Fathering Autism

[webbygurl626]

Sorry for the double post but my husband made a good point she said aloon very clearly but miss priss had no reaction to it whatsoever, a normal parent would have said yes that is a balloon good job and praised her attempt at talking not ignore it completely!

 

[lovesis]

I especially agree with the first lady. When people say they have learned so much, I’m wondering what.....especially for someone who has a child with Autism themselves.

 

[Morningstar]

This whole Fathering Autism has gone off track and the minions seem to ignore it flying off into the abyss. The same people who are wise enough not to support a charity where most of the funds don't even make it to the cause fully support this. Why don't they give their money directly to research or a local Autism organization or better yet local families? The only thing I can come up with is people hope the Maass will comment to them directly making them feel special. The more you support the more you are noticed? Is that how it goes? I really don't know. Questions..are they allowed to use the logo of Autism? Is there no copy right infringement here? Is there a main Autism Organization and do they allow people who are not schooled in the Autism field to give advice and be speakers? What if they give bad advice? How in the world have these two snow balled themselves into getting rich using a defenseless child and Autism? Is there no Accountability from a Nationally recognized Autism Association Board?

Also, her “clicking” sounds may actually not be stimming but actual tics... If you combine all the motor tics she has (swinging her while body, rocking, eye squinting, etc), it actually shows more of a Tourette’s disorder..

Also, yes, when I see her in younger videos, I definitely see where more Autism characteristics were showing up. As she has aged and not grown much cognitively, the IDD is showing itself a lot more and in my eyes, has taken over her Autism diagnosis.

This is very true for some children that are diagnosed on the Autism Spectrum.. In our area, a doctor very rarely will diagnose a child being on the Autism Spectrum before the age of 8-10 years old. Our doctors (I say doctors but it is usually psychologists or developmental/behavioral specialists) use a diagnosis of either developmental delayed or PDD-NOS. If a child is mildly behind, they may issue a DD, just to get some help. If a child is showing a lot of characteristics, then usually a PDD-NOS is used and they can start on ABA and handfuls of therapies and medication trials. Only if a child is severely off (around Abbie’s case or worse) and cannot function daily for even a few minutes, they may be given a young diagnosis of Autism.. Saying this, our doctors are always re-evaluating and should be re-evaluating to make sure the diagnosis fits, along with therapies and current needs of the child..

Saying all this, we do have some parents that will push for an early diagnosis of Autism. They think they have to have it, to get services. The services they want have 7-10 year wait lists. They take the diagnosis and get the same therapies that a PDD-NOS child would have received. They hit early intervention running and by the time the child hits 8 years old, the Autism characteristics are gone. The doctors nor schools can see them. They may see ADHD (which is common in Autism kids) but the Autism characteristics are gone but wait! The parents fight because there isn’t a cure for Autism.. It is because the diagnosis was given at way too young of an age... I am seeing this more and more, as they try to diagnosis younger and younger children...

Abbie was diagnosed at a young age. I wouldn’t be shocked at all, if her diagnosis didn’t change.. I just don’t think they want it to change because the current media mainstream is all about Autism right now... IDD is barely looked at and still has more of a negative cognition, even with the change from MR to IDD.

PS. I also went to screenshot a comment but it was deleted. If you are reading this (*not accusing anyone directly, but if you read my post*) and commented about Abbie burning down the house.. I want to say, I read the rest of your post and you are a horrible person to say that to someone.. I may give a lot of harsh criticism to this family but they don’t deserve what you posted and that was way over the line...

This whole Fathering Autism has gone off track and the minions seem to ignore it flying off into the abyss. The same people who are wise enough not to support a charity where most of the funds don't even make it to the cause fully support this. Why don't they give their money directly to research or a local Autism organization or better yet local families? The only thing I can come up with is people hope the Maass will comment to them directly making them feel special. The more you support the more you are noticed? Is that how it goes? I really don't know. Questions..are they allowed to use the logo of Autism? Is there no copy right infringement here? Is there a main Autism Organization and do they allow people who are not schooled in the Autism field to give advice and be speakers? What if they give bad advice? How in the world have these two snow balled themselves into getting rich using a defenseless child and Autism? Is there no Accountability from a Nationally recognized Autism Association Board?

My post ended up in the wrong place for some reason. I did not post as a response but it looks that way on my screen. Sorry.

To the post about Tourettes. I saw a special about a new medication that is working miracles with Tourettes patients. Is it possible that it could help Abby? Wouldn't it be something if Tourettes was her basic problem and that medicine could help her? I'm wishing big here but I wish she would suddenly be able to talk and be freed from the uncontrollable movements and sounds. I wonder what she would say...Hmm...I wonder if they would try it?

