I used to be on metformin and it really worked for me. I then had to taken off me by a GP who knew FA about PCOS. I’ve asked and asked several GPs since and they won’t put me back on it as it’s in my history that it was taken off me
I started metformin extended release last November and lost 3 stone within 3 months. I did stop eating anything sugary though (biscuits, chocolate, cakes etc) but didn’t up my exercise.
I've come across this thread as I think it's very likely I have PCOS (I've got 2 out of the 3 main symptoms and I am waiting for my ultrasound. It's honestly shocked me so much to the point I was crying for most of today). I've been reading everyone's posts, and wanted to say that even though I don't have a lot of advice or suggestions for you, you should feel such a sense of strength to overcome a rough relationship with food and be in a place where you are eating healthily and being emotionally gentler to yourself - it's a huge thing! The only suggestion that comes to my mind is making sure you have someone you can talk to (like a therapist or a person you feel completely at ease with and trust). I do relate to having a good/bad relationship with food and constantly being told to lose weight which doesn't help. I'm aware that I am big, but being told I am big does not help me - or many people - lose weight. I've even told people/doctors in the past how unhelpful they are being by saying that and not following up with practical advice or resources I can use. I wish more healthcare professionals handled this topic with greater compassion and sensitivity because it's so clear that everyone with PCOS is doing their best every single day. I want to give you - and everyone - a really big hug. This is a very tough thing to experience and live with
Probably not the answer you're looking for but the only way I've managed to lose weight is mounjaro. Prior to that I would lose 3/4lbs in a few months, and it would slowly creep back on. I've been taking MJ since Jan 2025 and have lost 4 stone over that period, only really bloat now if I eat something I'd deem a treat meal, like pizza etc.
i'm the same, clear scans but meet two of the diagnostic criteria through blood tests. pcos is the hormonal imbalance that causes symptoms, pco is the presence of actual cysts but cysts are sometimes a feature of / caused by pcos associated hormones too - honestly it's quite confusing!
My periods are very irregular, sometimes they’re heavy and sometimes they’re light. Try not to worry about being able to have a baby.. it might just take a bit longer or you may need some help but you will be able to. So many girls with pcos have babies xxI've been diagnosed with PCOS. I've found my periods are really really light whenever I have them as well as very irregular. I know irregular periods are part of the symptoms but does anyone else get really light periods? Sorry for the TMI but I used to have heavy periods and enough to fill a pad with bright red blood, now the blood is mainly beigy brown and rarely is bright red coloured and the amount of blood would be enough to fill a tena lady. I'm worried as I really want children and if my periods aren't even working properly or how they used to I think it's game over for me being able to have a baby
Yes! I got my official diagnosis today. I already was sure I had it from blood test and symptoms but scan confirmed it today. I don't know anyone who has it so good to have a thread.
I think about this all the time! It's one of those things where you have so many symptoms and effects that you lose sight of what issue is stemming from what condition / medication / whatever. Like when I was on the pill I would always be asking myself "Do I feel this way / is this happening because I'm on the pill or because of something else?" and if you have comorbid health conditions it's basically impossible to find the root cause or figure out what's linked / not linked. I often spiral into a pit of 'why can't things just be simple,' and then feel bad because someone else has it worse but that will always be the case and it doesn't invalidate what we all go through every day with this condition.
nobody else did, it made me really uncomfortable as some mean kids called it out. It's not like I chose to have tits...
.However, my periods have always been very regular so that's why I didn't think of PCOS straightaway.
Well done on losing 4 stone that’s a huge achievement!!I know most of us with PCOS struggle with weight but has anyone here lost some weight and then struggled to shift any more? I’ve been fortunate enough to lose nearly four stone but that still leaves me at 14 stone so obviously wanting to lose more, and I cannot for the life of me lose a single pound
running and biking increases adrenaline which is bad for Pcos. You might be better cutting back on cardio and doing more weights. Ahh sorry to hear this, it’s sooo shite! If you’ve not had a period in over 3 months you should be offered something to bring on one as it’s not healthy for your lining to get too thick. I think they say you should have 4 a year at least. So I’d try and get an appointment for that and then bring up how awful it was. When I was tested for pcos they didn’t do it on a specific day of my period either. I have since had tests on specific days for fertility reasons and they just give me the form to take to a drop in clinic (if you have one of these in your area) so I didn’t have to make an appointment.So I finally (after 9 months of waiting) had my gynaecology appointment, only to walk out sobbing from it. The Dr I saw was a horrible cow, I knew from the get go that she was not interested in helping me. I was told I need (yet another) blood test to confirm that I do have PCO/PCOS as currently I don't (even though my scan has confirmed cysts that the sonographer made note of), but I have had one many years ago. They're now telling me to get another, but the gynaecologist gave me no letter, and I've phoned my GP surgery and they cannot help either? Trying to call the hospital is impossible as it seems that department don't answer nor do they have a voicemail box! Just another victim of this shitshow they try and pass off as being the NHS!
Edited to add - I have not had a period in 6 months now, and have been told to get a blood test on day 1-5 of my cycle. Anyone know how I am supposed to know whereabouts I am during my cycle when I am not even menstruating
If you don’t fancy a bonnet you could try a silk or satin pillowcase to stop the breakage. I use both, I would start with satin as loads cheaper in case tou don’t get on with one or the other
), which didn't go away with the 1500mg. Also got more migraines than usual. All the sources I found claim that that would only happen at really high doses of 12g/day, but after some digging, I've found that since it's a sugar alcohol, it can trouble some people similar to sorbitol and a "single serving" can kick things off. I'm now down to 500mg, will track for a couple of days whether that calms things down, but at 500mg I'm not even sure that it's doing anything. but having stomach troubles every day frankly isn't worth it for me, nor do I want to shill out that much money monthly for that....