Lucyxxxx
VIP Member
Oh I hear this! I was told for a long time with my autistic son I was "imagining things that aren't there" until he came to his 2.5 yr review and all of a sudden it was "why haven't you reported concerns earlier" hello I have since he was 9 MONTHS old and was told I'm making it up! I was also looked at as crazy when I 1st questioned if my youngest has cerebal palsy, one professional even put "mum thinks babyLucy has CP cause she reads things on the internet". Turns out I was right with both of my SEN kids.I have been following this case and the thread for a few days and I have found most of the posts enlightening and well put, which is helpful when you don't have a medical background. BUT... at the same time, I have a child with 'invisible' disabilities and conditions and have had so many encounters with medical professionals who are dismissive, rude and downright convinced that she/I am being dramatic that I am horrified by how many people have freely admitted looking up patients online to be 'nosey'. As if we didn't feel we could trust the medical community a lot of the time already, this just astounds me. How dare anyone think that they are entitled to do that? And don't give me that bollocks about only being human - there is no way you can persuade me that looking up patients and their families is ethical or acceptable within that profession. There would be little to find on my social media as I rarely use it anyway, but the idea of someone snooping and laughing at my family when we have come to you for help beggars belief. What a shitty realisation to have come to.