Thenursemum

[Meeeeeeeeeeeee]

She boils my blood I’ve said before I have 2 children both with needs, one going blind and has major sensory issues another one who has massive delays and peg fed. With the little one we were told they’d never walk talk etc but with hard input from us as they’re parent they are now walking and trying so very hard to talk. I want to shout that from the rooftops I’m so incredibly proud how far they’ve come considering the initial diagnosis. We have no help whatsoever, my husband and I are frontline nhs, either he’s in work or I am. Our little one is peg fed every few hours as they can’t tolerate huge volumes but whatever goes in inevitably they vomit, doesn’t know how to swallow so is a massive risk of aspiration. I get up all through the night to feed, sit up for a good hour after as I’m afraid to put them back to bed in case they’re sick. We are fighting for a cot at the moment so I don’t have to physically get them up, I can just incline the cot to lessen the risk of aspiration but we’re deemed to not need that. She is not the face of a SEN parent, she doesn’t represent what I’m trying to fight for, for my children

 

[AreYouJoking?]

Some of us reported her to benefits along time ago reported everything. The fundraisers, the t shirt business, the calendars, instagram work, being self employed doing fillers etc. Not long after her website selling the t shirts and calendars was replaced with a message saying it was being worked on and you couldnt order or see anything that used to be there for sale.

One fundraiser was paid out and closed down. The other two were on go fund me, they let you withdraw money at any point without closing but she suddenly set hers to being paused for new donations, she didnt close it when she could have, it's there ready to be opened again. The other is still open for donations but both could have had all the amounts withdrawn because they let you do that. All this happened in february after she had been reported. In some cases you have to pay tax too on fundraisers, shes not a charity and the fundraisers say for Kaytee aswell as J, so she cant claim they are just for a child in need.

She told everyone at the start of january she had a job but didnt start working till half way through august. We think that job in january is different to the one she actually started. DBS checks dont take 8 months. The pandemic happened and DBS checks are done even quicker at the moment because theres a urgent need for staff. We think she turned down the january job when she realised she was being investigated. (It all adds up when you look at the dates when people reported her and how long it takes them to investigate and notify the person they're being investigated)

We think she had benefits either stopped fully, cut or sanctioned for a certain amount of time as punishment plus had to repay some benefits, plus pay tax on the calendar sales, t shirts and filler work. She suddenly starting working during a pandemic, focused on instagram work and got herself the accountant. Shes obviously trying to be legitimate this time so it wont be long before she opens her website back up with the t shirts and calendars for sale now she has the accountant to sort it out properly without getting into trouble again

Right I am literally going to post a pound sign on my Instagram story so you can inbox me because I need you in my life @Oneofthesencommunity

 

[Oneofthesencommunity]

She boils my blood I’ve said before I have 2 children both with needs, one going blind and has major sensory issues another one who has massive delays and peg fed. With the little one we were told they’d never walk talk etc but with hard input from us as they’re parent they are now walking and trying so very hard to talk. I want to shout that from the rooftops I’m so incredibly proud how far they’ve come considering the initial diagnosis. We have no help whatsoever, my husband and I are frontline nhs, either he’s in work or I am. Our little one is peg fed every few hours as they can’t tolerate huge volumes but whatever goes in inevitably they vomit, doesn’t know how to swallow so is a massive risk of aspiration. I get up all through the night to feed, sit up for a good hour after as I’m afraid to put them back to bed in case they’re sick. We are fighting for a cot at the moment so I don’t have to physically get them up, I can just incline the cot to lessen the risk of aspiration but we’re deemed to not need that. She is not the face of a SEN parent, she doesn’t represent what I’m trying to fight for, for my children

She is a disgrace to the sen community, it's so wrong she is making people see her as our voice. She knows none of us like her but keeps using our name to push her own agenda. Isnt it illegal to con people like this? It should be!! Its like those people who pretend to be ill to claim money or trick people into donating!! Remember those people who pretended to live in grenfell to get donations and Grant's. Its the same type of thing but worse because this is disabled children we are talking about. Nobody needs her tit. Shes damaging the fundraisers other families have, people are going to stop donating to them thinking everyone is well off like her and a fraud. She needs to be stopped. Shes obviously reading this, she needs to pack it in and disappear with her money and call a end to it. Her friends are probably reading this too, why arent they telling her to quit whilst shes ahead. She will be exposed one day & she will embarrass herself on a massive scale. If they were true friends they would be giving her a talk to, not encouraging or agreeing with her shes being trolled. This is not trolling. This is a community of people she claims to represent, pointing out she is a LIAR. She is in a different league to other influencers who have people call them out. What she is doing is on a completely different level to Mrs Hinch and co.

