Erin - Little.Lulu.Love #2

[RawlingsBlue]

Erin’s stories make me so incredibly sad for Lu. Erin has never bothered to try and learn how to communicate with her. Showing Lu using a sign is incredible. She can communicate. You need to give her the tools to do so. And maybe Erin attend her speech therapy so you can learn as well.

 

[Maisiemouse]

Omg Rachael has unfollowed Erin too!!!

 

[robbolife]

I actually don’t begrudge her for feeling that she would be child free if she could go back in time. It’s not an uncommon feeling amongst some parents and is such a stigmatised topic as evident in this thread by people being shocked at her comments. Even if in her case it’s a thinly veiled stab at not actually wanting Luella.

BUT

There’s a time and a place to have those conversations or share those thoughts and proclaiming it on your disabled daughter’s Instagram page is definitely NOT it. Read the room Erin.

Some people take ‘being raw and real’ waaaaayyyy too seriously JFC.

 

[EggCarton]

Well, I needn't have apologised: Erin was not with Lu today, Chrystal was.
Honestly, I've never known a mum of 2 to have so much 'me time'!

 

[influencerstalk]

The uproar over cancer funding vs epilepsy funding…
I can’t even
You can want more funding for epilepsy without dragging funding for another serious condition…. I’m sure mummaonthegc would have something to say about that

Having lost my husband to cancer last year after 6 months prior to his terminal diagnosis of CTs etc saying there was nothing wrong … this post of hers is so offensive! My husband had it everywhere from his chest to his tailbone by diagnosis as it started in the bile duct and no scan detected it..

I also had a friend lose their baby because the age of 2 from cancer…

i can’t believe her I really can’t !


I think I will now finally unfollow

 

[beebop88]

Imagine not comforting your child at night and hiring someone else to do it for you. I understand needing some reprieve here and there but wtf she is the most non maternal person I’ve ever come across. I have co slept with my daughter since birth, maybe she should try sleeping with Lu and she might find she gets some more sleep? She needs comforting from her mum not some stranger every night

 

[influencerstalk]

I was waiting for her Easter post. I remember last year her saying they never celebrated Easter because Lulu wouldn’t understand it, and I couldn’t get my head around a parent who would not make it a special day for their child, even if they couldn’t understand it.. we make it special for our babies, why not for children with special needs? It’s all about her and how it would make her feel like SHE is missing out. At least next year Lulu might experience easter or Christmas seeing as Erin will have Tom to celebrate it for.

Similar to what was posted last year…full of albeism. Why can’t Lu participate in an egg hunt? She crawls and reaches.

She went to a lunch w her family and a day in the sunshine. So much to be thankful for but yet it’s a glass 1/2 empty.

Even before my husband passed away we rarely had these days together as he was a shift worker and worked most public holidays. Just part days but we always made them special and have the best memories.

Today our first Easter without him but my 3 kids and o still made memories and had a nice day and didn’t feel sorry fo ourselves

 

[Maisiemouse]

Read: someone send me some free stuff and feel sorry for me and how hard my life is (despite needing this set because I’m going on a child free international holiday)

Oh yes, I also would like to purchase a pure linen set to wear in comfort on the plane, whilst I fly off for my next child-free international holiday.

 

[snacknsnark]

I’ve been rage watching Erin for years now and had no idea she had her own thread here until someone linked it on another thread. I’m so glad I’ve found my people lol. I’ve been wondering for a year or so what happened with her parents. They used to be there constantly and she would talk a lot about how they were so supportive, then they totally disappeared and there was lots of “no one supports us, we are all alone” chat, and then suddenly they were back as though nothing had happened- I’d love to know what went down there. So glad Jade and Rachel etc have seen the light, they provide so much thought provoking content and seem like really great people, I can imagine how sick they must have got of Erin

 

[Moomin_mama]

I read Erin’s posts and listened to the podcast. The podcast didn’t say anything particularly interesting, it was heartbreaking to hear how bad things are for their family. I really feel for all of them.

I found that her insta post is all about her and her feelings and how hard it is for her. What about Luella? She’s barely mentioned, in a post that basically states that there is now no hope of treatment for her.

She had also obviously been putting off posting it but had to because the podcast was coming out. She knows it was her fault about the surgery, much as she half heartedly tries to blame the medical professionals again in her post. I think she didn’t want to post the news so close to her international child free holiday where she was living her best life posting things like ‘happiest here’ on a beach miles from her children. It’s a bit jarring.

