Not necessarily... My mum ate chocolate and ice cream sat up the day before she passed. She was eating as normal up to thenI'd say he's got a while left if he's still eating. But hopefully these days will be quiet and calm. Thank god for palliative care teams, they really are in a league of their own
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I had a relative with terminal cancer she was fine when we visited at 3pm at 8pm she passed
I really don't know why she's posted that photo today. What about that lad's right to privacy now 
With the heading ā heās still hereā how utterly bizarre! He is so so unwell in that photoI really don't know why she's posted that photo today. What about that lad's right to privacy now
No one needs to see him now.
My close friends lost their six year old to cancer after five years of treatments and surgeries. I never saw, or needed to see, photos of him during his final days. I canāt comprehend how any parent think itās ok to share images like this to thousands and thousands of strangers on the internet. If they printed these photos would they go and hand them to random people in the street?
Raising awareness of the challenges and heartbreak of childhood cancer should not come at the cost of the children losing their privacy.
This is a good article which sums it up pretty well.
Raising awareness of the challenges and heartbreak of childhood cancer should not come at the cost of the children losing their privacy.
This is a good article which sums it up pretty well.
There's no need for any photos any updates nothing. I know she's got a platform and there will be some people want to know, but this time is there time with him not SMs.
Can't be much worse than Ashley Cain.... those photos still upset me.
Lots of conspiracy theories regarding the missing boy Jay. Apparently the woman who set the GFM up is a drug mule, didn't hardly know him and the money is being used to pay the drug boss who is keeping hold of him ( something about drugs going missing)
It's very weird, isn't it, something not adding up.
Yeah doesn't make sense. Someone's posted a screenshot what someone wrote about it all saying these men are from morrocco and aren't to be messed with. There's a page set up on FB
But what will the thousands be used for now? There will be no private treatments as his body won't be able to handle them. Is it paying for the whole of family to have the time of work? Extended family too?
The only positive for today is that Dilly looks very peaceful now they have had the syringe driver going for 24 hours or so. I remember it took them about 2 days to get the dosage right for my Dad. The fact that their son is on his deathbed and they're still raising money - words fail me.
Dillian has pneumonia 
I don't think his fragile body will be able to fight this anymore
I don't think his fragile body will be able to fight this anymore Very common at EOL. I wonder if they're not having much explained to them or they're just not taking it in It's making me really appreciate the PC care nurse my Dad had - they went through all of this and what happens in the final days/hours so it was a lot less scary.
It's making me really appreciate the PC care nurse my Dad had - they went through all of this and what happens in the final days/hours so it was a lot less scary.When I was a student nurse, I did a placement in a hospice. There was a young couple there who had a child dying from cancer. They didn't fully understand what palliative meant and thought their baby could be 'cured'. It was the most awful thing watching the Dr's and nurses explaining that she wouldn't recover and would die.Very common at EOL. I wonder if they're not having much explained to them or they're just not taking it in
I hope I am never in the position but I think maybe they are just in a bit of denial and donāt want to accept the fact that no matter what, the poor little boy will die very soon and they will lose their child. I canāt even bare to imagine how they are feeling about that.
What I donāt understand though is why they keep posting pictures of him at his very most ill. Absolute morons
What I donāt understand though is why they keep posting pictures of him at his very most ill. Absolute morons
I complete agree, your heart has to go out to them but I think her Bio on her Instagram says it all, looking for a cure for her son's incurable cancer.... absolute denial and it's an effective coping mechanism for many until the inevitable happens. Then you have nowhere to hide from it
Poor little Dilly, I struggle to comprehend how they managed to agree to surgery knowing he might not make it back to them. That is not a criticism, I donāt think there was a good decision for them to make š„² I wonder what the hospital would have advocated in this situation, Amy seems very determined for him to carry on being treated. I just hope heās not in pain or in any distress
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