Right I am literally going to post a pound sign on my Instagram story so you can inbox me because I need you in my life @Oneofthesencommunity

Heading to insta to flick through peoples stories now I bet she will see this comment and be searching peoples stories too

 

[Meeeeeeeeeeeee]

She is a disgrace to the sen community, it's so wrong she is making people see her as our voice. She knows none of us like her but keeps using our name to push her own agenda. Isnt it illegal to con people like this? It should be!! Its like those people who pretend to be ill to claim money or trick people into donating!! Remember those people who pretended to live in grenfell to get donations and Grant's. Its the same type of thing but worse because this is disabled children we are talking about. Nobody needs her tit. Shes damaging the fundraisers other families have, people are going to stop donating to them thinking everyone is well off like her and a fraud. She needs to be stopped. Shes obviously reading this, she needs to pack it in and disappear with her money and call a end to it. Her friends are probably reading this too, why arent they telling her to quit whilst shes ahead. She will be exposed one day & she will embarrass herself on a massive scale. If they were true friends they would be giving her a talk to, not encouraging or agreeing with her shes being trolled. This is not trolling. This is a community of people she claims to represent, pointing out she is a LIAR. She is in a different league to other influencers who have people call them out. What she is doing is on a completely different level to Mrs Hinch and co.



Heading to insta to flick through peoples stories now I bet she will see this comment and be searching peoples stories too

I wouldn’t even know how to start searching for your story

 

[YomAsal]

off to search all of instagram for a pound sign now

 

[TwinkleTwinkle21]

Not quite everything there’s still a lot she needs to address, like why she has spent most of the fundraiser money on designer clothes, lavish hotels, hot tub and the car and barely any on J.

Why did she make her son ill doing the feeding program when advised not to. And lie about the price.

Why did she get a hot tub when they are a big NO for children j’s age especially when tube fed.

There’s so much more she could answer.

We knhat won’t ever happen
I think she lies that much she actually forgets what she’s said.. like when she got the hot tub, it definitely wasn’t for her benefit as she’s allergic and comes out in a rash. But she’s been in every time with J and even on her own and seems to have been just fine.

Same with the car, there’s a lot of big SUV cars to fit the pram in without needing a Mercedes. Her justification? She rang around and the nearest dealership with options was Mercedes I live in an area close to Kaytee and I can tell you now there are a LOT of car dealers, infact pretty much all of them, before you even get to Mercedes dealership. I can’t imagine them to have no cars suitable. It’s all for her own image.

 

[Basicbasic]

As a non sen parent follower I had no idea that carers were not supposed to be used for childcare! I always thought they were there to free up her time whenever she needed whether for work or play. She has never once communicated that carers are really there for care for the child. She's always used them to free up her own time and offer her childcare. This thread is eye opening.

 

[Schnoodle123]

As a non sen parent follower I had no idea that carers were not supposed to be used for childcare! I always thought they were there to free up her time whenever she needed whether for work or play. She has never once communicated that carers are really there for care for the child. She's always used them to free up her own time and offer her childcare. This thread is eye opening.

It really is. If you’d have asked me what I thought of her 6 months ago I’d have said she was amazing but now I’ve seen a totally different side of her

 

[Simbama12]

That‘s because she is! I don’t doubt looking after her child is stressful and hard work, but her attitude is foul. She thinks she’s entitled to everything! If she can’t afford a house, car, careers without it being subsided, you’d think she’d be grateful. But no everyday she’s complaining about something. Lots of parents who I follow from the SEN community have to get by with half of what she gets!