I’ll never understand why a 60% chance of a good outcome wasn’t worth the risk for Erin until it was too late. Surely 60% is better than no chance? In her old posts about the surgery she seemed very worried about things like Luella not having a symmetrical smile any more, that one side of her body wouldn’t be as strong as the other. But without surgery, she’ll never be able to self-feed, walk, talk etc. That’s a trade off that I would certainly have risked. Another poster mentioned above that she didn’t seem to want the surgery because it would leave Lulu still disabled, and Erin only wants a cure that would have made her ‘perfect’, I think this is spot on. I’m heartbroken for Lulu and hope medications can help her life the best life possible

 

[Pollie]

Crystal needs to join this thread.

 

[loveinfluenzas]

What a disgusting thing to write! You do not need to compare epilepsy to cancer. FFS she is seriously something else.. I can tell you right now, cancer is a massive health burden in Australia at the moment and I would give anything to have my sister here with me after she died from cancer at the age of 29. Epilepsy also deserves funding but not at the expense of something else. I reckon she is my most hated 'influencer' at the moment. She just seems like a truly uncaring and awful person.

 

[Maisiemouse]

Assumes its a UTI...starts treating with antibiotics...has nowhere near enough left to cover for a full course...will partially treat whatever is there (if it IS a UTI) so it will just build up antibiotic resistance. Doesn't even know what the bacterial infection is because she hasn't provided a urine sample, so doesn't even know if it's susceptible or resistant to the antibiotics she has started.

WTF is her problem???

 

[Notamused]

I am really puzzled by Erins apparent reluctance to do regular weekly therapy sessions over these random intensive programs. She needs to find a speechie, who specialises in AAC. A random speech session here and there isn’t going to be enough. There are no pre-requisites for AAC. Also wondering why she doesn’t have a proper disability stroller or wheelchair for Luella. Walking frame for home. NDIS would absolutely cover the costs.

As for the comment of Tom surpassing Luella developmentally well that just infuriates me. Presume competence Erin. There are stories out there of non verbal individuals who have an ID diagnosis (because cognitive assessments rely heavily on developed motor planning skills) who self taught themselves college mathematics. Just because someone doesn’t speak it doesn’t mean they have nothing to say.

 

[Swamp Life]

So when they have the night nurse, they both basically get a full night sleep? She says Tom basically sleeps through, occasionally wakes once.
So why is she ALWAYS complaining about how tired she is? It’s like she thinks kids shouldn’t wake up at all during the night or something.
Even if the night nurse only comes twice a week, I just think Erin is completely out of touch with how challenging parenting and sleep can be for little ones (disabled or otherwise).

 

[sweetface2022]

Going against everyone here but she is obviously struggling emotionally and mentally so it’s probably for the best Tom goes to daycare and be cared for the way he needs because Erin is a hot mess

 

[anonsnarker]

Not to mention you should never have “leftover” antibiotics! If prescribed, the course needs to be finished to work correctly. This kind of miss-use is so irresponsible!

 

[idkabigar]

I unfollowed Erin ages ago, but have been lurking on here to see if she ever changed but apparently not. I also live in Sydney, and also have a disabled child. Erin's experience as the parent of a disabled child just doesn't match my own or that of all the other parents of kids with disabilities that I know, and I know a few thanks to my son going to a specialist school. Everyone just gets on with the job - literally, in most cases. Erin is incredibly privileged to live such a comfortably Eastern Suburbs middle class life (and middle class in the Eastern Suburbs is pretty damn expensive compared to most other places) without having to work, yet she still complains non-stop. Everyone I know with disabled kids - some far far worse off than Lu - still has to also go to work. Yet they also take constant delight in their kids and their development, growth and learning. I had to unfollow her because of this, well before I knew there was anyone else that felt that way about her. She was just so relentlessly negative, but most parents in her shoes by now have just accepted it as their own normal and embraced moving forward. Most also get regular weekly therapy for their kids, not these weird intensives.

Having a support worker on the level they have is also a blessing and a privilege; not everybody manages to get that and you literally do it all on your own or with family while ALSO WORKING. Lu is a beautiful child who has so much potential.

 

[santababy]

I hear the shops are a pretty good place to find a washing machine

 

[dulcielaroux]

I do not understand this - yes, amazing that Tom has walked and they have it on record like this. But also - Luella walks, yes it’s assisted but she’s worked way way harder to get where she is than Tom has - her abilities are far more of an achievement. She just has to undermine Luella at every possible opportunity. Thank goodness I have this forum to vent to because I just don’t know how I would stop myself from commenting on these posts. She’s out of control