Chinions off topic chat #5

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Does anyone else dread Halloween? I have severe anxiety and I really struggle answering the door, but where I live (and I’m sure it’s the same elsewhere) if you don’t answer the door then you get your house egged! I’m panicking just writing this😩
I'm the same. I'm fine with my own kids but interacting with other peoples kids is so awkward 😂 ironic considering I worked in a nursery for 5 years 🤦🏻‍♀️ the boyfriend is answering the door this year
 
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I'm the same. I'm fine with my own kids but interacting with other peoples kids is so awkward 😂 ironic considering I worked in a nursery for 5 years 🤦🏻‍♀️ the boyfriend is answering the door this year
I don’t know how I used to work in a nursery as my first job either because unless you’re family I find it so awkward with others kids😂
 
I just want to vent here because I swear I have the most unhinged family in the world!! So I was 8 months pregnant last August and my uncle’s wife (no relation at all to me) had a birthday party, I’d just worked a full shift and I was tired and my feet were swollen to hell but I still turned up and she ignored me the entire night and it was SO awkward so me and my boyfriend left early, ever since that day my uncle has just constantly sent abusive messages to my mum because I didn’t approach her and wish her a happy birthday??!? (assuming he didn’t send me them because I was pregnant and he didn’t want to be the cause of any stress induced labour) it’s still happening to this day over a year later, she wrote a Facebook status about me today that got sent to me (I’m blocked after the birthday party🤣) so I messaged him a really emotional message explaining that she’d done so as he’s not on Facebook so wouldn’t have seen it, expecting him to take my side, well stupid mistake because she can do absolutely no wrong in his eyes🙄 and he sent me multiple very long and abusive messages about how it’s ME in the wrong and that it’s ME who’s caused this and it’s ME who should apologise, I just replied and cut him off completely which obviously has broken my heart as we had such a great relationship growing up and he’s basically chosen someone he’s known for 3 years over his own niece! But I need to keep my own peace and I can’t do that with this pathetic childish argument looming over my head so I’ve now blocked all his modes of contact because clearly he’s blinded by her🤦🏻‍♀️
 
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I just want to vent here because I swear I have the most unhinged family in the world!! So I was 8 months pregnant last August and my uncle’s wife (no relation at all to me) had a birthday party, I’d just worked a full shift and I was tired and my feet were swollen to hell but I still turned up and she ignored me the entire night and it was SO awkward so me and my boyfriend left early, ever since that day my uncle has just constantly sent abusive messages to my mum because I didn’t approach her and wish her a happy birthday??!? (assuming he didn’t send me them because I was pregnant and he didn’t want to be the cause of any stress induced labour) it’s still happening to this day over a year later, she wrote a Facebook status about me today that got sent to me (I’m blocked after the birthday party🤣) so I messaged him a really emotional message explaining that she’d done so as he’s not on Facebook so wouldn’t have seen it, expecting him to take my side, well stupid mistake because she can do absolutely no wrong in his eyes🙄 and he sent me multiple very long and abusive messages about how it’s ME in the wrong and that it’s ME who’s caused this and it’s ME who should apologise, I just replied and cut him off completely which obviously has broken my heart as we had such a great relationship growing up and he’s basically chosen someone he’s known for 3 years over his own niece! But I need to keep my own peace and I can’t do that with this pathetic childish argument looming over my head so I’ve now blocked all his modes of contact because clearly he’s blinded by her🤦🏻‍♀️
Unfortunately people like that will never see the wrong in people who butter them up so much. You definitely did not do anything wrong. Just turning up that pregnant should’ve been enough and appreciated. If they really felt an issue they could’ve said something to you privately instead of being abusive. Family or not like you say you don’t need the drama or childish comments going on. Obviously isn’t nice losing a family member but if they’re going to be like that over something you’ve not even done they don’t deserve to be in your life
 