 

[Sam-I-Am]

This whole Fathering Autism has gone off track and the minions seem to ignore it flying off into the abyss. The same people who are wise enough not to support a charity where most of the funds don't even make it to the cause fully support this. Why don't they give their money directly to research or a local Autism organization or better yet local families? The only thing I can come up with is people hope the Maass will comment to them directly making them feel special. The more you support the more you are noticed? Is that how it goes? I really don't know. Questions..are they allowed to use the logo of Autism? Is there no copy right infringement here? Is there a main Autism Organization and do they allow people who are not schooled in the Autism field to give advice and be speakers? What if they give bad advice? How in the world have these two snow balled themselves into getting rich using a defenseless child and Autism? Is there no Accountability from a Nationally recognized Autism Association?

To the post about Tourettes. I saw a special about a new medication that is working miracles with Tourettes patients. Is it possible that it could help Abby? Wouldn't it be something if Tourettes was her basic problem and that medicine could help her? I'm wishing big here but I wish she would suddenly be able to talk and be freed from the uncontrollable movements and sounds. I wonder what she would say...Hmm...I wonder if they would try it?

The Autism logos really are used broad based. A lot of people don’t even like the puzzle piece because it goes back to Autism Speaks. (*I will NOT get into an argument about Autism Speaks. I will say, our family does support them because when our oldest boy was completely non-verbal from birth to age 7, we applied for a grant through Autism Speaks for an iPad and it was essentially what helped us push his vocalizations with his speech therapist, using his iPad)..

Anyways, as long as they aren’t using the one that Autism Speaks does, I really don’t think they care... Also, even with the walks that Autism Speaks does, they encourage team leaders to use the puzzle pieces on their shirts... Autism Society has people use theirs also. I don’t ever see any organization telling people not to use their logo, unless it is negative situations...

As far as speakers and accreditation, sadly, there is literally places you pay and can have accreditation in anything... I will say, until they mentioned the Wego awards, I had never heard of them, nor had any specialist that we visit, heard of them.. I mean, they aren’t getting any local awards but had to fly to CA to get an award? Sadly, the National Organizations are just fighting for funding and education but sadly, sometimes those aren’t even vetted that well.. All it takes is a recommendation of someone to have someone come speak and they send out a request to have them do so, as long as the board agrees. They just offer a hotel room and either gas reimbursement or plane tickets.. I have been invited to speak at several sounding boards and conferences but have always turned down the offers. I don’t have the confidence in myself, time to organize a speech and care workers for the kids to go..

I would love to see if they did get a stabilization medication for Abbie. I won’t say “cure” because even that doesn’t always happen but they could really work more on her speech and getting her there.. I would love to see her anxiety be decreased because it seems she has a lot of anxiety due to what they put her through. They don’t give her acknowledgment to understand what is happening around her and just expect her to go with the flow, of whatever they are doing..

Also, can someone explain to me, after the school stated that they needed to start more conversations with Abbie and having her communicate with her, the first time they do, they ask her to grab her iPad? She leaves the room, twice and can’t find it and then they finally find it, once one of them gets up to look at it.. Then, instead of talking to her and getting her to answer with other communication, they expect every answer to be on her iPad.

She needs to learn that not all communication has to come through her iPad. It is great to have but she can communicate with body language, they could work on more sign-language, she could take them to things, etc.. Sigh.. I just don’t get it..

 

[FaLaLaLaNahLer]

Abbie also has flaccid feet. (Sorry to use that term). lol When she sits on the couch, her knees are usually out a little, as an infant would sit, & her feet have no muscle tone to them. She also doesn’t walk on her tip toes. Maybe she did in a video when she was 5’ish? That is an autism thing. But being that she doesn’t do that, meanwhile Cody (w/ Cody Speaks) does walk on his tip toes sometimes. He clearly has autism.

 

[Hotographer512]

I believe Abbie doesn't progress due to being ignored because the parents are too lazy, too self absorbed or too busy with other things like shopping.
They could at least talk to her. That can be done from sitting on their giant asses but it would require them to get outside of their own heads. Hell, let's face it shopping is the most fun ever!!
So nah. It ain't gonna happen.
Sadly.

 

[lovesis]

It now makes sense why they posted this update. I’m sure a lot of paid supporters have been asking what content was specific to their membership.

Asa acknowledges that but also has to say “we never have and never will ask for your support financially”

They are really going to have to bring it because according to the Patreon(monthly paid membership).

For $2 a month
-Connect with other members
-Behind the scenes content
-Early access to the vlogs

You get this plus more if you upgrade membership.

