to 49.5kg , my bloods were taking in January and shown I needed to up my medication from 75mg to 100mg, anyway I'll be complety transparent here as I feel I can't be to family, but I'm scared of taking my tablets incase I gain weight, is this what will happen, I have never always taken my tablets religiously - silly I know but I hate taking tablets and I always forget....since getting the results back I found if my readings required me to " up" my dosage , then why am I losing weight as opposed to gaining which is a symptom of underactive... I've always struggled with weight and become fixated on it and to not gain and lose, even though my BMI is now underweight. I have now found my throat has the " lump" and I struggle to swallow or feels like my throat is closing up which has been on and off for years with the swallowing but the lump is new, I went to the GP and I am being referred for an US, so I'm waiting for that, in the mean time can anyone advise if I was to take my Thyroxine would that bring my weight down or make me put it on... sorry for the post and please no judgement over I'm being silly for not taking it but I do struggle with body image. Thank you xx
If they’re looking to up your thyroxine it means your thyroid levels are too low so it should be that you’re gaining weight, if you’re losing weight and they’ve upped your dose it will mean you’ll drop even more weight , but it’s still important to keep levels as near normal as possible for other functions besides weight.Hopefully you’ll get your scan soon and they’ll be able to advise you better.
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I'm horrendous at taking my levothyroxine 🫣 i take it all times of day and after coffee etc, I'm rubbish lol. I used to be religious with it but since having two babies I barely ever remember.
Anyway, I basically have zero symptoms from my underactive thyroid but whether I'm taking my tablets properly or not has never affected my weight. I've always been around 58kg or so. Even after I had my first baby and my TSH was chilling at 25 🫣🫣
Good luck
Does anyone find they have some thyroid related symptoms but doctor isnt keen to budge medication? I've found my sleeping has become terrible in recent weeks and for even longer, I'm just not able to get warm at all, pretty much always cold. My TSH is usually always around 5 and doctor say that is a little high but normal but then says if I want to conceive a baby we'd need to adjust it (which is confusing).
Probably borderline? They won’t adjust in that instance…I don’t know how old you are but could it be perimenopause? That kicks in earlier than you think.
I'm 33 - so (hopefully) unlikely to be that. I think i'll bring it up with my doc if nothing improves and ask for bloods to be done again.
Perimenopause can occur up to a decade beforehand,thyroid disease can exacerbate it , hopefully it’s just the run of the mill abnormalities , personally I wouldn’t hang around if you do want children peri/ menopause can happen very quick.
I'm having thyroid completion surgery in a few days can anyone share their experiences of starting medication or what to expect in the first few weeks please?
I had the first half out nearly a decade ago which was straightforward and I didn't need any medication because I still had the other half.
How long does it take to titrate doses and stabilise your levels? Did your consultant listen to you if you said you felt unwell or was it just a case of you're in range so off you go?
I'm really worried that my body is used to running with borderline over activity and that I'll suddenly feel really unwell when that changes.
Do I need to warn my employer it could difficult or will I be ok? How quickly will I feel unwell if that's going to happen? Is it days or weeks?
I think I'm quite anxious. My thyroid has made me quite unwell in the past and although I'm glad the stupid big thing will be removed, I still have concerns about the future and my ability to function.
I had the first half out nearly a decade ago which was straightforward and I didn't need any medication because I still had the other half.
How long does it take to titrate doses and stabilise your levels? Did your consultant listen to you if you said you felt unwell or was it just a case of you're in range so off you go?
I'm really worried that my body is used to running with borderline over activity and that I'll suddenly feel really unwell when that changes.
Do I need to warn my employer it could difficult or will I be ok? How quickly will I feel unwell if that's going to happen? Is it days or weeks?
I think I'm quite anxious. My thyroid has made me quite unwell in the past and although I'm glad the stupid big thing will be removed, I still have concerns about the future and my ability to function.
I haven’t had surgery but I’ve been on block and replace therapy it wasn’t pleasant having having no thyroid hormones, it takes about 6 weeks for medication to build up according to my consultant…Good luck for your surgery x
I’m glad I found this thread. Just had a blood test and TSH is 0.32. It’s being retested in 2 weeks. The same thing happened in June this year and retest showed enough of a raise to just get me into ‘normal’ range. Does anyone have any advice or experience of this?
Your GP usually refers to endocrinology to see what’s causing it they’ll offer the appropriate treatment to keep it under control.
Thanks for replying- I do have symptoms too. I’m just concerned if the next blood test is ‘better’ I’ll be fobbed off again. Just have to wait and see but everything I’ve read about an underactive thyroid has concerned me. Maybe I’m just panicking though!
That’s actually overactive! Unless I’m mistaken? What type of symptoms have you got?
Sorry, I mistyped and realised that was overactive! My mistake.
Mainly hot all the time, palpitations, fatigue, feeling really agitated etc. O also feel hungry all the time but have lost weight rapidly at a couple
Of points this past year. I looked at my notes on the app and 18 months ago it was 0.36 (normal is 0.35) and in Jan and June 0.32
Thanks for replying. This is new and a bit scary
Yeah definitely running a bit high, classic symptoms. Your GP should’ve already referred you to hospital it’s the endo clinic deals with that.you’ll just get regular appointments with blood work they’ll start you on meds to regulate it they usually do diagnostics like an ultrasound and MRI to see what’s going on with the thyroid itself and give them more info on what treatment to offer. You’ll feel a lot better once you start on meds.
Thank you so much, that’s really helpful. I’ve felt dreadful tbh for months now and the fatigue is debilitating. I’ll speak to my GP after the next tests and be more ‘assertive’