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Thought if I type this here I might feel better so here goes.. it’s gone 1.30am and I can’t sleep again, been sat on my own for the past 2 hours crying because I’m fed up and just feel like I’m stuck in a rut.. sick of life and sick of being ill.
I went for the camera down and camera up, long story short I asked for sedation because of my anxiety, rather the sedation didn’t work or it didn’t all go in the cannula (because I felt my hand wet) straight away they then tried to shove the camera down my throat, I gagged and told her I didn’t feel sedated or relaxed, she then tried again to which I pulled it out myself and was getting anxious, then said she wasn’t going to bother and went straight on to do the camera up, I managed to grit my teeth through this and just cry out a few times, that part was over quick then I was put in recovery room for a few mins then got told to get dressed. I felt like I was getting rushed out because they wanted to be home by 5pm.
Anyway they gave me a report from the camera up and all it said was ‘no evidence of cancer’ and to remove me from the 2 week path rule? I’ve had to wait months and months for this app and even the gastro said to me it will be quite a while because it’s not suspected cancer so why does it seem like that’s all they’ve checked for? There is a diagram on my report where it shows where they went with the camera and they didn’t even go up to the first turn in my colon (where I’ve always reported where the pain is) so what a bleeping waste all that has been for.
Ive always suffered with IBS but these past 2 years I just know it’s got worse and I don’t know why and it just seems like I’m banging my head against the wall trying to find out why.. Everyday I suffer with migraines and headaches, I’m constantly popping cocodamol and paracetamol like sweets, I don’t sleep, find it hard to fall asleep and when I do I’m waking up within the next hour, I’ve got really bad fatigue to the point where I can’t even be arsed doing anything apart from napping in the day. I work a few days a week and the next day after I’ve finished I’m in bed sleeping the whole day I just feel like I can’t function and I’m wiped out all the time.
Ive sat down tonight and thought about when all these symptoms have started to get worse and it started not long after I nursed by best friend before she passed with cancer which was traumatic so all them feelings have come back tonight and that’s not helped with the crying 😢 I’m thinking could it just be my mental health that’s got worse and making me more ill or is it to do with my bowels/stomach or could it be another underlining condition. My head is fucked with it all, It’s the not knowing and not having an answer that’s torture.. 😢 my doctors are crap.. I feel like I’m the one who’s trying to figure this out alone but I’m getting nowhere so I just have to sit and suffer for more months and months and feel like my life is wasting away.
It’s now gone 2am I’m not even tired but I’m going to finish this now because it will be ten pages long if I carry on, going to put big brother on to try and take my mind of all this going round in my head. Sorry for the whinging/moaning!.. x
 
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Thought if I type this here I might feel better so here goes.. it’s gone 1.30am and I can’t sleep again, been sat on my own for the past 2 hours crying because I’m fed up and just feel like I’m stuck in a rut.. sick of life and sick of being ill.
I went for the camera down and camera up, long story short I asked for sedation because of my anxiety, rather the sedation didn’t work or it didn’t all go in the cannula (because I felt my hand wet) straight away they then tried to shove the camera down my throat, I gagged and told her I didn’t feel sedated or relaxed, she then tried again to which I pulled it out myself and was getting anxious, then said she wasn’t going to bother and went straight on to do the camera up, I managed to grit my teeth through this and just cry out a few times, that part was over quick then I was put in recovery room for a few mins then got told to get dressed. I felt like I was getting rushed out because they wanted to be home by 5pm.
Anyway they gave me a report from the camera up and all it said was ‘no evidence of cancer’ and to remove me from the 2 week path rule? I’ve had to wait months and months for this app and even the gastro said to me it will be quite a while because it’s not suspected cancer so why does it seem like that’s all they’ve checked for? There is a diagram on my report where it shows where they went with the camera and they didn’t even go up to the first turn in my colon (where I’ve always reported where the pain is) so what a bleeping waste all that has been for.
Ive always suffered with IBS but these past 2 years I just know it’s got worse and I don’t know why and it just seems like I’m banging my head against the wall trying to find out why.. Everyday I suffer with migraines and headaches, I’m constantly popping cocodamol and paracetamol like sweets, I don’t sleep, find it hard to fall asleep and when I do I’m waking up within the next hour, I’ve got really bad fatigue to the point where I can’t even be arsed doing anything apart from napping in the day. I work a few days a week and the next day after I’ve finished I’m in bed sleeping the whole day I just feel like I can’t function and I’m wiped out all the time.
Ive sat down tonight and thought about when all these symptoms have started to get worse and it started not long after I nursed by best friend before she passed with cancer which was traumatic so all them feelings have come back tonight and that’s not helped with the crying 😢 I’m thinking could it just be my mental health that’s got worse and making me more ill or is it to do with my bowels/stomach or could it be another underlining condition. My head is fucked with it all, It’s the not knowing and not having an answer that’s torture.. 😢 my doctors are crap.. I feel like I’m the one who’s trying to figure this out alone but I’m getting nowhere so I just have to sit and suffer for more months and months and feel like my life is wasting away.
It’s now gone 2am I’m not even tired but I’m going to finish this now because it will be ten pages long if I carry on, going to put big brother on to try and take my mind of all this going round in my head. Sorry for the whinging/moaning!.. x
I’m so sorry this is happening to you😞 is there any way you can appeal or push for further investigation? X
 