For $5 a month
-Hang out with us on “Lens”, a behind the scenes feature on the mobile app similar to Snapchat

For $10 a month
-Discounted Fathering Autism Merch

For $25 a month
-Private community Facebook group
-Text Us
-And “Holly crap!, It’s an exclusive Abbie mug!” (Their verbiage)

 

[Hotographer512]

Abbie also has flaccid feet. (Sorry to use that term). lol When she sits on the couch, her knees are usually out a little, as an infant would sit, & her feet have no muscle tone to them. She also doesn’t walk on her tip toes. Maybe she did in a video when she was 5’ish? That is an autism thing. But being that she doesn’t do that, meanwhile Cody (w/ Cody Speaks) does walk on his tip toes sometimes.

Maybe Abbie has Fragile X Syndrome. She seems to have many of the traits. Flat feet being one of them. It's also genetic. Interesting reading.

 

[FaLaLaLaNahLer]

He can shove that tip jar after he removes his short & stubby thumb from his ass (if he can reach) & her ass (if he can reach)!

 

[Sam-I-Am]

Abbie also has flaccid feet. (Sorry to use that term). lol When she sits on the couch, her knees are usually out a little, as an infant would sit, & her feet have no muscle tone to them. She also doesn’t walk on her tip toes. Maybe she did in a video when she was 5’ish? That is an autism thing. But being that she doesn’t do that, meanwhile Cody (w/ Cody Speaks) does walk on his tip toes sometimes.

A lot of kids do have low muscle tone. It is very common and is a reason for potty training issues to. It is a core strength issue and when you have a low core strength, it can effect holding your bladder and poop...
Toe walking is definitely a sign of possible Autism but not every child toe walks. I had three kids that toe walked and one that didn’t. Two of the toe walkers, after many, many years of physical and occupational therapy, do not toe walk anymore.. My youngest still is a toe walker though...
I had a friend that had a toe walker, her son isn’t on the Autism Spectrum but was born with tight ligaments and muscles in the back of his legs and they had to do surgery to loosen them..

 

[FaLaLaLaNahLer]

Maybe Abbie has Fragile X Syndrome. She seems to have many of the traits. Flat feet being one of them. It's also genetic. Interesting reading.

Thx for sharing. I’ll look into that too. Not trying to be google dr’s or anything, but everyone knows the geneticists have their work cut out for them & new disabilities do arise. I’ve wondered how close she is to having Rett Syndrome. Her clapping & over excitability seem Retts like to me.

Skipped thru & caught the overeating mention at 27:00! I think you’re on to something!

 

[Sam-I-Am]

Thx for sharing. I’ll look into that too. Not trying to be google dr’s or anything, but everyone knows the geneticists have their work cut out for them & new disabilities do arise. I’ve wondered how close she is to having Rett Syndrome. Her clapping & over excitability seem Retts like to me.

Skipped thru & caught the overeating mention at 27:00! I think you’re on to something!

They address the Rhett’s before, when someone asked and said that her testing for Rhett’s came back negative..
Yes, genetics doesn’t really have a clue, especially when it comes to Autism. The United States is so far behind in the genetics knowledge. The UK knows way more than we do, because of politics on designer babies and laws needing to be put in place before we could start studying genetics here in the States..
I don’t even know how much genetic counseling they have received with Abbie.. I am afraid she may have had very little to none, over basic blood testing..

 

[Bagalhoni]

Also, her “clicking” sounds may actually not be stimming but actual tics... If you combine all the motor tics she has (swinging her while body, rocking, eye squinting, etc), it actually shows more of a Tourette’s disorder..

Also, yes, when I see her in younger videos, I definitely see where more Autism characteristics were showing up. As she has aged and not grown much cognitively, the IDD is showing itself a lot more and in my eyes, has taken over her Autism diagnosis.

This is very true for some children that are diagnosed on the Autism Spectrum.. In our area, a doctor very rarely will diagnose a child being on the Autism Spectrum before the age of 8-10 years old. Our doctors (I say doctors but it is usually psychologists or developmental/behavioral specialists) use a diagnosis of either developmental delayed or PDD-NOS. If a child is mildly behind, they may issue a DD, just to get some help. If a child is showing a lot of characteristics, then usually a PDD-NOS is used and they can start on ABA and handfuls of therapies and medication trials. Only if a child is severely off (around Abbie’s case or worse) and cannot function daily for even a few minutes, they may be given a young diagnosis of Autism.. Saying this, our doctors are always re-evaluating and should be re-evaluating to make sure the diagnosis fits, along with therapies and current needs of the child..

Saying all this, we do have some parents that will push for an early diagnosis of Autism. They think they have to have it, to get services. The services they want have 7-10 year wait lists. They take the diagnosis and get the same therapies that a PDD-NOS child would have received. They hit early intervention running and by the time the child hits 8 years old, the Autism characteristics are gone. The doctors nor schools can see them. They may see ADHD (which is common in Autism kids) but the Autism characteristics are gone but wait! The parents fight because there isn’t a cure for Autism.. It is because the diagnosis was given at way too young of an age... I am seeing this more and more, as they try to diagnosis younger and younger children...

