Erin - Little.Lulu.Love #2

[snarklife]

Why does she need to share her daughters medical information with every single person she meets so unnecessary.

Also, why is it a constant theme* with these Instagram women who make “suffering through mothering a disabled child” their whole identity that they know so little about the disabled community? Those sunflower lanyards are regularly discussed on podcasts and fb info groups etc. I agree they are a fabulous idea. But how doesn’t Erin already know about them. So I checked her follows and she really doesn’t follow any of the more prominent Australian disability advocates, just the listenable podcast.

*dramatic flair - ok so its only two accounts, Erin and Grecian, but I’m sure there is more

 

[kmartplate]

My jaw was constantly dropping during her Q&A. Just literally all of it. She is an awful human. Poor Luella deserves so much better.

She honestly wants that beautiful girl to grow her wings. Maybe not consciously but she absolutely does.

 

[jumble]

This whole situation just screams an overtired kid in the mornings from being up all night because she has been asleep most of the day, and is then expected to go to sleep at 6:30/7.. my kids would act the exact same at that age if they are not ready for bed, and then get worked up if we tried to enforce an early bedtime and got frustrated with them. Why does she expect Lulu to sleep 90% of the day. Keep her awake and then put her down for an early night. She looked so peaceful and so genuinely loved when she was with her grandpa. I think they’re at Erin’s beck and call because they know how volatile she can get. I wish a sleep consultant would reach out and teach Erin that 3 year olds don’t need hours long day sleeps, even if they do have epilepsy.

 

[Kalesmoothie]

My face right now 🫣

I need to get a life

Oooohhhhh shittteeeeee!!!! i just checked and yep. Rachel’s unfollowed.

Wonder what will happen with tom’s birthday this weekend? Were any of them invite? (no idea if they live too far away, etc).

I don’t even feel slightly sorry for Erin. I have to watch what i say as all of my friends have typical children and i never, ever want to invalidate their experiences or difficulties as parenting even though my situation is harder for different reasons with disability being the main reason for that. Erin would be a shit friend, just like she’s a negative and hate filled person in all aspects of her life. Her constant need for validation, one upping and continual and consuming anger and inability to even attempt to see any positives, make me say she actually deserves it. Friendship is a two way street, and Erin only lives in erin’s world where they’re all erin-focused streets.

Reap what you sow Erin. how’s that 100k feel now? i love that they’re seeing the light. And wish every single one of those women well- women who clearly have so much love and care to give and share who have more than enough reasons to be angrier than Erin. women who are realists and honest but who’s genuine gratitude is always palpable. Bravo girls

 

[emmygluewho]

Perhaps she should use her go fund me for a piece of equipment for the local park….

This GFM blows my mind. It stated it was to be used for Luella Surgery?! She is yet to have that surgery. There was some very sizeable donations in that GFM who I am sure are not happy about this. All while Erin tells us all about her international childless holiday, a new build, night nurse and full time carer and what not?! Lets not forget everything that was given to her when she was about to have Tom?! SNOO?! Bugaboo?! EVERYTHING was given to her yet she still complains daily.

 

[Swamp Life]

Gosh, an overseas holiday and then off on a date night to a concert. I hope she never complains about her lack of village again.

 

[scrantonstrangler]

She did comment on one of Keira’s baby posts with one of her typical ‘I need everyone to know I found this news out separately before this post because I’m so special’ type comments where she said ‘congrats again’ or something similar but definitely with an ‘again’ on the end

ETA - found it

Every time I see one of her comments on her friends posts it's some variation of "Hey all you loser followers, I knew this news first because I'm popular and part of the inner circle"

She reminds me of one of those girls back in school who had a friend going through something difficult and she'd be marching around all important, going "nobody talk to her, she doesn't want anyone to know except me, teacher I have to leave class early to comfort my friend, no you aren't allowed to ask why, she ONLY told ME about it, ugh none of you understand" gatekeeping her friends problems so she could feel special and being all dramatic like she was in a soap opera. Oddly specific but I feel like we all knew one

 

[scrantonstrangler]

This is the stuff she's willing to say publicly, imagine the kind of thing she says in private? To her friends? To her husband? To herself?

Poor, poor Lu

 

[Maisiemouse]

I was actually going to bring up Chrystal and say there had been no mention of her since before their holiday. I have no doubt that Chrystal was passionate in caring for Lu, you could see in her interactions and even the way she would do cute things to make gifts to Erin from Lu (and maybe once buying a bouquet of flowers for Lu or Erin? I can't remember the specifics). I'm sure something/many things would have happened but Erin has absolutely zero self awareness or insight so once again thinks people are abandoning them. I wonder if there was an expectation that Chrystal would care during the day for Lu whilst Erin and Dave went on holidays?

Plus I'm sure it was hard for Chrystal being expected to do everything whilst Erin is just there doing her own thing/self care/going out/going for runs/taking her other child out.

Also it makes me sick that they have chosen to build a 2 storey house with no lift access and no plans for lift access. Erin bitches and moans about how hard it is to carry Lu because of her hypotonia; what exactly does she expect will happen when they move in to their new place? Luella will just live on the ground floor? Separate from everyone else? Oh and eventually she will live segregated? Ffs.