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Thought if I type this here I might feel better so here goes.. it’s gone 1.30am and I can’t sleep again, been sat on my own for the past 2 hours crying because I’m fed up and just feel like I’m stuck in a rut.. sick of life and sick of being ill.
I went for the camera down and camera up, long story short I asked for sedation because of my anxiety, rather the sedation didn’t work or it didn’t all go in the cannula (because I felt my hand wet) straight away they then tried to shove the camera down my throat, I gagged and told her I didn’t feel sedated or relaxed, she then tried again to which I pulled it out myself and was getting anxious, then said she wasn’t going to bother and went straight on to do the camera up, I managed to grit my teeth through this and just cry out a few times, that part was over quick then I was put in recovery room for a few mins then got told to get dressed. I felt like I was getting rushed out because they wanted to be home by 5pm.
Anyway they gave me a report from the camera up and all it said was ‘no evidence of cancer’ and to remove me from the 2 week path rule? I’ve had to wait months and months for this app and even the gastro said to me it will be quite a while because it’s not suspected cancer so why does it seem like that’s all they’ve checked for? There is a diagram on my report where it shows where they went with the camera and they didn’t even go up to the first turn in my colon (where I’ve always reported where the pain is) so what a bleeping waste all that has been for.
Ive always suffered with IBS but these past 2 years I just know it’s got worse and I don’t know why and it just seems like I’m banging my head against the wall trying to find out why.. Everyday I suffer with migraines and headaches, I’m constantly popping cocodamol and paracetamol like sweets, I don’t sleep, find it hard to fall asleep and when I do I’m waking up within the next hour, I’ve got really bad fatigue to the point where I can’t even be arsed doing anything apart from napping in the day. I work a few days a week and the next day after I’ve finished I’m in bed sleeping the whole day I just feel like I can’t function and I’m wiped out all the time.
Ive sat down tonight and thought about when all these symptoms have started to get worse and it started not long after I nursed by best friend before she passed with cancer which was traumatic so all them feelings have come back tonight and that’s not helped with the crying 😢 I’m thinking could it just be my mental health that’s got worse and making me more ill or is it to do with my bowels/stomach or could it be another underlining condition. My head is fucked with it all, It’s the not knowing and not having an answer that’s torture.. 😢 my doctors are crap.. I feel like I’m the one who’s trying to figure this out alone but I’m getting nowhere so I just have to sit and suffer for more months and months and feel like my life is wasting away.
It’s now gone 2am I’m not even tired but I’m going to finish this now because it will be ten pages long if I carry on, going to put big brother on to try and take my mind of all this going round in my head. Sorry for the whinging/moaning!.. x
Sending you the biggest 💓
Doctors are dicks. I spent the 9 years going to docs due to respiratory issues and like you I was fobbed off they would check for one thing then say nothing more we can do so i have an idea how you are feeling.
I recently changed GP and got a private referral and although costly it's worth every penny. The specialist couldn't understand why nobody listened or fully investigated my problems. I'm now getting tests to get to the root of the issue. Don't give up I know its hard to change GP and waiting lists are terrible but do it also make a complaint about the doctor and the hospital/person who didn't do the full investigations- especially after advising you were anxious they should have been a lot more understanding.
Have you had counselling after nursing your friend? If not definitely start there and you won't he waiting as long as a GP/specialist appointment.
It feels like a viscous circle when you are caught up in it but hopefully that will change soon. We are all here to listen. Take care xx
 
