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Amy pretty much saying they will stop his pain medicine if they need to, so they can put more blood/plasma in. You'll literally keep him in pain just to keep him alive to be in more pain. Its just wrong. They should be keeping him as pain free as possible even if it means the worst.
They need to accept what is happening. I can see the consultant really taking a stand and refusing blood/plasma transfusions soon as it is just delaying the inevitable. No one wants to have to sit by there child and watch them die but there's nothing they can do so they will sit by and let him be in pain instead
No sorry this isn’t correct. From a medical point of view, he has 1 point of access (for meds/bloods et ) it seems. So if he needs platelets . He will have to have his pain meds paused, to access that same cannula to give the platelets. Hope that makes sense. Its not fair to keep poking him with a cannula
In truth if his liver is failing he won't be metabolising much if any of what they're giving him pain relief wise.
letting him fried chicken all the time probably isn't helping either!
Actually it makes no difference whatsoever at this stage
I don’t judge their behaviour to be honest their son is dying so trying to give him whatever treatment or food he needs is absolutely fair enough. Posting is in slightly poor taste as is the gofundme considering their wealth. Poor little boy it’s awful.
If he’s getting any pleasure from food, he should have it and I hope that sweet little boy is getting moments of pleasure. I don’t judge his heartbroken parents for trying to bring him comfort and familiarity. He wouldn’t eat if he didn’t want to.
The world is a rubbish place sometimes knowing small children are suffering and losing their lives. Unimaginable.
How utterly heartbreaking he has now passed away xx
xxYoure so right.The world is a rubbish place sometimes knowing small children are suffering and losing their lives. Unimaginable.
Poor Dilly has died
He was such a sweet, inquisitive boy.
can’t imagine the pain Amy and oz are feeling xRest peacefully now you brave brave boy. Heart goes out to Amy and Oz
My heart goes out to them so much. But I hope they step away from SM for awhile now & close that GFM page. Sleep tight sweet boy
I'm relieved that he's no longer suffering. And your heart aches for his parents but now is the time to close the fund. I hope they have good friends who will take this on for them.
Rest in peace now gorgeous little dilly, I can’t imagine the pain the parents are experiencing. Heartbreaking!
This is the first video I saw of Dilly. Thought it would be nice to share so we can remember what a sweet little star he was. Just awful what this disease can do.
Rip Dilly 🩵
RIP little man. Absolutely heartbreaking