She is so so loved isn’t she 
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She sure is and by millions of ppl that have never even met her. She was so unlucky being burdened with this illness, but how lucky is she to have the family she has.She is so so loved isn’t she
Went to my first baby sensory class with my youngest today and it was so nice getting some normality. It made me emotional looking at her little face so full of amazement at all the lights and the music etc. At exactly the same time I just couldn’t help but feel so sad that that little girl and her parents never got the chance to experience anything like that 
I really respect the way that they are both still raising awareness and giving invaluable advice to other parents experiencing the same heartache, whilst going through their own trauma.
There are both precious people
There are both precious people
Who’s his sister xx
Precious girl having a little play on Saf's story
Love the story Saff has just put up. It shows her as a baby should be - getting into everything haha. Poor little thing
It’s so hard to comprehend, apart from the tired look obviously from medication and the line in her nose she looks like a completely normal baby!! And to know she won’t be earth side in the coming days is just so hard to accept. Just like my wee son, everything straight into the gob 
wee pet
wee pet The way Saff looks at her in the latest she's put up, you can see the heartbreak in her eyes 
I'm sobbing
I'm sobbing Aw it's broke me.The way Saff looks at her in the latest she's put up, you can see the heartbreak in her eyes
Such a beautiful moment between them, I am in bits watching it, the sadness in her face when she was singing to Azaylia was so raw.
Utterly heartbreaking.
Utterly heartbreaking.
Honestly everytime I see this little baby’s face I burst into tears. Life can be so cruel sometimes
I know it's not the same but they done some amazing sensory stuff with lights and that for her when she was in hospital. Her room always looked magicalWent to my first baby sensory class with my youngest today and it was so nice getting some normality. It made me emotional looking at her little face so full of amazement at all the lights and the music etc. At exactly the same time I just couldn’t help but feel so sad that that little girl and her parents never got the chance to experience anything like that
Aww saff playing “when you believe” I really do hope for a miracle for this precious baby
I feel so uncomfortable watching but I can’t not. She is so so beautiful just like her mum. You can see how tired she is and you can see the heartbreak in Saffs eyes. It’s so upsetting knowing there are people going through this right now. The awareness they are raising deserves awards they are incredible
That baby is so exhausted yet always manages to smile she deserves so much better such an angel.
she deserves so much better such an angel.
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Same it’s set me off, she’s been so strong but you can see it in her eyes she’s close to tears on every video god bless her, even though her voice is strong. She’s an incredible woman and the strongest mother my heart goes out to her every time I see herThe way Saff looks at her in the latest she's put up, you can see the heartbreak in her eyes
that makes me feel a little better 
Wow the latest stories have broke me 
what a brave brave mummy with her brave brave little princess x
what a brave brave mummy with her brave brave little princess x- Status