I’m still catching up but thank y’all SO MUCH for your sweetness and love. This community has become a circle of friends I have leaned on for almost a year and I’m blessed to even share space among you I swear I don’t deserve the privilege. I love you. Diolch, diolch, diolch.
Real quickly…
“Chronic pain pretty much ENDS the life you have.”
Now, let’s think about this for a sec lol: this person purports to be someone battling fibromyalgia based on a self-made diagnosis and is centering herself waaaaaay too much in the community to supposedly advocate for people with the same chronic illness…so like…sitting here stating that having fibro means you’re pretty much hopeless and your life is through? That’s the direction in which you choose to take this?
Listen: Bianca got vulnerable in her most recent post, sure she did. She cried. She cussed. She got angry. She got scared. She showed a side of MS that people rarely pay attention to. She showed others that, yeah, MS will fuck up your life.
BUT, and do correct me if I’m wrong—she has posted mainly positive and/or informational content this entire time. She BALANCED OUT the dread of having MS with the ways in which people can cope and be informed to live happier and healthier lives.
Alice is literally just talking about how debilitating her supposed illness is. She doesn’t educate. She wedges her own stories of suffering into people’s offerings of their own personal experiences. She doesn’t listen to these supposed “fellow” sufferers of hers. She only wants to complain and receive sympathy for her medical woes.
Strap on your cowboy boots and kick me the fuck back into my lane if I’m out of it but I consider Alice’s above remark to be extremely unhelpful, awful, pessimistic, and hurtful to others battling fibro. No one wants to hear that their life is “over.” No one wants to wake up and think that they have no good reason to be alive or that they might as well surrender to their suffering. That one remark she made sort of cemented it in my mind that Alice has zero regard for the harm she can potentially be committing in this community.
Bianca: “I deal with a LOT of bullshit from my chronic illness and I’ll tell you what that hardship looks like but I’ll also inform you and encourage you to understand that I and those like me can and will get by.”
Alice: “I deal with a LOT of bullshit. That’s it.”