Before I had my children I was a children’s nurse, working with children with life limiting health issues and genetic conditions.
You cannot base the decision to have a child who may be life limited or face incredibly hard challenges on what someone like Kathleen says.
Yes, the support for families with children with these issues is often very lacking or tit, no, no one is saying these children aren’t loved and valued, yes, they can have quality of life, but having worked with children who went through things that no healthy grown adult would ever be able to deal with if they suddenly were inflicted on them, and children who despite everything really didn’t have a quality of life or an ability to consent to what was happening to them, it really isn’t how she’s making it to be.
I would terminate if we were told we were pregnant with a child with a condition that was going to limit their life, leave them requiring 24 hour care, support all their life and someone else to look after them when we died. I would not expect their siblings to step in, or other family. Not because I hate or don’t value disabled and life limited children but because I’ve seen what they go through and I don’t think it’s fair to choose that life for them in many many situations.
but if a parent chooses not to terminate, I would support them in that choice too.
You cannot base the decision to have a child who may be life limited or face incredibly hard challenges on what someone like Kathleen says.
Yes, the support for families with children with these issues is often very lacking or tit, no, no one is saying these children aren’t loved and valued, yes, they can have quality of life, but having worked with children who went through things that no healthy grown adult would ever be able to deal with if they suddenly were inflicted on them, and children who despite everything really didn’t have a quality of life or an ability to consent to what was happening to them, it really isn’t how she’s making it to be.
I would terminate if we were told we were pregnant with a child with a condition that was going to limit their life, leave them requiring 24 hour care, support all their life and someone else to look after them when we died. I would not expect their siblings to step in, or other family. Not because I hate or don’t value disabled and life limited children but because I’ve seen what they go through and I don’t think it’s fair to choose that life for them in many many situations.
but if a parent chooses not to terminate, I would support them in that choice too.
