TiffanyThinks #5

[Keatawood77]

There is ALWAYS a team. It’s not just her and her surgeon. Her care is a collaborative effort involving the surgeon, the oncologist, nurses, support staff, radiographers etc.


the scan will be done. The images are sent to her oncologist and surgeon. They are uploaded to her file. The radiologist has to officially look at them and write a report, which is then given back to her oncologist to review. The oncologist will also have looked at the scan themselves and are usually good at interpreting them although they can’t officially say much until the report is back. They will then make an appointment to discuss the scan results with her. This usually takes a week or two - sometimes less, sometimes more. But when she attends the appointments to discuss results they will tell her in plain English exactly what the results are - and usually will also provide a copy of the report. It is NOT a wishy washy chat where the patient leaves with no information. She’s play acting with this whole “it’s so confusing/no one knows what’s going on” nonsense. It’s BOLLOCKS.

Thank you! It would be great for her followers to add things up and think about this before going after the medical professionals with torches and pitchforks. She's giving us a selectively edited version of events. There's a reason why she cuts the calls she receives so no one can hear the full story on video.

 

[suzeq]

This might be random, but...is LARC almost always caused by HPV, or just mostly anal cancer? Or would Tiffany not have had genetic testing if they already knew hers was caused by HPV?

 

[Sheba]

Bummer! Cannot watch your super surgeons show in my country. Maybe on YouTube.

 

[LeonorG]

They didn’t say she had 6-9 months to live tho. They said she had 6-9 months till the tumour spreads and then it would be too late for surgery.

It was mentioned in at least 2 vlogs. But I remember him saying that she has 6 - 12 months to live without surgery. He said that he will attempt it and that without it she will not live. This was after she was panicking about having been told that the tumour did not shrink and surgery may not be possible and that the surgeon and her oncologists needed some time to think about what to do with her. And he said she will have chemo to prevent spreading. I think we are all remembering things differently haha. You remember him saying that she has 6 - 12 months to live without treatment, no? I would need to get the transcripts from those videos to check but I cannot bear to look at her.

 

[ginnyw]

@ginnyw She's a piece of work all right!

She is, but isn't it awful that she is also so ILL? It's hard to react properly or compassionately which is a shame because it would be good to be able to do that.

 

[LeonorG]

People aren't believing her because she doesn't give an accurate account of her situation and she drip feeds minimal information. Tiffany didn't even mention 'wait and watch' as an official term until people were saying this in her comments. She said her surgeon said it might be better for her mental health if she waits, that was the reasoning she said her surgeon gave. My thoughts are she was incredibly undereducated on what the surgery entailed and when the surgeon was fully explaining it to her she had a breakdown and said she didn't want to have it. Why would waiting to see if the cancer becomes inoperable (which she said the surgeon told her it could become) be better for her mental health unless she had a strong aversion to habing the surgery.

The surgeon told her it would be better for her mental health to have the surgery. He knew she was already fragile and the pressure of the wait and watch would add an extra stress. Not that having the surgery would not be difficult on her psyche ...

 

[paloma64]

That is true, she believes that her cancer is gone, even was talking about returning to work. Let's pray it is true.

Something has just crossed my mind. Is it possible that her family have been told she’s terminal and they have requested to keep the information from her? That would explain the constant ambiguity from the specialist. The avoidance of her surgeon and the way Mat and Ama just smile and agree with all her wishes? Her surgeon advised her not to go private. He’s hardly involved any more. Her bleeding, nausea and frailty sadly are serious. I’m surprised she’s not on fluids. Generally from what I know there comes a point when fluids aren’t given and it’s just pain relief and anti sickness meds. There’s also no mention of the Mc Milan nurse that is always assigned to a cancer patient here in the UK to help support not only the patient but the family too. This is all extremely sad.

 

[Idrisrex]

I've heard she cant back in the NHS system if she goes private. That surgery and stay in the hospital and fillow up medical care will be a couple million dollars. Good luck.

You can not collect these amounts of money on a simple GFM. At it most you can get 500 K.(€,£, $)

 

[SunshineGirly]

Why is it interesting?