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Thought if I type this here I might feel better so here goes.. it’s gone 1.30am and I can’t sleep again, been sat on my own for the past 2 hours crying because I’m fed up and just feel like I’m stuck in a rut.. sick of life and sick of being ill.
I went for the camera down and camera up, long story short I asked for sedation because of my anxiety, rather the sedation didn’t work or it didn’t all go in the cannula (because I felt my hand wet) straight away they then tried to shove the camera down my throat, I gagged and told her I didn’t feel sedated or relaxed, she then tried again to which I pulled it out myself and was getting anxious, then said she wasn’t going to bother and went straight on to do the camera up, I managed to grit my teeth through this and just cry out a few times, that part was over quick then I was put in recovery room for a few mins then got told to get dressed. I felt like I was getting rushed out because they wanted to be home by 5pm.
Anyway they gave me a report from the camera up and all it said was ‘no evidence of cancer’ and to remove me from the 2 week path rule? I’ve had to wait months and months for this app and even the gastro said to me it will be quite a while because it’s not suspected cancer so why does it seem like that’s all they’ve checked for? There is a diagram on my report where it shows where they went with the camera and they didn’t even go up to the first turn in my colon (where I’ve always reported where the pain is) so what a bleeping waste all that has been for.
Ive always suffered with IBS but these past 2 years I just know it’s got worse and I don’t know why and it just seems like I’m banging my head against the wall trying to find out why.. Everyday I suffer with migraines and headaches, I’m constantly popping cocodamol and paracetamol like sweets, I don’t sleep, find it hard to fall asleep and when I do I’m waking up within the next hour, I’ve got really bad fatigue to the point where I can’t even be arsed doing anything apart from napping in the day. I work a few days a week and the next day after I’ve finished I’m in bed sleeping the whole day I just feel like I can’t function and I’m wiped out all the time.
Ive sat down tonight and thought about when all these symptoms have started to get worse and it started not long after I nursed by best friend before she passed with cancer which was traumatic so all them feelings have come back tonight and that’s not helped with the crying 😢 I’m thinking could it just be my mental health that’s got worse and making me more ill or is it to do with my bowels/stomach or could it be another underlining condition. My head is fucked with it all, It’s the not knowing and not having an answer that’s torture.. 😢 my doctors are crap.. I feel like I’m the one who’s trying to figure this out alone but I’m getting nowhere so I just have to sit and suffer for more months and months and feel like my life is wasting away.
It’s now gone 2am I’m not even tired but I’m going to finish this now because it will be ten pages long if I carry on, going to put big brother on to try and take my mind of all this going round in my head. Sorry for the whinging/moaning!.. x
Never ever apologise for how you feel. You’re not moaning at all and we’re all here to listen and help you ❤

I honestly feel like we’re the same person because I feel exactly the same and have the same experience. When I had my first endoscopy I was 14 and it actually traumatised me. I was not sedated at all, the nurse said I was and in 24 hours I won’t even remember it. To this day I still remember everything and feel so triggered by it and it’s made me anxious whenever I have an appointment now. Report it to pals as I did and they were so nice to me saying I shouldn’t have been treated that way and should’ve felt calm and relaxed and not had a procedure forced upon me.

I think it’s half mental health but caused my physical symptoms. Whenever my gastro symptoms are worse. My mental health declines because I just get so fed up of feeling like tit 24/7. Worrying about where toilets are, trying to plan nice things but cancelling because there’s no toilet or my stomachs so bad I can’t leave the bathroom. It’s very common that the stomach is part of the nervous system so if the stomach is bad so is your head.

Has your dr done any blood tests? I felt fatigued and was sleeping 24/7 and had 3 months off work end of last year because I became so poorly I couldn’t eat and lost so much weight I had to be fed via a tube in my nose. My drs did bloods and found I was deficient in vitamin d, b12, iron and folic acid. It’s very common with gastro issues to suffer with these as the stomach lining is damaged or irritated so the vitamins aren’t being absorbed. I’m not 100% but since being on the vitamins it does help me feel less fatigued so may be worth asking for some bloods to be done. Or even some zopiclone to help you sleep better as being up all night can’t be helping.