I unfollowed her for this reason. Always moaning that life is the worst for her

I’m so glad there’s finally a thread for her. She is so entitled

 

[Treesy19]

As a non sen parent follower I had no idea that carers were not supposed to be used for childcare! I always thought they were there to free up her time whenever she needed whether for work or play. She has never once communicated that carers are really there for care for the child. She's always used them to free up her own time and offer her childcare. This thread is eye opening.

Yes same thoughts. It’s definitely an eye opener this thread. If the gov’t cared about the carers in society more then it would have the provisions in place for hired carers to be there no matter what the parent/carer was off to do. Whether it be off for a sleep or meeting a friend or catch up with errands or a work shift.
For many, sen or not sen, going off to work is also about mental health and a bit of a rest, change of scenery.

 

[Jumpindesia]

Sorry if this offends anyone but does he actually need carers ? Sounds like she needs help with childcare?
I have been following some SEN parents on Tik Tok/insta following their stories and they have children who cannot even move, have ventilators, constant seizures and cant really communicate at all! There was even a lady who poor child was in a semi-coma!? Didnt see any of them moaning!

Like i said earlier post her little boy seems to really be making good progress as he is getting older! He is even sleeping now...she said he sleeps a lot in her bed! Wasnt that one of the original concerns she had was lack of sleep ?
Sounds like she needs good special needs childcare which she will be entitled to!

 

[TwinkleTwinkle21]

Sorry if this offends anyone but does he actually need carers ? Sounds like she needs help with childcare?
I have been following some SEN parents on Tik Tok/insta following their stories and they have children who cannot even move, have ventilators, constant seizures and cant really communicate at all! There was even a lady who poor child was in a semi-coma!? Didnt see any of them moaning!

Like i said earlier post her little boy seems to really be making good progress as he is getting older! He is even sleeping now...she said he sleeps a lot in her bed! Wasnt that one of the original concerns she had was lack of sleep ?
Sounds like she needs good special needs childcare which she will be entitled to!

I dont doubt that he needs carers. Although when she’s marking him on his eligibility for them it’s like she downplays everything to score him higher, rather than be proud of the fact he’s progressed so well.

Because he can’t verbally communicate as well as the average 3 year old, she’d want him to score high, yet he signs, he points at things and he says the odd for example yes.

Same with mobility, yes he can’t walk like the average 3 year old but he is able to bum shuffle around the house, pull himself up onto the sofa, shuffle across the kitchen to open cupboard doors etc. And is now standing with his standing aid.

Instead of being thankful for this she still constantly moans thinking she’s in the hardest position when there are other children / parents out there so much worse off than her who’s children genuinely score high without even having to argue it like she tries.

Also, he does sleep through the night now she just shows him moving on the cam for her sob story when every children tosses and turns through the night. If she went to bed after his meds rather than pissing around having midnight “self care” bath times or doing question time on Instagram then she probably wouldn’t be as tired.

If she used the hours for actual respite it actually wouldn’t be so bad, it’s the fact she uses them to go for her PT sessions, to do her Botox, to edit her Instagram stories and record her ads and to go to work! She basically wants someone to nanny J whilst she earns money in whichever way she can

 

[Meeeeeeeeeeeee]

Sorry if this offends anyone but does he actually need carers ? Sounds like she needs help with childcare?
I have been following some SEN parents on Tik Tok/insta following their stories and they have children who cannot even move, have ventilators, constant seizures and cant really communicate at all! There was even a lady who poor child was in a semi-coma!? Didnt see any of them moaning!

Like i said earlier post her little boy seems to really be making good progress as he is getting older! He is even sleeping now...she said he sleeps a lot in her bed! Wasnt that one of the original concerns she had was lack of sleep ?
Sounds like she needs good special needs childcare which she will be entitled to!

