Sendparent
Chatty Member
Even if she was a doctor herself, they wouldnt suggest she changes his plans. If she did and they knew, they would make her sign disclaimers so that she takes full responsibility if something goes wrong, but I dont think that's ever been done because any doctor who has a child like Jaxon, would respect that the team of doctors and professionals around him specialise in medically complex children. My gp wont change meds without contacting my childs doctors at our local hospital. A gp wouldnt change a feeding plan that a dietitian has done either. Kaytee has a nursing degree and a handful of shifts behind her, she did adult nursing too, the only thing she should be changing is his nappy. There was a recent case of a dying child who's parents were both doctors, the hospital called the police on them when they were interfering with their care plans.Totally understand. I have just got a job for 20 hours a week as i really am looking forward to some form of independence. You make it work without blaming everyone else, got a lot of respect xx
I actually felt quite emotional reading this. i was about to ask if shes actually allowed to change his diet plan...or change his meds? Dietitians would have studied all sorts of different types of disorders to fit the diet accordingly.
I thought that maybe the doctors trusted her with a nursing background to change his meds, as i was always under the impression only doctors authorised changes . I wonder what they made of the food plan she paid for? Seeing those photos of j actually make me wanna cry. How could she let it carry on?
I noticed hes on a big feed each time and as a mother of a very small 5 year old boy, who eats barely any meals but will eat throughout the day... so the fact shes doing it all for her, is shocking
J is a lovely lad. I can only hope for the best
Im so shocked! I genuinely thought she found someome to care for j. And thought it would work out well as she could be qualified to look after him and maybe get some form of childcare payment ...how did i not even see that!! Prob most likely she was hoping her ex was spying on her and she wanted to do the 'revenge night to show him whats missing'.... considering j is such high needs... why didnt she shield him like many send parents havr been doing FOR MONTHS!? AND TO LONDON?!
Im so reporting for misuse of mobility car, thanks for link x
Someone else has commented on a previous thread that their child is also under Great Ormond Street Hospital like Jaxon and they have been strictly advised not to sign up to that foreign feeding school and they advise all families the same. Jaxon didnt meet the criteria to go abroad to the feeding school to follow the programme and she pushed hard for him to do the online version at home. It costs less than £5k but she has said previously it cost £10k out of the donations.
It was abuse putting him through something that world renowned doctors at one of the best hospitals in the world told her not to do. I found it upsetting watching her post during that time, how she didnt notice how unwell he was looking I dont know. He ended up in hospital and they put him straight back on the tube feeds, whilst she posted her photo shoot pics sitting gazing into the distance.
She hasnt shielded him at all, she was quick enough to preach about wearing masks because of "children like jaxon" yet she has shown she hasnt bothered to take precautions herself for Jaxon.
She took a job in a hospital during a pandemic.
She wore her uniform to and from work, around Jaxon.
She does her trips to the hospital pharmacy when Jaxon is with her instead of going when he has carers, is at school or asking someone else to do it/arranging deliveries.
Same with shopping, she could have home deliveries, she chooses not to. She could go when he is at school or has carers but instead she takes him around tesco when she has a ad, he doesnt wear a mask either.
She hasn't limited the amount of people shes around like other families have. Shes had friends in her home then quickly deleted the stories, shes not socially distanced herself when shes been with friends on her stories, shes still eaten out, shes taken him to london and stayed in hotels and ate in the restaurants with him. Shes mixed with personal trainers and gone to the gym. Shes going to a beauty salon for her beard removal. Shes going to nail salons for her nails.
Other send families are still washing their food shop that's been delivered instead of them risking going to the supermarkets. Nails, hotels, restaurants, supermarkets, pt sessions and the gym are a thing of the past to many who havent done any of them things for nearly a year. She has no right to preach to people about masks and rules, shes a disgrace. No wonder people dont want to follow rules to protect the vulnerable when you have people like her who are claiming to be the send advocate, voice of the send community, who aren't even protecting their own vulnerable child.
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