The bone cold feeling is awful. Although my thyroid became overactive, there was a period of time after I'd given birth where my symptoms swung massively between hypo/hyper. I'd be so cold my nails and lips were blue and I'd be falling asleep sat up, in the middle of the day. I took my temperature once during an episode and I was into the hyperthermic range. It was a really horrible time so I hope you get some help with it.Oh my goodness, I feel like I could have written this myself.
I think I’m finally starting to realise I’m not completely crazy.
I have an appointment Monday morning so will hopefully get a blood test done and some sort of reassurance.
at this point I actually want it to be a thyroid issue so I can treat it, cause otherwise I think il go crazy!
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Wow that does sound awful
is it better and under control now? Thank you so much. I don’t know if I’m being dramatic here but it’s really affecting my marriage.
My husband is completely sweating his bits off while I’m sat here shivering with blankets, hot water bottle etc. I beg to turn the heating on and we argue about how expensive it is and how the house is already boiling. I just worry so much about my son being cold and if he feels the cold like I do.
My hubby reassures me daily that my son is lovely and toasty warm. I think I’m driving him insane keep going on about it….
I wish I could just relax but I just struggle so much
Mine is sorted now, thank you. It went fully overactive in the end due to a multinodular goiter so I had half removed. The other half is big, noticeably big but it isn't compressing my windpipe which was the case when I still had the full gland and my levels are all good now.Wow that does sound awful
Thank you so much. I don’t know if I’m being dramatic here but it’s really affecting my marriage.
My husband is completely sweating his bits off while I’m sat here shivering with blankets, hot water bottle etc. I beg to turn the heating on and we argue about how expensive it is and how the house is already boiling. I just worry so much about my son being cold and if he feels the cold like I do.
My hubby reassures me daily that my son is lovely and toasty warm. I think I’m driving him insane keep going on about it….
I wish I could just relax but I just struggle so much
It was a rough few years though, at one point I lost a lot of weight in the space of a fortnight and ended up weighing under six stone. I had awful muscle weakness as well and lost quite a lot of hair at the temple, I looked like I had a really bad receding hairline. I also developed darkened skin patches in various places. It's not a particularly nice illness to have and I found a lot of people didn't even know where the thyroid was located, nevermind what it does.
I'll keep everything crossed for you that if your bloods show a thyroid problem that you can get the tight treatment. It's not always as straightforward as you'd think it might be to get the help.
I was borderline for a long time and it did fluctuate into and out of normal range but once it had become properly overactive it stayed it. I'd had problems for years on and off though. I originally found out my TSH was reduced because I had an abnormal heart rate during an operation and they did blood tests.I’m another postpartum thyrotoxicosis suffererduring lockdown too, so no access to help! Nine long months of weird weak jelly arms and a racing heart before I finally got answers. We’ve recently found multiple nodules on an ultrasound and I keep noticing I’m fluctuating between over and underactive symptoms frequently, did you stay permanently hyper, or did you also wax and wane? Our local endo service is overrun and it’s taking months to get seen for checkups, I’m not sure how serious it is and whether I should be pushing harder/making more noise, I hate feeling like a hypochondriac!
One nodule grew quite quickly. I ended up referred on the two week wait cancer pathway, had a needle biopsy on 24th Dec and spent the whole Christmas period desperately trying to "make memories" because I felt so awful, I genuinely believed I could be seriously unwell. I'd had a lot of problems with it being overactive during the pregnancy earlier than year (and during and after the previous one) and they wanted to put me on Carbimazole (I think that's what it was) but I refused. I did have another pregnancy after that (not planned) and fortunately it didn't flare up as badly but the nodules really grew which led to the hemithyroidectomy.
I felt like a hyperchondriac too. So much so, I became quite anti doctors because at one point I was literally shaking head to toe all the time and they told me I was just very anxious and would have to inpatient me! It was really awful so yes do fight. You may need to ask for a conversion of T3 to T4 test. I wish I had. You know yourself best, not the GP. Push for what you need and be confident with it.
Just out of interest, have you got wrist pain? They tried to tell me mine was carpal tunnel but the wrong fingers hurt for it to be that. I've read bits that say it can cause wrist pain but I've never found anyone else who has experienced it.
not sure if you mean thyroid issues in general or specifically postpartum (sorry if the latter bc that's not me) but yes! started flaring over lockdown, assumed it was with WFH for longer periods of time but saw a physio earlier this year who said it's likely a TFCC tear based on symptoms and physical assessment but no xray etc. i wear a wrist widget now fairly regularly and have seen a change in how much i 'notice' it tbh! also use an ergonomic mouse where your thumb points up and have got on well with that too
another q but honestly might be different based on what's causing the nodules - how often do you get an ultrasound? my first and only one was almost 7 years ago after being diagnosed, keep asking docs but can never get a straight answer
My wrist pain was specifically postpartum. It didn't happen at any other point it was overactive. Not that I remember anyway. I used wrist splints for a while.