I’m so sorry you’re struggling but please message me whenever you need to. I know exactly what it’s like to just want to feel normal and have no health issues. Sending you all my love ❤
 
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I’m so sorry this is happening to you😞 is there any way you can appeal or push for further investigation? X
I’ve got an app with the gastro in 2 weeks so I’m hoping he can advise what’s next, I’ve only ever told him about my stomach and bowel problems so maybe I need to tell him everything, just feel like I’m waiting a lifetime to get anywhere 😢


Sending you the biggest 💓
Doctors are dicks. I spent the 9 years going to docs due to respiratory issues and like you I was fobbed off they would check for one thing then say nothing more we can do so i have an idea how you are feeling.
I recently changed GP and got a private referral and although costly it's worth every penny. The specialist couldn't understand why nobody listened or fully investigated my problems. I'm now getting tests to get to the root of the issue. Don't give up I know its hard to change GP and waiting lists are terrible but do it also make a complaint about the doctor and the hospital/person who didn't do the full investigations- especially after advising you were anxious they should have been a lot more understanding.
Have you had counselling after nursing your friend? If not definitely start there and you won't he waiting as long as a GP/specialist appointment.
It feels like a viscous circle when you are caught up in it but hopefully that will change soon. We are all here to listen. Take care xx
No I’ve never had counselling, I had a telephone app with the doctor a week after she died because I was in a bad state and all they did was just sign me off work for 4 weeks. I think I went through every emotion when I lost her, there were a lot of duck ups with the McMillan team and district nurses and I was so angry she was suffering but I was feeling guilty too because she always made me promise never to put her in a hospice and never tell her when the time was coming and i had to keep lying in the last few months of caring for her at home. I’ve never lost anyone so close to me growing up and I always thought people just pass peacefully (especially with a driver in) wow I got that bleeping wrong. I didn’t know people can have terminal agitation and it was awful to watch and heartbreaking that you can’t do anything about it 😢😢
 
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I’ve got an app with the gastro in 2 weeks so I’m hoping he can advise what’s next, I’ve only ever told him about my stomach and bowel problems so maybe I need to tell him everything, just feel like I’m waiting a lifetime to get anywhere 😢




No I’ve never had counselling, I had a telephone app with the doctor a week after she died because I was in a bad state and all they did was just sign me off work for 4 weeks. I think I went through every emotion when I lost her, there were a lot of duck ups with the McMillan team and district nurses and I was so angry she was suffering but I was feeling guilty too because she always made me promise never to put her in a hospice and never tell her when the time was coming and i had to keep lying in the last few months of caring for her at home. I’ve never lost anyone so close to me growing up and I always thought people just pass peacefully (especially with a driver in) wow I got that bleeping wrong. I didn’t know people can have terminal agitation and it was awful to watch and heartbreaking that you can’t do anything about it 😢😢
Sounds like maybe cbt or something similar will help you. Can’t have been easy at all to see someone you love so much going through that 😞 the cbt will help you not feel so guilty or blame yourself. Easier said than done but just tell yourself it’s what she wanted. She wanted to just live the last few days and not know or sit and count down until the day. You did a really brave and strong thing looking after her and keeping her going and I’m sure it meant everything to her ❤
 
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Never ever apologise for how you feel. You’re not moaning at all and we’re all here to listen and help you ❤

I honestly feel like we’re the same person because I feel exactly the same and have the same experience. When I had my first endoscopy I was 14 and it actually traumatised me. I was not sedated at all, the nurse said I was and in 24 hours I won’t even remember it. To this day I still remember everything and feel so triggered by it and it’s made me anxious whenever I have an appointment now. Report it to pals as I did and they were so nice to me saying I shouldn’t have been treated that way and should’ve felt calm and relaxed and not had a procedure forced upon me.

I think it’s half mental health but caused my physical symptoms. Whenever my gastro symptoms are worse. My mental health declines because I just get so fed up of feeling like tit 24/7. Worrying about where toilets are, trying to plan nice things but cancelling because there’s no toilet or my stomachs so bad I can’t leave the bathroom. It’s very common that the stomach is part of the nervous system so if the stomach is bad so is your head.

