The Nurse Mum #13 Come fly with me to my next go fund me!

[xxexposethemallxx]

Can we move on from escorting talk please

 

[yellowboat]

He had a feeding tube which food and medicines could be administered through. She insisted on him eating orally against doctor’s wishes, and put him on a feeding plan which involved starving him until he had no choice.

If I remember correctly she also changed his feeding regime and meds so it had less impact on her life

I absolutely remember her starving him for the feeding school and giving him nibbles of frazzles. From experience even with a peg potassium supplements can make you really sicky.

She put herself before Jaxon. His regime was done round her life. The chaos of the feeding school, chopping & changing medication, being under weight, not feeding will have all played absolute havoc with his heart

 

[sparklingtrac]

I absolutely remember her starving him for the feeding school and giving him nibbles of frazzles. From experience even with a peg potassium supplements can make you really sicky.

She put herself before Jaxon. His regime was done round her life. The chaos of the feeding school, chopping & changing medication, being under weight, not feeding will have all played absolute havoc with his heart

I missed the whole feeding school thing as started following long afterwards… is there a thread I should go back and read up on ?

 

[AnkleTag]

I missed the whole feeding school thing as started following long afterwards… is there a thread I should go back and read up on ?

You don’t even need to read up on it. Just scroll back down her feed and you’ll quickly see pictures of Jaxon looking shockingly emaciated with descriptions of him eating one chip or one frazzle (a single frazzle, not a packet) in a day. This is when she had stopped tube feeding at the direction of a Swiss online “feeding school”. His weight dropped way below what his U.K. doctors considered acceptable before she finally stopped the program.

 

[sparklingtrac]

You don’t even need to read up on it. Just scroll back down her feed and you’ll quickly see pictures of Jaxon looking shockingly emaciated with descriptions of him eating one chip or one frazzle (a single frazzle, not a packet) in a day. This is when she had stopped tube feeding at the direction of a Swiss online “feeding school”. His weight dropped way below what his U.K. doctors considered acceptable before she finally stopped the program.

I don’t understand how she did that without getting reported to social work by the doctors

 

[mrstakeaway]

I missed the whole feeding school thing as started following long afterwards… is there a thread I should go back and read up on ?

Look on her feed about feb 2020, poor guy was skeletal and his eyes were sunken in.

 

[BettyCrockerr]

I don’t understand how she did that without getting reported to social work by the doctors

I was just going to say the same - how on earth weren’t social services involved??

 

[AnkleTag]

I was just going to say the same - how on earth weren’t social services involved??

11 February 2020

The feeding school wanted him above 8.5kg, the “local team” (ie his doctors) wanted him above 9kg. He fell below both. When it was “far too much her, the school, and his local professionals”. That’s when she stopped.

His medical team warned her not to let his weight fall below 9kg. She ignored this. She allowed his weight to fall below 8.5kg to the point where he looked emaciated. Then she stopped.

We don’t know why she stopped. She’s framed it as her decision made with the professionals. It might have been. Or maybe somebody external told her she had to stop?

 

[xxexposethemallxx]

11 February 2020

The feeding school wanted him above 8.5kg, the “local team” (ie his doctors) wanted him above 9kg. He fell below both. When it was “far too much her, the school, and his local professionals”. That’s when she stopped.

His medical team warned her not to let his weight fall below 9kg. She ignored this. She allowed his weight to fall below 8.5kg to the point where he looked emaciated. Then she stopped.

We don’t know why she stopped. She’s framed it as her decision made with the professionals. It might have been. Or maybe somebody external told her she had to stop?

Jesus Christ & she goes on as she was an amazing mother …

 

[dodecahedron]

and if I remember correctly, paid THOUSANDS for the privilege of starving him to below 8.5kg too. thousands.

 

[TicTacToc]

That feeding school was dodgy AF. More like a starving school.

 

[ellobird]

11 February 2020

The feeding school wanted him above 8.5kg, the “local team” (ie his doctors) wanted him above 9kg. He fell below both. When it was “far too much her, the school, and his local professionals”. That’s when she stopped.

His medical team warned her not to let his weight fall below 9kg. She ignored this. She allowed his weight to fall below 8.5kg to the point where he looked emaciated. Then she stopped.

We don’t know why she stopped. She’s framed it as her decision made with the professionals. It might have been. Or maybe somebody external told her she had to stop?