I've had four, maybe five ultrasounds in total I think. Three before I had half removed and two on the remaining side after that. I vaguely remember discussions that there would be one annually under the Endo but because the my wind pipe had become deviated there was no choice but to operate at that point.
It's ENT I was under most recently (most recent scan was last year or maybe earlier this year, I've lost track of time a bit over the last two years). They've said I will definitely need the remaining half removing within a time frame of ten years but won't monitor me during that time. I just have to go back to the GP and be re-referred if I feel it's become problematic. It may well become overactive again but so far so good
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So my blood results came back.
thyroid levels are fine.
I’m sat here crying in frustration as I was so sure it was my thyroid and that I was finally gonna get help for it!
So I’m supposed to just lose My hair in clumps, be freezing even in a warm environment, struggle to keep awake & feel low 24/7 for the rest of my life with no explanation.
ok
I don’t know how much longer I can take feeling like this
thyroid levels are fine.
I’m sat here crying in frustration as I was so sure it was my thyroid and that I was finally gonna get help for it!
So I’m supposed to just lose My hair in clumps, be freezing even in a warm environment, struggle to keep awake & feel low 24/7 for the rest of my life with no explanation.
ok
I don’t know how much longer I can take feeling like this
So my blood results came back.
thyroid levels are fine.
I’m sat here crying in frustration as I was so sure it was my thyroid and that I was finally gonna get help for it!
So I’m supposed to just lose My hair in clumps, be freezing even in a warm environment, struggle to keep awake & feel low 24/7 for the rest of my life with no explanation.
ok
I don’t know how much longer I can take feeling like this
What are your numbers? You can be borderline but normal and still have symptoms?
Annoyingly, all she said was they’re normal. I didn’t get a chance to ask..
is this something I should find out?
Yes, you can request a print out of your results from the GP. They should have the lab ranges in brackets next to the numbers.
It’s true that the NHS “normal” range just often isn’t. Naturopaths often talk about this being the case. Also, you could get your blood count checked as pernicious anaemia (lack of vit B12) can wipe you out and make you feel really awful.So my blood results came back.
thyroid levels are fine.
I’m sat here crying in frustration as I was so sure it was my thyroid and that I was finally gonna get help for it!
So I’m supposed to just lose My hair in clumps, be freezing even in a warm environment, struggle to keep awake & feel low 24/7 for the rest of my life with no explanation.
ok
I don’t know how much longer I can take feeling like this
I just saw this thread - it's so timely, my doctor suspects I have an underactive thyroid. Going to have labs done (ugh, I hate needles), hope I can find answers as to what's going on with me!
I hope you get the answer you’re looking for!
it’s such a worrying time.
what Sort of symptoms do you have?
Weight gain despite diet and lots of exercise and activity - this is the annoying thing, trying to lose and I am gaining, my doctor immediately was like "Let's check your thyroid."
Cold extremities
Fatigue, I have insomnia, but I will go weeks with having good sleep and I am still SO TIRED ALL THE TIME
Joint pain, knees, elbows
Brittle nails, dry flaky skin
These are all exactly what I have!!!!
the coldness and fatigue are what gets me the most!
my bloods came back as deficient in Vitamin D, so I’m now taking a supplement.
It’s nice when the doctor doesn’t just fob you off and actually do some investigations.
Hopefully you can get the right treatment for it, cause it’s so debilitating!
Sometimes results are borderline, so falling to the ‘normal’ range but only just. Could you make an appointment with your GP to discuss your symptoms again? I had symptoms of thyroid problems for a few years before my bloods were out of range, looking back at photos now I can see my neck has a pronounced goitre back then but my bloods were showing as fine.So my blood results came back.
thyroid levels are fine.
I’m sat here crying in frustration as I was so sure it was my thyroid and that I was finally gonna get help for it!
So I’m supposed to just lose My hair in clumps, be freezing even in a warm environment, struggle to keep awake & feel low 24/7 for the rest of my life with no explanation.
ok
I don’t know how much longer I can take feeling like this
mine are available under medical record / test results on the patient access app if that's something you have or can download? like others have said 'borderline normal' isn't normal at all imo!
Is that the nhs app?
if I can’t figure it out myself I think il ask for a printout of my results.
i think it's a third party one but recommended by my gp. definitely ask though!
So I found out my blood results -
TSH - 0.78
T4 - 10.9
I hope these mean something to one of you lovely people
I need to know wether to speak to my doctor again.
TSH - 0.78
T4 - 10.9
I hope these mean something to one of you lovely people
I need to know wether to speak to my doctor again.