 

[santababy]

all of this

 

[screenfreelookatme]

Huh? Lulu can’t bang on a pipe? What can she do? What does Erin want? Even so, it’s like, your child can’t read, so you read to them and they enjoy it. Just because you’re the one creating music, doesn’t mean she won’t enjoy it.

 

[Sleepyapple]

I’ve had people comment that I’m too soft on various influencers for someone posting on a snark forum… so I’m not one to say this lightly, but I find it disgusting that Erin has aired her dissatisfaction with Chrystal leaving in the public way she has. Even if nothing happened in terms of Erin’s behaviour to cause Chrystal to leave (which I doubt), Chrystal still has a right to decide to move on if she felt unable to continue in what would have been a demanding role. I agree it would be heartbreaking for Lu and painful as a parent to see your child lose a loved carer. That doesn’t justify trashing someone on social media and potentially damaging their future prospects.

I also find it sad that she sees her best self as being someone on a carefree holiday. Totally fine to have difficult feelings around the reality of her life, and my children are more typically developing so I understand I am not in her situation, but surely you would see stepping up to care for your beautiful, disabled child, putting aside the vision of the “perfect” life you had, as an opportunity to become your best self?
---

I hate the podcast - I listened to a few and it’s just poorly done trauma porn

Yeah, agree. I find it distasteful how breathy and overexcited Zoe gets about horrendous details.

 

[No just No]

I feel so uncomfortable with her saying she is “essentially a first time mother”
Um. No. You’re not.
You have a beautiful daughter who is your first born and still very much here.
The entitlement kills me. You can see she is def not in a great place mentally. But take some ownership of that and do the work you need to do so you don’t feel resentment towards your child for not being “perfect”
I can’t deal.

 

[marthamartyr]

I don’t understand how there’s audio of Erin saying Luella will never walk literally playing over footage of Luella walking in the latest What’s The Deep (hate that pod name btw) reel for their episode. It’s just so reductive and harmful and unfair to Luella.

Agreed every time I hear it I feel enraged

Her current q&a is also making me mad

Making comment about first seizure and 6 week vaccinations - Basically implying vaccinations may have caused lus condition. So dangerous. Then insinuating it was because of possible birth negligence. Maybe it was your genes!? Would that mean everyone would blame you… no. But Jesus stop trying to blame it on someone or something.

I wish someone would ask - do you hate your life and wish your daughter wasn’t born?

Because everything she says screams this and it’s so sad.

Actually can’t stand her and to think they are only now getting an OT consult to make sure their house is accessible enough. Priorities hey, who gives a shit about your daughter who also needs to cohabit your home.

 

[santababy]

That and the “happiest here” makes me feel a bit ick. It’s your daughters Instagram page for her journey with epilepsy and you’ve posted a photo without her saying “happiest here”

Post it on your own page

I think she said 3 full days in Thailand, then 1.5 days in Singapore? Plus travel days.
---
I feel a bit ick about the regular posting of holiday photos on her Instagram, which was set up to raise awareness for epilepsy and Lu’s journey.
She made a big deal out of her and Dave need some time alone to reconnect. So put down the phone and enjoy the trip. Maybe a photo here or there, but I dunno it just doesn’t sit quite right with me.

I think she said 3 full days in Thailand, then 1.5 days in Singapore? Plus travel days.
---
I feel a bit ick about the regular posting of holiday photos on her Instagram, which was set up to raise awareness for epilepsy and Lu’s journey.
She made a big deal out of her and Dave need some time alone to reconnect. So put down the phone and enjoy the trip. Maybe a photo here or there, but I dunno it just doesn’t sit quite right with me.

 

[dulcielaroux]

I don’t understand this mothers group thing - why didn’t she join a mothers group when Luella was born? Why does she want to be in a group with first time mothers? Why is she intent on acting like Luella is some aberration that doesn’t count?

 

[Bellowingcow]

Oh fabulous! Erin and the question box! So far the suction cap at birth has caused the epilepsy. And now it’s the vaccinations. But it absolutely has nothing to do with genetics. We believe science sometimes. Only when it suits us.

 

[dulcielaroux]

The home CCTV is nuts to me !
Her long caption I just gave up on. Just word vomit and all I got was that she really is wishing Lu’s life away

The final two lines of that post were so infuriating. About how she hasn’t listened to the universe and now she’s about to pay the ultimate price. No, Erin. The person paying the ultimate price for your decisions is Luella, the person who should be at the centre of all of this but isn’t because you put yourself in that position instead.

 

[No just No]

I found all her stories about the zoo really uncomfortable
She just keeps proving herself to be incredibly privileged and sheltered in her experiences with children
Outing are wild and unpredictable and loud and NEVER go to plan
The expectations she has on these things are so wild to me

 

[Maisiemouse]

I don't understand what it's like to have a child with severe disabilities. I also don't understand what it's like to lose a child. My parents have lost a child, however, and I have lost a sibling. It was tragic, it was unexpected and it has been life changing. I have lost many people in my life before so I thought I knew what grief was. I did not.

Not only did I lose a sibling, I also in turn lost my parents. I 'grieve' how my life is now because this is not how I imagined but it is a different kind of pain to the pain of losing someone I love so much.

So I want to say, having a friend projecting their grief all the time must be hard when they have a living, breathing child right in front of them. I understand the two cannot be compared but having suffered this loss I think I would make a deal with the devil to have my sibling back in most forms.