Wasn't around either so scrolled back to Feb 2020 as directed and found this post. What sort of food is that for an unwell child? Surely this isn’t what specialists/nutritionists would recommend. I will happily admit my 2 yr old some days eats a lot of snacks and no veges but shouldn’t she have been giving him decent food?

 

[longtimelurker88]

Wasn't around either so scrolled back to Feb 2020 as directed and found this post. What sort of food is that for an unwell child? Surely this isn’t what specialists/nutritionists would recommend. I will happily admit my 2 yr old some days eats a lot of snacks and no veges but shouldn’t she have been giving him decent food?

She said he had to have high fat foods to help with the weight loss.

 

[sparklingtrac]

She said he had to have high fat foods to help with the weight loss.

Jesus… so you feed him avocados, nut butters, egg yolks , cream, full fat milk… not packets of crisps and sugary cereals… stupid cow

 

[Blahblah93]

Jesus… so you feed him avocados, nut butters, egg yolks , cream, full fat milk… not packets of crisps and sugary cereals… stupid cow

I'd imagine you give him nice tasting food as he doesn't eat. He's better of eating tit than nothing at all.

 

[ellobird]

I'd imagine you give him nice tasting food as he doesn't eat. He's better of eating tit than nothing at all.

babies that start solids have no concept of “nice tasting” food either — wouldn’t be giving egg whites and frazzles to a 6 month old either. Plenty of nice tasting & nutritious foods out there

 

[cherrypicker]

I have a child that refuses to eat and is peg fed trust me you will give your child what ever they bloody want if it means they will put it in their mouth - even the tiniest lick of food is a massive achievement as it’s not so much due to taste but textures/feel ect. I’m in no way saying what she did was right (infact I find it so bizarre that she was so adamant on him eating orally) but giving him the ‘rubbish’ foods that he actually ate is exactly what you are supposed to do to get them to eating anything. It’s not about eating to put the weight on initially it’s just getting them to bloody put something in their mouth at all.

But yeah although she was technically doing the right thing in order for him to progress with his eating it was still totally the wrong thing to even attempt when he was so fragile and I really don’t understand her pushing it that far when he was getting all the nutrients from his peg feeding but hey ho.

 

[sparklingtrac]

I have a child that refuses to eat and is peg fed trust me you will give your child what ever they bloody want if it means they will put it in their mouth - even the tiniest lick of food is a massive achievement as it’s not so much due to taste but textures/feel ect. I’m in no way saying what she did was right (infact I find it so bizarre that she was so adamant on him eating orally) but giving him the ‘rubbish’ foods that he actually ate is exactly what you are supposed to do to get them to eating anything. It’s not about eating to put the weight on initially it’s just getting them to bloody put something in their mouth at all.

But yeah although she was technically doing the right thing in order for him to progress with his eating it was still totally the wrong thing to even attempt when he was so fragile and I really don’t understand her pushing it that far when he was getting all the nutrients from his peg feeding but hey ho.

Yes but whilst doing that you continue peg feeding for nutrition and calories right?

 

[cherrypicker]

Yes but whilst doing that you continue peg feeding for nutrition and calories right?

Yes! However the issue is with continuing peg feeds the child won’t get hungry therefore don’t learn the feeling of hungry and wanting/needing to eat. It’s a catch 22 situation and very tricky.

 

[ellobird]

I have a child that refuses to eat and is peg fed trust me you will give your child what ever they bloody want if it means they will put it in their mouth - even the tiniest lick of food is a massive achievement as it’s not so much due to taste but textures/feel ect. I’m in no way saying what she did was right (infact I find it so bizarre that she was so adamant on him eating orally) but giving him the ‘rubbish’ foods that he actually ate is exactly what you are supposed to do to get them to eating anything. It’s not about eating to put the weight on initially it’s just getting them to bloody put something in their mouth at all.

But yeah although she was technically doing the right thing in order for him to progress with his eating it was still totally the wrong thing to even attempt when he was so fragile and I really don’t understand her pushing it that far when he was getting all the nutrients from his peg feeding but hey ho.

thank you for explaining it, I don’t have any understanding of the challenges you (&she) face with feeding a child with those needs, apologies if my comment was insensitive, it was naive of me to make an assumption like that.