That’s the annoying thing, I never complain that I haven’t had a nights sleep in 2 and a half years or that I sleep on a sofa and my little one in a travel cot downstairs as I don’t want to disturb anyone whilst their sleeping and I’m putting him on his feed and ensuring he doesn’t aspirate. All I ever see her do is moan is never grateful for what she has/given or expects. Sen parents never moan they’re just grateful of the fact that their child is there to love and do what is best for them, regardless of what they’ve initially been through. I do my utmost for my kids but to me it’s a given as a parent and what we get I’m so thankful for xx

ETA-the help and things we get is zero by the way we do get DLA xx

 

[Nightfury]

As a non sen parent follower I had no idea that carers were not supposed to be used for childcare! I always thought they were there to free up her time whenever she needed whether for work or play. She has never once communicated that carers are really there for care for the child. She's always used them to free up her own time and offer her childcare. This thread is eye opening.

Same she’s never ever stated that! It’s been a real eye opener to hear from other SEN parents

 

[AreYouJoking?]

Those of us who’ve followed her for a long time will know she often stated ‘I’ve always been really lucky with J and his sleeping. He’s a great sleeper’

The camera footage means nothing. Wonder what would of happened if she hadn’t been GIFTED that camera in the first place? Before that she had nothing. He slept in there on his own and if a carer wasn’t there he was being sick with no help. She talks so much about sleeping through his alarms and his meds or his feed times. I know she would not be waking at every noise like most mums.

She’s happy to show herself scrubbing his plastic mattress (like who the F**K gets a phone out to boomerang that??) and filling the washer and all the loads she’s had to do but he seems to be sleeping in her bed this week no bother. No vomits no bed changes no ruined mattress. And no mention of carers although he has them for 4 weeks she said and she’s not been in work? It’s all so much of a smoke screen. She clearly does forget her lies and hopes no one pays that much attention.
her engagement is minimal compared to her following. And if she doesn’t get enough likes on an add posts she complains. Scroll through and compare likes and comments between photos of her and photos of J and there’s a huge discrepancy. Only her gal pals are really there for her. And the freebies she passes on to them.

 

[Squiggle]

Same she’s never ever stated that! It’s been a real eye opener to hear from other SEN parents

100% and I want to follow all of them and help in any way I can!

 

[AreYouJoking?]

That’s the annoying thing, I never complain that I haven’t had a nights sleep in 2 and a half years or that I sleep on a sofa and my little one in a travel cot downstairs as I don’t want to disturb anyone whilst their sleeping and I’m putting him on his feed and ensuring he doesn’t aspirate. All I ever see her do is moan is never grateful for what she has/given or expects. Sen parents never moan they’re just grateful of the fact that their child is there to love and do what is best for them, regardless of what they’ve initially been through. I do my utmost for my kids but to me it’s a given as a parent and what we get I’m so thankful for xx

ETA-the help and things we get is zero by the way we do get DLA xx

This. As a SEN parent we worry too much if we even say it’s hard. Or we are public about struggling. We apologise for not giving our all and talk about what we wish we could do because we don’t feel like we ever do enough.
That’s why when we fill out the DLA forms we crumble. Putting it all down in black and white makes it so real. And so much of what we don’t admit to has to be there as a statement and a fact. Even our closet friends will never truly know what we go through because we hide it so well.
She is shitting on all of us by moaning and whining about anything. Even the little things. Embellishing so much that we all just do second nature. I don’t want her followers sympathy because it’s not sincere and it’s come from a false impression of who we all are.

 

[Schnoodle123]

I want to know what she means when she said she was working ... ish?!

 

[Meeeeeeeeeeeee]

This. As a SEN parent we worry too much if we even say it’s hard. Or we are public about struggling. We apologise for not giving our all and talk about what we wish we could do because we don’t feel like we ever do enough.
That’s why when we fill out the DLA forms we crumble. Putting it all down in black and white makes it so real. And so much of what we don’t admit to has to be there as a statement and a fact. Even our closet friends will never truly know what we go through because we hide it so well.
She is shitting on all of us by moaning and whining about anything. Even the little things. Embellishing so much that we all just do second nature. I don’t want her followers sympathy because it’s not sincere and it’s come from a false impression of who we all are.

You put it so much more eloquently than I did! We don’t moan and the majority have been to hell and back, you crack on as you are the parent. I’d love nothing more than a night/dinner with my husband but I’m realistic it’s not going to happen so we plod on as I love my kids more than anything xx

 

[Belulah]

I want to know what she means when she said she was working ... ish?!

Still employed but not being put on the rota?