Creating a pouch from inside so no need for a stoma

 

[BettyCrockerr]

I believe you have hit the nail on the head now! She is enrolled in this clinical trial but is being deliberately vague and confusing about it. She must have had at least a partial improvement so she is on the 8 week repeat of scans side of the protocol. Her surgeon is heavily involved with research and lecturing and likely this is his main interest of his practice. If she didn’t have at least a partial response or no visible tumour they go right into surgery. He told her that he coukd offer surgery instead but clearly he thinks she may have a better outcome or extended life with this protocol. The issue is IT IS A RESEARCH PROJECT. Not sure how many have been enrolled thus far and how good their outcomes are vs the control groups which are thise that actually go right to surgery after their CRT IS DONE. She chooses to try and avoid the surgery at all costs even though tnis is emerging research. It has not been proven as yet I believe. Its a crap shoot imo and at her late stage I am skeptical. Its her life, its her choice but be frank. Tell viewers you chose this path and they will support you. Dont try and evade what may be a good choice for you and dont try and hide that you have had some good news and what that news actually is. Lets see if she gets more CRT or surgery after her next meeting with the surgeon. We will then know what her response likely was. If more growth or no rebression then the chart goes to surgery. Its a MEDICAL MYSTERY TOUR Snakes and Ladders Edition! Im going to ask her plainly if she is on this research protocol. Of course she wont admit it.

Clinical trial?????

 

[AlwaysScience]

If any of you know: does YouTube (or an affiliate) handle production, inventory and shipment of the “We Got This” tshirts, sweatshirts, etc?

 

[mum2three26]

I can’t see the dislikes on her YT vids ?? Has she turned them off?

 

[Wildflowerss]

Oh she made it clear that she did know more information about why in her latest video but we just have to 'wait for the next video' for her to explain it

Should I be shocked? She's too much. I guess I'll go watch the entire thing. Why not get a few eye rolls in for the day.

 

[PW212]

I really don't think Tiffany is on a clinical trial.. It definitely wouldn't have just been sprung on her in her pre-op appointment with her surgeon

It wasnt sprung on her. I believe it was given to her as an option based on her initial biopsies and scan results by her surgeon and or team. They know she really wanted to try and avoid a total exenteration and they had this option of a watch and wait trial that is going on in different countries. They had to wait till her follow up in his office because they had to make sure she met the inclusion criteria. It is voluntary. Otherwise, she can opt out and have the surgery, as he offered. She chose to opt in to the study. Why she doesn't fully explain this is unclear.

 

[Ju19]

Tea with Tiffany?
What do we all think?
More mumbo jumbo + riddles

 

[Wildflowerss]

To all Americans on here,
Certain politicians (on the right, cough cough) want us to believe that the good ole USA has the best of everything - most of all healthcare - and that Big Bad Socialized Medicine is the devil incarnate. Use this thread to educate yourselves; many here know the NHS inside and out and are happy to answer your questions. Just ask!

the us has the top five best Cancer treatment and research centers in the world but okay sis. go off

 

[Wildflowerss]

Tick (tock), tick (tock), tick (tock)…nothing yet…

she usually posts 1pm EST , so its been an hour past due. Maybe she decided to wait for later or just Tuesday's video.

 

[EmyUrban]

I don't think many understand watch and wait?
Watch and wait usually always follows a partial or full (complete) response to treatment. If disease progresses, the patient comes of watch and wait and has surgery, radiation, starts a new line of treatment.
In 4 years my husband has been on 'watch and wait' 3 times. When the next scan has showed ACTIVE disease, he comes off watch and wait.
I see on tiffanys videos and on here that many don't appear to understand watch and wait and the reason it is part of standard care.

An I totally agree too about that part : when the scans show active disease you come off the watch and wait. That is the point of wait and watch …

 

[EmyUrban]

The chance that the WW option ends well is only 20%.

Deferral of surgery for rectal cancer: the patients' perspective on the recent NICE recommendations - The BMJ

Earlier this year the National Institute for Health and Care Excellence published new guidelines on the management of colorectal cancer which aims to improve quality of life and survival. [1] [...]More...

blogs.bmj.com

I think that it says only 20% are good candidates for wait and watch ? But for those who don’t have surgery and try wait and watch after three years there are 38 % of risks of reoccurrence I believe …? « Although most recurrences were treatable by surgery, the impact of deferring it on long term survival is unknown.«

 

[BettyCrockerr]

This comment is interesting.View attachment 1694743

Why is it interesting?