Has your dr done any blood tests? I felt fatigued and was sleeping 24/7 and had 3 months off work end of last year because I became so poorly I couldn’t eat and lost so much weight I had to be fed via a tube in my nose. My drs did bloods and found I was deficient in vitamin d, b12, iron and folic acid. It’s very common with gastro issues to suffer with these as the stomach lining is damaged or irritated so the vitamins aren’t being absorbed. I’m not 100% but since being on the vitamins it does help me feel less fatigued so may be worth asking for some bloods to be done. Or even some zopiclone to help you sleep better as being up all night can’t be helping.

I’m so sorry you’re struggling but please message me whenever you need to. I know exactly what it’s like to just want to feel normal and have no health issues. Sending you all my love ❤
we do sound like we’re the same!!
I searched the meds up what they give me for sedation and there is quite a few complaints online of it not always working, I begged her to give me more when I was on the bed but she said I had the most.

I’m starting to think it is my mental health that’s got worse that’s causing it all because I’ve never been like this emotional all the time and it’s getting harder to just keep putting a brave face on and getting thru the days, when the doctor rang about going through my meds last week I told him I felt like I was going back to the way when I had PND and he said he will up my meds and give me a few phone numbers if I wanted to seek help and talk but I dont want to phone people just to hear ‘you’ll be ok’ I just want to have a normal life, get up in the morning feel refreshed, go out do some shopping, have the energy to do things without breaking down or running to a bleeping toilet.
I’ll make an app face to face with the doctor (if I can) and see if I get anywhere, if not I’ll think about changing doctors, do I just go to the doctors I want and they then get my records or do I have to do it?
 
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we do sound like we’re the same!!
I searched the meds up what they give me for sedation and there is quite a few complaints online of it not always working, I begged her to give me more when I was on the bed but she said I had the most.

I’m starting to think it is my mental health that’s got worse that’s causing it all because I’ve never been like this emotional all the time and it’s getting harder to just keep putting a brave face on and getting thru the days, when the doctor rang about going through my meds last week I told him I felt like I was going back to the way when I had PND and he said he will up my meds and give me a few phone numbers if I wanted to seek help and talk but I dont want to phone people just to hear ‘you’ll be ok’ I just want to have a normal life, get up in the morning feel refreshed, go out do some shopping, have the energy to do things without breaking down or running to a bleeping toilet.
I’ll make an app face to face with the doctor (if I can) and see if I get anywhere, if not I’ll think about changing doctors, do I just go to the doctors I want and they then get my records or do I have to do it?
It’s awful isn’t it. I think people don’t realise how being physically unwell really effects you mentally as you just want to live a normal life but feel you can’t 😞

are you on any medication to help? I wad on omeprazol and buscopan but found it did f all. After having all my investigations I’ve been on nizatidine, fexofenadine, famotidine and Mebeverine since March and the difference is amazing! They help so so much and I find are way better than the buscopan and omeprazol as they weren’t strong enough. I was referred to allergy clinic as well as gastro and they found I was allergic to histamine which is tit as your body naturally makes it but a lot of foods are high in histamine so it makes sense why I was so unwell whenever I ate or had This red flush rash all over my cheeks and chest. Since being on fexofenadine and famotidine I haven’t once had a rash so it’s definitely helping me eat better so it may be worth asking for a referral to allergy too incase there’s any other issues causing your stomach to be worse. Once you find a new gp ask them you’d like to switch to them and then you fill out a form with your details and they then go to your old gp and request a data transfer so all your old notes go to them
 
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It’s awful isn’t it. I think people don’t realise how being physically unwell really effects you mentally as you just want to live a normal life but feel you can’t 😞

are you on any medication to help? I wad on omeprazol and buscopan but found it did f all. After having all my investigations I’ve been on nizatidine, fexofenadine, famotidine and Mebeverine since March and the difference is amazing! They help so so much and I find are way better than the buscopan and omeprazol as they weren’t strong enough. I was referred to allergy clinic as well as gastro and they found I was allergic to histamine which is tit as your body naturally makes it but a lot of foods are high in histamine so it makes sense why I was so unwell whenever I ate or had This red flush rash all over my cheeks and chest. Since being on fexofenadine and famotidine I haven’t once had a rash so it’s definitely helping me eat better so it may be worth asking for a referral to allergy too incase there’s any other issues causing your stomach to be worse. Once you find a new gp ask them you’d like to switch to them and then you fill out a form with your details and they then go to your old gp and request a data transfer so all your old notes go to them
Yeah they gave me 20mg omeprazole and 135mg Mebeverine.. absolutely crap!! Alls I take now is buscopan IBS and I don’t even think they do anything. I get up every morning and my stomach feels like I’ve been on the waltzers, no matter what I eat or don’t eat I will still end up opening my bowels about 5/6/7 times a day, it’s draining… and I never feel like I’ve emptied myself properly. I dread going anywhere but work & home, I’ve now put a stone on in weight because I’m not as active as I used to be and I think this is why the gastro said to me he doesn’t think it’s anything serious because I’m not losing weight.