Abbie was diagnosed at a young age. I wouldn’t be shocked at all, if her diagnosis didn’t change.. I just don’t think they want it to change because the current media mainstream is all about Autism right now... IDD is barely looked at and still has more of a negative cognition, even with the change from MR to IDD.

PS. I also went to screenshot a comment but it was deleted. If you are reading this (*not accusing anyone directly, but if you read my post*) and commented about Abbie burning down the house.. I want to say, I read the rest of your post and you are a horrible person to say that to someone.. I may give a lot of harsh criticism to this family but they don’t deserve what you posted and that was way over the line...

This seems more like it.

Stereotypic movement disorder - Wikipedia

en.wikipedia.org

 

[Hotographer512]

I wonder if we all joined Patreon for $2.00 a month to connect with other members, if we could have these types of discussions with them?
Or would even our paid for comments get deleted?

 

[Sam-I-Am]

I wonder if we all joined Patreon for $2.00 a month to connect with other members, if we could have these types of discussions with them?
Or would even our paid for comments get deleted?

Probably not.. I wonder what would happen if someone brought all this up in the private community Facebook group though. Would they throw them out, delete the comments to be happy that someone paid $25/month..

 

[Morningstar]

The Autism logos really are used broad based. A lot of people don’t even like the puzzle piece because it goes back to Autism Speaks. (*I will NOT get into an argument about Autism Speaks. I will say, our family does support them because when our oldest boy was completely non-verbal from birth to age 7, we applied for a grant through Autism Speaks for an iPad and it was essentially what helped us push his vocalizations with his speech therapist, using his iPad)..

Anyways, as long as they aren’t using the one that Autism Speaks does, I really don’t think they care... Also, even with the walks that Autism Speaks does, they encourage team leaders to use the puzzle pieces on their shirts... Autism Society has people use theirs also. I don’t ever see any organization telling people not to use their logo, unless it is negative situations...

As far as speakers and accreditation, sadly, there is literally places you pay and can have accreditation in anything... I will say, until they mentioned the Wego awards, I had never heard of them, nor had any specialist that we visit, heard of them.. I mean, they aren’t getting any local awards but had to fly to CA to get an award? Sadly, the National Organizations are just fighting for funding and education but sadly, sometimes those aren’t even vetted that well.. All it takes is a recommendation of someone to have someone come speak and they send out a request to have them do so, as long as the board agrees. They just offer a hotel room and either gas reimbursement or plane tickets.. I have been invited to speak at several sounding boards and conferences but have always turned down the offers. I don’t have the confidence in myself, time to organize a speech and care workers for the kids to go..

I would love to see if they did get a stabilization medication for Abbie. I won’t say “cure” because even that doesn’t always happen but they could really work more on her speech and getting her there.. I would love to see her anxiety be decreased because it seems she has a lot of anxiety due to what they put her through. They don’t give her acknowledgment to understand what is happening around her and just expect her to go with the flow, of whatever they are doing..

Also, can someone explain to me, after the school stated that they needed to start more conversations with Abbie and having her communicate with her, the first time they do, they ask her to grab her iPad? She leaves the room, twice and can’t find it and then they finally find it, once one of them gets up to look at it.. Then, instead of talking to her and getting her to answer with other communication, they expect every answer to be on her iPad.

She needs to learn that not all communication has to come through her iPad. It is great to have but she can communicate with body language, they could work on more sign-language, she could take them to things, etc.. Sigh.. I just don’t get it..

Thank you. You have helped me understand. You're awesome.

 

[Hotographer512]

You guys are sick

Do you care to elaborate?

 

[Piggylips]

You guys are sick

....what’s sick is parents exploiting their IDD daughter to feed their greed and gluttony under the guise of spreading Autism awareness. Now I wonder if ASSa and Pigcilla are feeling the heat. Can’t delete comments here, can you Father Autism .

 

[GossipTea]

You guys are sick

You are sick, making an account to defend them vile lazy parents who do nothing but exploit a child who can’t consent or even know what planet she’s on, yet her toileting, hygiene, tantrums etc all over the internet on multiple platforms for money. Yet us saying she needs proper care and sheltered from weirdos online is us being sick? Go crawl back to Asa and give him some more money and keep enabling child exploitation.

I wasn’t going come on until after the holidays, but was catching up and saw that! What an idiot. They have no idea do they at all, they need get them fathering autism rose tinted glasses off!

 

[Glowfish]

I joined the YouTube supporters a few months back and my bank got pissed at me.