They may be able to find a private home type. My cousin,after 28 yrs of raising her severely,non verbal,IDD,etc son had to place him. It had reached a point of life/death in her situation. She is a petite woman,and he is about 5’10 or so. She took many beating through the years from him,but still kept him at home. Even centers that once would take him for 2 hrs or so a day finally couldn’t do it. It took a beating that she was lucky to survive to make her realize,sadly,she had done all she could for him.
She looked into schools,and no,not happening. She did look into facilities,and again no. She found a home,w caring people,all w medical backgrounds who took him in. They had 2 others living there as well. And yes,she makes the trip at the least,3 times a week,sometimes more( it’s been a year and her “guilt” is still so bad) to make sure all is good w him. His SS disability,p,us other state funding is covering the costs. She provides the basics,clothing,toiletries,etc. and extras for not just him,but the home in general.
If,like they say are putting monies away,they should be able to find,a good place for her,or have someone live in full time as her caretaker( I know they plan on Isiah doing the caretakingi) w Isiah as an overseer when they die.