I’ve had blood tests, a celiac test and a CT scan but nothing was found apart from a benign tumour on my adrenal gland.

I’ve lost count the amount of times I’ve been the walk in or the doctors over this and I just feel like I get nowhere. I’ve sat and cried to a nurse in the walk in centre because the pain in my stomach got so bad it was radiating to my back and up to the back of my head, I was given amitriptyline but they didn’t help either. I lost 8lb that week because I was so ill and not eating.
Some times it flares up really bad and I don’t know what causes it. I last had bloods done in February so maybe I need more?

I think I need to tell the doctor face to face to go over all my meds because I’m not getting any relief from them, I’ve just been on my patient access and seen this… I haven’t booked any apps so dont know what it means??

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Yeah they gave me 20mg omeprazole and 135mg Mebeverine.. absolutely crap!! Alls I take now is buscopan IBS and I don’t even think they do anything. I get up every morning and my stomach feels like I’ve been on the waltzers, no matter what I eat or don’t eat I will still end up opening my bowels about 5/6/7 times a day, it’s draining… and I never feel like I’ve emptied myself properly. I dread going anywhere but work & home, I’ve now put a stone on in weight because I’m not as active as I used to be and I think this is why the gastro said to me he doesn’t think it’s anything serious because I’m not losing weight.

I’ve had blood tests, a celiac test and a CT scan but nothing was found apart from a benign tumour on my adrenal gland.

I’ve lost count the amount of times I’ve been the walk in or the doctors over this and I just feel like I get nowhere. I’ve sat and cried to a nurse in the walk in centre because the pain in my stomach got so bad it was radiating to my back and up to the back of my head, I was given amitriptyline but they didn’t help either. I lost 8lb that week because I was so ill and not eating.
Some times it flares up really bad and I don’t know what causes it. I last had bloods done in February so maybe I need more?

I think I need to tell the doctor face to face to go over all my meds because I’m not getting any relief from them, I’ve just been on my patient access and seen this… I haven’t booked any apps so dont know what it means??

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Yeah I’d definitely ask the GP for more help with medication as for me the buscopan and omeprazol did nothing. Mebervine I find helps me but the new medication I’m on helps so much more! Or even ask your gastro if they can ask your gp to prescribe it. My gastro said I need to be on them and I just rang my gp and he said yeah that’s fine and prescribed it to me.

I hate that drs think if you put weight on you’re not struggling. My sister has the same issues as me and it’s obviously genetic as our mum is a coeliac and has stomach issues too. I lost 2 stone and was sick every time I ate in November last year and was in hospital for 2 weeks and I get so much help and support. Yet my sister who’s still sick most times she eats gets no help because her dr says she’s maintaining weight! It’s so awful to dismiss things down to weight because being sick when you eat most meals is not normal!

I really hope you’re able to get the help you deserve. No one should have to live a life in pain and worry because they’re not being treated properly
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Not had that come up on my patient access so no idea what it means. I thought maybe it’s to discuss the letter they got from your endoscopy but just looked at my appointments and Mine says appointment re results
 
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Yeah I’d definitely ask the GP for more help with medication as for me the buscopan and omeprazol did nothing. Mebervine I find helps me but the new medication I’m on helps so much more! Or even ask your gastro if they can ask your gp to prescribe it. My gastro said I need to be on them and I just rang my gp and he said yeah that’s fine and prescribed it to me.

I hate that drs think if you put weight on you’re not struggling. My sister has the same issues as me and it’s obviously genetic as our mum is a coeliac and has stomach issues too. I lost 2 stone and was sick every time I ate in November last year and was in hospital for 2 weeks and I get so much help and support. Yet my sister who’s still sick most times she eats gets no help because her dr says she’s maintaining weight! It’s so awful to dismiss things down to weight because being sick when you eat most meals is not normal!

I really hope you’re able to get the help you deserve. No one should have to live a life in pain and worry because they’re not being treated properly
Im in work tomorrow so looks like I won’t be able to get into the doctors till at least Tuesday, I’ll see what comes of that and if they are useless as always I’ll speak to the gastro about the meds when I see him in 2 weeks. I’ll also have a look around my area for some better doctors I could join, in my doctors you just get fobbed off with any nurse practitioner and they never listen 🙄
Thanks for your replies and others in this thread ❤ it felt good to type that last night and not just bottle it up.
 
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Im in work tomorrow so looks like I won’t be able to get into the doctors till at least Tuesday, I’ll see what comes of that and if they are useless as always I’ll speak to the gastro about the meds when I see him in 2 weeks. I’ll also have a look around my area for some better doctors I could join, in my doctors you just get fobbed off with any nurse practitioner and they never listen 🙄
Thanks for your replies and others in this thread ❤ it felt good to type that last night and not just bottle it up.
No worries. Always here if you need anything it’s always better to talk and get it out ❤ fingers crossed your appointment goes well and they’re able to help you 🤞🏻
 
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I’ve got an app with the gastro in 2 weeks so I’m hoping he can advise what’s next, I’ve only ever told him about my stomach and bowel problems so maybe I need to tell him everything, just feel like I’m waiting a lifetime to get anywhere 😢



No I’ve never had counselling, I had a telephone app with the doctor a week after she died because I was in a bad state and all they did was just sign me off work for 4 weeks. I think I went through every emotion when I lost her, there were a lot of duck ups with the McMillan team and district nurses and I was so angry she was suffering but I was feeling guilty too because she always made me promise never to put her in a hospice and never tell her when the time was coming and i had to keep lying in the last few months of caring for her at home. I’ve never lost anyone so close to me growing up and I always thought people just pass peacefully (especially with a driver in) wow I got that bleeping wrong. I didn’t know people can have terminal agitation and it was awful to watch and heartbreaking that you can’t do anything about it 😢😢
I’m so sorry you are dealing with all this. Your friend was so lucky to have you ❤
Defiantly make a face to face appointment with GP and get everything out in the open to them. If that doesn’t work you can just go to another doctor and register with them, they do all the work then transferring you over. Mental health has such an impact on your physical health they both go hand in hand. Like stargirl said ask about cbt I think that would help loads. Defiantly also make a complaint about who ever did the procedure for you, that doesn’t sound right at all. They shouldn’t of rushed it and should of made sure you was comfortable. I hope you can get some answers ❤
 
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I’m so sorry you are dealing with all this. Your friend was so lucky to have you ❤
Defiantly make a face to face appointment with GP and get everything out in the open to them. If that doesn’t work you can just go to another doctor and register with them, they do all the work then transferring you over. Mental health has such an impact on your physical health they both go hand in hand. Like stargirl said ask about cbt I think that would help loads. Defiantly also make a complaint about who ever did the procedure for you, that doesn’t sound right at all. They shouldn’t of rushed it and should of made sure you was comfortable. I hope you can get some answers ❤
Thanks Lauren I will do ❤❤
 
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@Redgirl81 sorry only replying now I was in work and lurking through the day.
I'd definitely recommend counselling or cbt to help with the loss of your friend and any anxiety you may be feeling. I always know when my heads in a bad place as my stomach tells me first - my counseller said it's very common that MH and stomach issues happen together.
Don't ever be afraid to talk to us here- I wasn't as helpful as @stargirl23 and others but always happy to listen ❤
 
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@Redgirl81 sorry only replying now I was in work and lurking through the day.
I'd definitely recommend counselling or cbt to help with the loss of your friend and any anxiety you may be feeling. I always know when my heads in a bad place as my stomach tells me first - my counseller said it's very common that MH and stomach issues happen together.
Don't ever be afraid to talk to us here- I wasn't as helpful as @stargirl23 and others but always happy to listen ❤
Thank you 😊❤

Tattle keeps telling me my post is too short to reply so thought I would write this 🙈
 
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